Hi Lori,  I apologize for the delay in my response. I've been without a computer for two weeks! To answer your question, none of the clotting disorders...
I have a history of Evans syndrome and am in good health standing and is not on any medications. I want to know if any of your doctors have said anything...
I have a history of Evans syndrome and am in good health standing and is not on any medications. I want to know if any of your doctors have said anything...
Nick, My daughter's doctor has never said for her not to exercise. She takes dance class and seems to be ok. When she is sick though I try to keep her doing...
I've been in remission for a few years now and my primary care physician knows about my exercise routine and general activities. She has never said it was a...
To All:  Patrick is now 4 months post splenectomy... Latest news from hematologist is fantastic for him...  On Monday, HGB was 12.8, WBC was 7.5 and...
Erin,  Congratulations!!! That's wonderful news! Thanks for sharing good news with us! I'll continue to keep Patrick in my prayers!  Debbie (48...
Erin So pleased for all of you to hear how well things are for Patrick Betty Mom to Paul 21 Evans + **************A Good Credit Score is 700 or Above. See...
Nick Paul has been in remission but going to the gym he seems to keep picking up viruses no matter how much he cleaned the equipment before and after so ...
Thanks Betty... Â Drs do feel my son has AIHA and not Evans... Â What a crazy roller coaster ride this has been...Glad for the good days... Â I hope your...
Hi all, I know I've maybe asked this before, but my son is again having trouble with chronic hives. He started getting occasional episodes of hives after he...
My daughter Madison has the same problem. We use Zyrtec and Singular daily and she has not had a single one in about 2 years. Our doc thinks they are from heat...
Hi , what type of hives is this can you post a photo of it? The hives may be because of the autoamunie( sorry for spelling) maybe attacting the body I know...
My daughter gets hive a lot as well.It usually coincides w/ when she is lower in platelets.Things that would not normally cause hives, will at this ...
Hi Erin,  I'm doing quite well. I've haven't been able to get off a low dose of prednisone or Immuran, but that's ok...I feel good and I've stayed out of...
Debbie,? I am in my 50's and got Evans about 4 1/2 yrs ago.? My last spell was in Feb. 08 and went into remission about 4 months ago.? A gentleman in New...
Bev
homesbybev@...
Mar 23, 2009 3:46 pm
5329
Bev, I was diagnosed with Evan's as a teenager (I'm now almost 40). I had a splenectomy, then IVIG and was in remission almost 20 years, before I had problems...
Hi Bev,  There are actually quite a few adults with Evans; and quite a few that communicate in this support group. I tend to stay in the background when...
Hello, We are still waiting for yet another type of lung biopsy the first two have been done with bronchoscope since they are not giving us any answers we are...
Hello. My son has gone through much lung testing, and biopsies. He was scheduled for the biopsey through the side. However, he had anoher ct scan just prior to...
A little over a year ago we discovered that my 16 year old son had many lung nodules of varying size as well as enlarged lymph nodes throughout his body. A...
Hi all! I haven't posted on here in a while, but I've been reading all of your posts, and are thankful for this group! Zachary (age 5) was diagnosed with...
I had a round (4 treatments) of Rituxan the summer of 2007. Since then, the number of colds/sicknesses I have gotten have diminished to almost zero. Before,...
Hi Nicole - My name is Nichole as well - I have been fighting Evans since 1998! After been in meds for this until 2001, I finally when I turned 30 strangly...
Hi Nicole. My daughter is 8 and had Rituxan in 2006. It did not work for her. I see you wrote your doctor suggested Mercaptopurine. My daughter takes that and...
Hi Nicole, My son, Ben (18 - diagnosed at 10 with evans), tried the rituxan route and it did not work well for him. it took three months to have any effect and...
Hi Nicole,  I don' envy you trying to make these decisions! I know how tough it is! I had Rituxan treatment appx 3 years ago and have been in remission...
Hi, Rituxan worked well for my son and he had no problems for at least a year and a half and just started having low counts, but nothing severe. No side...
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