FEVRnet : Familial Exudative Vitreoretinopathy

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The mission of this group is to provide a place where people from around the globe can talk and share information about the rare genetic eye disease, Familial Exudative Vitreoretinopathy or FEVR for short. As well, the site provides a place to learn the latest news about the research being done on disease. Please also visit the website http://fevr.net for more information.
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For new members or reminder for all members

Welcome to the FEVRnet -Bulletin Board, a place to discuss topics related to FEVR and related eye problems from the technical to the emotional aspects. The board is open to all from families to patients to doctors and researchers.

You can unsubscribe by sending an email to
FEVRnet-unsubscribe@yahoogroups.com

We hope you enjoy the group and look forward to hearing from you. Please visit the main FEVR website http://fevr.net

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Re: FEVR teens We're one of a couple of big families riddled with FEVR. My husband was born with a dominant FZLD-4 mutation, but he was misdiagnosed, and we didn't find out Posted - Thu Dec 27, 2012 3:11 pm	Elayne Glantzberg solinoxco Send Email
FEVR teens Hi, My son has FEVR, and had laser surgery when he was about 6 years old to stop the bleeding. One of his eyes have low vision. The other one is normal so Posted - Thu Dec 27, 2012 4:36 am	hsiao_su Send Email
Re: Doctor referral in California If you do come to Michigan and see either Dr. Capone or Dr. Trese, please also plan on coming to our Children's Low Vision Resource Center. While there is a Posted - Wed Dec 26, 2012 1:42 pm	Paula Korelitz ropard Send Email
Re: Doctor referral in California It is best to see Dr. Capone in Michigan. You will be in good hands. Posted - Wed Dec 26, 2012 12:07 am	tcwt2000 Send Email
Re: Doctor referral in California My son sees Dr. Eugene de Juan at UCSF. Hope that helps. Posted - Tue Dec 25, 2012 2:14 am	hsiao_su Send Email
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