Hello all... Â Patrick's latest visit to hematologist this past Monday went very well... Â Hgb is 13.2, WBC 7.5 and Platelets 418,000. Â He's feeling much...
what surgery did he have? was his spleen removed? Lsia(madison'smom) Â ... From: Erin Healey <eheals27@...> Subject: [EvansSyndrome] Patrick-almost 3...
Hi Lisa!  Yes, Patrick has his spleen removed on 11/6/8... He had been feeling very sick since June...lots of stomach discomfort, losing appetite etc...,...
Erin, Im so glad to hear his surgery went well and he is still in remission. Madison's doctors have wanted to remove her spleen on several occasions but I...
Lisa:  Congratulatons... My second son was born in April...nice time of year to have a baby...  I don't know that Patrick is considered in remission......
Hi all, Our family is new to all of this; our 17 years old daughter has just been diagnosed with Evans, Lupis Anticoagulant, Anemia and several others. She was...
Hi,  My name is Cindy, this is the first time I have written anything on this forum. I joined about 4 months ago, and it has been a WEALTH of knowledge.  ...
HI, My name is Andi, my son Nick (now 26) was diagnosed with Evans a few years ago. This group has given me hope. There are many treatments available and...
Hi All. I just wanted to update you on my son Nik. He is doing wonderful! It had been a roller coaster with him since he was 17 mos old. He is now 17 years...
Way to go Laurie... Â I can relate...since Patrick had his spleen removed in November, he feels so much better.... doing all the things a 16 year old should...
Hi Laurie, It must be just wonderful to see Nik so healthy and happy after so many years of being sick. I am so happy for him. As a mom, I know that you...
Greetings, Wayne and Nikki. I'm sorry you had to join us under such awful circumstances, but I want to welcome you to the group. I think you will find a lot of...
Hi, Cindy :-) What a wonderful, encouraging story! Thank you so much for sharing!! I'm very happy your daughter is responding to her rituximab (Rituxin)...
Constance, I caught this on our local Chicago news the other day and wanted to forward the link on to you. This sounds like the transplant you mentioned. ...
I was diagnosed with Evans Syndrome in 2003 while I was in the Navy. I took my last blood test in late 2003. I have yet to my blood counts tested since. After...
Before I finally had blood work done and was considered out of remission (was in remission for almost 20 years), I started feeling really tired, dragging tail,...
Interesting. I coach and run a business. Been pretty stressful the past few months. My heart flutters and such. I had no signs when I first got sick. One...
When my daughter Madison relapsed last year she had patechei on ehr face. She had been in remission for about 8 months nad then got pneumonia. I believe that...
Yes! That's it :-) Thank you so much for the article! Constance McNamara Administrator, Evans Syndrome Community Network http://www.evanssyndrome.org/ Please...
Signs of Evans relapse: Nose and mouth sores Nose bleeds Easily out of breath Blood in stools Frequent infections Athlete's foot (I know that sounds weird but...
Hey, Laura...w007!!! (or whoot!) You rock. It sounds like you're doing really well. Hang in there and watch yourself. That's your best defense right now. ...
Wow! That IS scary. As for me, I had signs off and on for many years before my initial diagnosis. Doctors kept "barking up the wrong tree". The one thing they...
Lisa... I don't personally know if pneumonia is a forerunner of Evans, or if it is a result of Evans, but I do know they are related. One of the things they...
Constance, Â Thank you so much for this forum..I cannot begin to express how happy I am to have found this site. Â Today Gabby still cannot go to school...
Hello Everyone, Please keep our son in your prayers tommorow he has a lung biopsy scheduled they are checking on nodules. Thank You Aaron's mom Julie......
Constance, It is weird you mentioned Athlete's foot. My daughter's feet peel really bad but I thought it was from using steroids. Now that I think back, she...
Hey all... First, I just want to make it clear that I am not an Administrator for this Yahoo group. I am an Administrator for the Evans Syndrome Community...
Julie, we're praying for Aaron and your whole family. Please let us know how it goes. - C Constance McNamara Administrator, Evans Syndrome Community Network ...
I feel that they are also a product of your body shape when you got sick. I was in the Navy and in the best shape of my life. I gained over 100 pounds in 6...
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