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FEVRnet · Familial Exudative Vitreoretinopathy
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The mission of this group is to provide a place where people from around the globe can talk and share information about the rare genetic eye disease, Familial Exudative Vitreoretinopathy or FEVR for short. As well, the site provides a place to learn the latest news about the research being done on disease. Please also visit the website http://fevr.net for more information.

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The Boston Retinal Implant Project
Promising news from a group seeking to provide relief from retinal diseases: http://news.bostonherald.com/news/regional/general/view.bg?articleid=1078909"
Posted - Wed Mar 12, 2008 5:19 pm
 James Wilkins
jameswilkins
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New new Retina Inst. at Childrens Hosp of LA
I am passing on this letter I recieved. ... Hi Ms. Young, I came across your FEVR website and wanted to update you on our new Retina Institute at Childrens
Posted - Thu Feb 7, 2008 9:06 pm
 Jane Young MS
young1_fevr
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Re: Looking more into FEVR
Hi Manda, It's sad that your son was born with FEVR, like myself. I can understand how he's feeling at the moment, being in dinial about his sight, but trust
Posted - Mon Jan 7, 2008 6:07 pm
 trillianz1990
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Re: Looking more into FEVR
hi luke, my name is manda and i live in derbyshire in the uk, i have a son called quinn who will be 10 on feb 12th.......quinn was born with fevr also and he
Posted - Fri Jan 4, 2008 6:57 pm
 manda stenson
mandshere2000
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Looking more into FEVR
Hi. I'm 17 years old and have had FEVR since I was born. It's never really affected me much and I've never had much of a problem with it, up until when i was
Posted - Thu Jan 3, 2008 11:43 pm
 trillianz1990
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