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FEVRnet · Familial Exudative Vitreoretinopathy
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The mission of this group is to provide a place where people from around the globe can talk and share information about the rare genetic eye disease, Familial Exudative Vitreoretinopathy or FEVR for short. As well, the site provides a place to learn the latest news about the research being done on disease. Please also visit the website http://fevr.net for more information.

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NIH FEVR Clinical Study Ending July 15, 2009 - Last Chance to Join
I have received an E-mail from Dr. Tsilou, head of the National Institute of Health (NIH) Eye Clinic that the FEVR genetic clinical study is ending due to lack
Posted - Thu Jun 4, 2009 6:41 pm
 Jane Young MS
young1_fevr
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Re: X-linked Juvenile Retinoschesis
You are fortunate to be in HK where I'm quite sure you can find a good retinal specialist. Our daughter was diagnosed with FEVR while we were living in
Posted - Fri Apr 3, 2009 7:14 am
 gwkuma007
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Re: X-linked Juvenile Retinoschesis
Thanks a lot Kerrie. Thanks for giving me the link to contact the other people who have the same disease. May God bless you and also the other kids who have
Posted - Fri Apr 3, 2009 3:04 am
 Esther
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Re: X-linked Juvenile Retinoschesis
Hi This disease is not related to FEVR. I found a group of people when I searched with the same disease http://www.makingcontact.org/index.php?ci=1738 I can
Posted - Thu Apr 2, 2009 9:21 am
 Darryl Beales
darryl.beales
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X-linked Juvenile Retinoschesis
Hi, my son is 4-year old who has just diagonised to have X-linked Juvenile Retinoschesis. I just want to know if it is same as FEVR? We are in Hong Kong and
Posted - Thu Apr 2, 2009 3:44 am
 Esther
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