hi:New shopping new life! How are u doing these days?Yesterday I found a web of a large trading company from china,which is an agent of all the well-known...
Hello all - Until now my son has only had problems with low platelets and neutropenia, but now he is experiencing his first bout with hemolytic anemia. He has ...
we (that is, our son, 18) did less than ok on his first round of rituxin. it took about 3 months for him to have a positive reaction and then he was good for...
Susan, I do not have Evans but do have AIHA. I was diagnosed in August 2004. Since that time I have been on everything you can think of trying to get it...
Susan, My 8 year old Madison has Evan's but only has problems with her platelets. She had 4 doses of Rituxan in 2006. It did not do anything for her but if I...
Rituxin put me into remission at the age of 44. It is my understanding that Rituxin is more effective on children than on adults, so your son's chances of...
Rituxin put me into remission at the age of 44. It is my understanding that Rituxin is more effective on children than on adults, so your son's chances of...
Lisa, I, too, had a very hard time on steroids. I wouldn't wish that on anyone. My doctor calls them "sweet poison". I am curious about all of you, or your...
Hello Susan. My son had a difficult time with AIHA. He had Rituxan, and gratefully responded well. He has not had any further problems with AIHA for 4.5 years...
Hello all. I am forwarding to you the email that we received from a aunt in Argentina. If there is anyone of you who has had any experience with an infant with...
Hello all... Â Patrick's latest visit to hematologist this past Monday went very well... Â Hgb is 13.2, WBC 7.5 and Platelets 418,000. Â He's feeling much...
what surgery did he have? was his spleen removed? Lsia(madison'smom) Â ... From: Erin Healey <eheals27@...> Subject: [EvansSyndrome] Patrick-almost 3...
Hi Lisa!  Yes, Patrick has his spleen removed on 11/6/8... He had been feeling very sick since June...lots of stomach discomfort, losing appetite etc...,...
Erin, Im so glad to hear his surgery went well and he is still in remission. Madison's doctors have wanted to remove her spleen on several occasions but I...
Lisa:  Congratulatons... My second son was born in April...nice time of year to have a baby...  I don't know that Patrick is considered in remission......
Hi all, Our family is new to all of this; our 17 years old daughter has just been diagnosed with Evans, Lupis Anticoagulant, Anemia and several others. She was...
Hi,  My name is Cindy, this is the first time I have written anything on this forum. I joined about 4 months ago, and it has been a WEALTH of knowledge.  ...
HI, My name is Andi, my son Nick (now 26) was diagnosed with Evans a few years ago. This group has given me hope. There are many treatments available and...
Hi All. I just wanted to update you on my son Nik. He is doing wonderful! It had been a roller coaster with him since he was 17 mos old. He is now 17 years...
Way to go Laurie... Â I can relate...since Patrick had his spleen removed in November, he feels so much better.... doing all the things a 16 year old should...
Hi Laurie, It must be just wonderful to see Nik so healthy and happy after so many years of being sick. I am so happy for him. As a mom, I know that you...
Greetings, Wayne and Nikki. I'm sorry you had to join us under such awful circumstances, but I want to welcome you to the group. I think you will find a lot of...
Hi, Cindy :-) What a wonderful, encouraging story! Thank you so much for sharing!! I'm very happy your daughter is responding to her rituximab (Rituxin)...
Constance, I caught this on our local Chicago news the other day and wanted to forward the link on to you. This sounds like the transplant you mentioned. ...
I was diagnosed with Evans Syndrome in 2003 while I was in the Navy. I took my last blood test in late 2003. I have yet to my blood counts tested since. After...
Before I finally had blood work done and was considered out of remission (was in remission for almost 20 years), I started feeling really tired, dragging tail,...
Interesting. I coach and run a business. Been pretty stressful the past few months. My heart flutters and such. I had no signs when I first got sick. One...
When my daughter Madison relapsed last year she had patechei on ehr face. She had been in remission for about 8 months nad then got pneumonia. I believe that...
Yes! That's it :-) Thank you so much for the article! Constance McNamara Administrator, Evans Syndrome Community Network http://www.evanssyndrome.org/ Please...
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