FEVRnet : Familial Exudative Vitreoretinopathy

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The mission of this group is to provide a place where people from around the globe can talk and share information about the rare genetic eye disease, Familial Exudative Vitreoretinopathy or FEVR for short. As well, the site provides a place to learn the latest news about the research being done on disease. Please also visit the website http://fevr.net for more information.
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For new members or reminder for all members

Welcome to the FEVRnet -Bulletin Board, a place to discuss topics related to FEVR and related eye problems from the technical to the emotional aspects. The board is open to all from families to patients to doctors and researchers.

You can unsubscribe by sending an email to
FEVRnet-unsubscribe@yahoogroups.com

We hope you enjoy the group and look forward to hearing from you. Please visit the main FEVR website http://fevr.net

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Sorry about the spam, it happens To All, Please excuse the spam that has appeared in the last few months from the group. The account has been deleted as well as the spam messages. If problems Posted - Mon Jan 9, 2012 10:17 pm	young1_fevr Offline Send Email
Nice Story Passed on via E-mail I recieved this E-mail. It's about a FEVR child's story in the LA Times ... I saw your website - thank you, as it is the only real information I can find on Posted - Fri Jun 10, 2011 5:57 pm	young1_fevr Offline Send Email
Re: cataract operation with fevr Dear Jane Thank you very much for your advice on cataract operations. Yiannis ________________________________ From: Jane Ann Young <young1@...> To: Posted - Thu Apr 22, 2010 8:47 pm	Nick Halepas nicklhd1985 Offline Send Email
Re: cataract operation with fevr Yiannis, Cataract Operations are pretty safe. I just had both eyes done and all went well but I have seen people who had complications who don't even have Posted - Wed Apr 21, 2010 5:35 am	Jane Ann Young young1_fevr Offline Send Email
cataract operation with fevr Hi, My name is Yiannis and was diagnosed with fevr at the age of 12 after loosing my sight in my left eye. Luckily I had laser treatment on my right eye at age Posted - Sun Apr 18, 2010 6:35 pm	nicklhd1985 Offline Send Email
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