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FEVRnet · Familial Exudative Vitreoretinopathy
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The mission of this group is to provide a place where people from around the globe can talk and share information about the rare genetic eye disease, Familial Exudative Vitreoretinopathy or FEVR for short. As well, the site provides a place to learn the latest news about the research being done on disease. Please also visit the website http://fevr.net for more information.

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Re: Studies by Mr Moore - Moorefields Eye Hospital - London UK
Hi, I can answer your question about your eyes not looking like they are looking straight. I hated this problem too. When you have FEVR, over time it drags
Posted - Wed Sep 9, 2009 7:17 pm
 Jane Ann Young
young1_fevr
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Re: Studies by Mr Moore - Moorefields Eye Hospital - London UK
Hi,        My nine year old daughter has FEVR which we discovered when she was 13 months old.  I am not a retinologist but I highly recommend you get a
Posted - Tue Aug 11, 2009 9:20 pm
 William Hassett
whassett
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Re: Studies by Mr Moore - Moorefields Eye Hospital - London UK
Hi and thanks so much for the info, our daughter is 5 years old and suffers from FEVR   It would be fantastic is something was discovered, thanks once again
Posted - Tue Aug 11, 2009 1:40 am
 Max Bodnar
maxkonji
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Studies by Mr Moore - Moorefields Eye Hospital - London UK
Hi, I'm a teenager with FEVR and visit Moorefields Eye Hospital in London, UK every year. I have recently been to visit the hospital, to see if there is
Posted - Mon Aug 10, 2009 7:54 pm
 trillianz1990
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Re: Sceleral buckle, eye patching and early diagnosis
Hi, Glad that the patching helped. We had to patch our daughters right eye as well from about 4-5 1/2 whilst it didn't improve her vision as far as the eye
Posted - Sat Jul 18, 2009 12:29 am
 Darryl Beales
darryl.beales
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