Hi..Sorry to hear about Alex. My granddaughter Madison is Alex's age(diagnosed with ITP/Evan's Syndrome one week before her 5th birthday) and we have...
hello everyone this is mindy, alex's mom havent been on in quite awhile Alex is having his famous summer drop just like clockwork his platlets are at 4,000 the...
Gabby was at a platelet count of 1k right before we started the rituximab. They wanted me to give her steriods again and I declined. I am so happy. The...
I am glad to hear that Gabby is going well, my son Paul now 22, has been thru many things with his Evans as well as other health and learning issues. BUT he...
I wish you all were here,,,noone can understand what this disease is. It is lonely and scary. I am scared for the future. Debbie ... From: cindy sherwood...
All, Â I will always be holding my breath anf thanking you all with the breath of my body for all of your help. You have no idea how thankful I am for this...
My daughter hannah went through all of the same...way to  much to mention. At a platelet count of 4000 we decided on rituximab. After 3 difficult treatments,...
Glad to hear Gabby is doing well... Â PLT of 285 is great... Â Patrick is 16, tough for a teenager to have to deal with these things... Â My son appears to...
Hi Everyone, Â I saw this great positive message and I wanted to give all of you an update on my 14 year old Gabby. Â We went through the Rituximab in...
To all: We are now 7 month after surgery and Patrick continues to do well... As of Friday, HGB is 13.9, WBC 10.2 and PLT 419,000. Coombs test is negative since...
Hi, all, My son, who has Evans Syndrome, will be going off to college this fall in the Cleveland area. I presume the medical center of choice is the Cleveland...
I apologize for this coming to the evans group. MyLife used to be reunion.com and it automatically sent invitations to my entire address book, without me...
I have received a couple of invitations like this. Can anyone tell me what the advantage is to using this site? We already have a social media networking...
Laura Phillips added you as a friend on MyLife(TM). Please confirm you know Laura so we can connect you. Do You Know Laura? YES - Connect with Laura, and see...
Wonderful news Erin! You can literally feel your relief and happiness! Thanks for sharing with us. It's wonderful to think of Patrick enjoying life!  ...
To All: Patrick continues to do well...latest counts this past Friday are HGB 13.9, WBC 7.2 and platelets 390,000. Drs have lowered Imuran to every 3rd day....
... Amy,thanks for info we are switching hospitals so Aaron can be closer to home [just for infusions] he typically receives powder gammagard and i wanted him...
Julie, There are many brands of IVIG. I do not know of any "generic" brands. Baxter Healthcare makes GammaGard. Some of the other companies that produce...
Hi Judi! My daughter got the diagnose when she was 7 months old. She had low thrombocytes and erythrocytes. Normal white blood cells. She got steroids and...
Hi I wrote to the group a few weeks ago.. looking for anyone that has been diagnosed with Evans as an infant.  My grandson is 8 months and has been...
Hello, Can anyone give me inforamtion on ivig? my son uses gammagard has anyone ever used any other brands? Do they make generics for ivig? Thank you, Julie...
Betty, I'm so happy to hear that your son is doing well and not having any treatments at this time. It sounds like your family has been through alot. I am...
MY SON WHO WILL BE 22 TOMORROW, HAS BEEN DEALING WITH EVANS SINCE HE WAS 14, WE LIVE JUST SOUTH OF BOSTON. IN ADDITION TO THE EVANS HE HAS HAD MANY OTHER ...
Hi Pepsi, I was diagnosed with Evans 2 years ago at the age of 46. I have had predisone which brought my Hgb up but did not work for my platelets. I then...
Hi,  I'm 48 years old and have been dealing with Evans since I was 31. What would you like to know?  Debbie ... From: pepsi02155 <pepsi02155@...> ...
hi i am looking for people who is over the age of 25 who have evans to see what they bean threw so far in treament i have evans for 7 years and i live in...
To all, My grandson, 7 months of age,  has been diagnosed with Evans Syndrome.  I have been attempting to gain as much knowledge and information as...
I've been really healthy since Rituxan. I'm convinced that it helped me get into remission. However, I had serum sickness, a severe reaction to it, and had to...
We have decided to go with the Rituxan for Zachary, thank you so much for sharing your experiences...it really helped ease our anxieties (at lease a little...
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