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FA_babelFAmily · FA_babelFAmily

Group Information

  • Members: 253
  • Category: Ataxia
  • Founded: Jun 9, 2006
  • Language: Other
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Activity within 7 days:

9 New Members - 25 New Messages - 3 New Photos

Description

FA_babelFAmily è una mailing-list multilingue indipendente nata per diventare fonte di informazione per tutte le persone colpite dall'atassia di Friedreich in Europa e nel resto del mondo. Ricerca scientifica, sensibilizzazione e raccolta fondi sono i principali temi trattati da FA_babelFAmily.

FA_babelFAmily is an independent multilingual mailing-list born in order to become a source of information for all people coping with Friedreich's Ataxia in Europe and worldwide. Scientific research and fund-raising are the topics FA_babelFAmily deals with.

FA_babelFAmily se constituye como fuente independiente de información para todas las personas que deseen hacer frente a la Ataxia de Friedreich en Europa y en el resto del mundo. Apreciaremos particularmente todos los mensajes que tratan de qué se esta haciendo en el campo de la investigación científica y de la recolecta de fondos para alcanzar una cura para la AF.

FA_babelFAmily est une liste de diffusion multilingue et indépendante née pour devenir une source d'information pour toutes les personnes faisant face à l'Ataxie de Friedreich en Europe et dans le monde entier. Nous apprécierons en particulier tous les messages traitant ce que l'on fait dans le domaine de la recherche et de la récolte de fonds afin de parvenir à un traitement pour l'AF.

A FA_babelFAmily é uma lista de distribuição poliglota de correio eletrônico, não ligada a nenhuma associação, nascida como fonte de informações para toda as pessoas interesasadas na ataxia de Friedreich (FA) na Europa e no mundo inteiro. Apreciaríamos particularmente todas as mensagens que tratarem do que está sendo feito em termos de pesquisa, bem como no que diz respeito ao levantamento de fundos, visando a uma cura para a FA.



Most Recent Messages

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ENG: Encuentro Ataxias (Ataxia Encounter) 2008 -- Second scientific
http://health.groups.yahoo.com/group/FA_babelFAmily/message/1761 (ESP) http://health.groups.yahoo.com/group/FA_babelFAmily/message/1791 (ITA) Summary by Mari
Posted - Sat May 17, 2008 9:26 pm
Gian Piero Sommaruga ...
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ENG: FARA eAdvocate - Spring 2008
Spring, 2008 The following is a snapshot of the full newsletter. Clinical Trials Update Like everyone in the FA community, FARA is excited about the extremely
Posted - Sat May 17, 2008 8:29 pm
Gian Piero Sommaruga ...
gippirintronet
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ENG:TheraTogs AtaxiTog Kit, an orthotic undergarment system designed
www.theratogs.com Videos: http://www.theratogs.com/Media/Press/KGO_Autism/index.html http://www.theratogs.com/Media/DTW/index.html
Posted - Sat May 17, 2008 7:32 am
Gian Piero Sommaruga ...
gippirintronet
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ESP: Terapia genética experimental podría ayudar a niños que pade
http://health.groups.yahoo.com/group/FA_babelFAmily/message/1816 (ENG) http://www.sld.cu/servicios/aldia/view.php?idn=21951 Fuente: Washington, mayo 13/2008
Posted - Fri May 16, 2008 10:19 pm
Gian Piero Sommaruga ...
gippirintronet
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ITA: Novussanguis, consorzio internazionale di ricerca sulle cellule
http://health.groups.yahoo.com/group/FA_babelFAmily/message/1818 (FRA) http://www.aduc.it/dyn/salute/noti.php?id=220197 U.E. - FRANCIA Consorzio internazionale
Posted - Fri May 16, 2008 8:07 pm
Gian Piero Sommaruga ...
gippirintronet
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 86 75 126 119 69
2007 68 40 127 147 115 71 32 51 101 117 84 92
2006 35 20 20 44 71 90 23

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