Hi Laurie, My son, almost 16, has the same issues. His IgA is low and he has poor response to vaccines. About a year ago we found out he had nodules in his...
HI LAURIE, MY SON HAS HAD PROBLEMS WITH THE NODES BUT NOT IN HIS LUNGS, UNDER HIS ARM, IN HIS PELIV AREA, HE HAD ONE REMOVED LAST YEAR AND WE WERE TOLD IT...
Hi Laurie, I also have had problems with lymph nodes and nodules forming on them. They also thought it was for lymphoma - They did a biopsy of my lymph nodes...
... testing revealed he has a very low immune system. A CT scan showed he has many nodules on his lungs. He is to have a biopsey on a few of these nodules.They...
WELL THERE IS A LIGHT AT THE END OF THE TUNNEL!! WE FINALLY GET TO GO HOME TOMARROW!!! EITHER THE RITUXON,IVIG HAS KICKED IN THANK GOD!! WE WILL DO HIS NEXT...
Mindy, Glad to hear the good news and I hope that thing continue to improve for Alex. Betty mom to Paul 21 with Evans + **************New MapQuest Local shows...
Laurie, I am glad you finally have some answers for Nik, although I understand that this brings with it many more questions. Have you been able to order some...
Have any of you (or your children) experienced greater susceptibility to viral illnesses--being sicker and taking longer to get better, rather than catching...
Rituxan specifically suppresses B-cells which are responsible for making antibody production. So it is quite possible, and likely, that a person who has...
DW, After taking Rituxan my doctors have constistantly watched by CD4 counts and other counts that deal with the immune system. To date my CD4 is still less...
Dear DW My son gets a fair about of virus, especially around the change of seasons. He does not get a flu shot since his platelets never get above 25,000. ...
My daughter Madison was not diagnosed with Evan's until she was almost 5 but she has always gotten sick a lot more than most kids and yes, it always seems to...
Hi Everyone - I am so happy to have found this group! I was diagnosed with Evans about 6 weeks ago, after being sent to the hospital with an hematocrit of 15....
Hi Lori. My son (17 yrs)  has his spleen.His HGB and HCT were very low, and his platelett count was so low it did not register. The doctors did not push for...
Hi Lori - I was diagnosed with Evans back in 1998 (i was 27), when I went to the hospital all my counts were extremely low and my heart was beating almost 5...
Hi Lori,  I'm sorry to hear about your recent diagnosis with Evans, however, I'm glad you found this support group. It is a wonderful source of news and...
Hi Nichole, Thanks for your response and encouragement. I am realizing, slowly but surely, how blessed I am when I read about what others have gone through and...
Hi Lori, My recovery from the surgery was really fast. I had the surgery on a Monday & was home by Wednesday. The surgery was quick & easy and there was...
Hi Laurie, Thanks for responding and your thoughts on the splenectomy. I can understand the hesitancy in taking out your son's spleen at such a young age. I...
Hi Debra - Thanks for your posting and all the information. For those that have been at this for awhile I am sure you have shared your stories many times over,...
Lori: I have been reading the posting and finally found a few quiet minutes to e-mail... My son, who is almost 16, was diagnosed with what was thought to be...
Hi Lori,  I'm sorry to hear you're dealing with so many side effects from the prednisone! I know how you feel! My doctors told me most people deal with...
Hi Everyone - Sorry it has taken me so long to get back here. I went to the oncologist on Monday and had the best news I have had in many months. Everything...
Lori: Glad to hear all went well with your Dr visit.... I am taking my son to hem/onc this afternoon.... They raised his Imuran up last week to try and shrink...
Lori, Once the spleen is removed, there is a strong chance that the liver will take over in destroying your platelets and reds. Not sure if you knew this info....
Debbie: I was thinking about you today... Took Patrick to the hematologist...he has been having stomach discomfort. Drs feel it is his spleen. They are trying...
Hi Erin,  Sorry to hear Patrick's struggling with stomach discomfort. All these meds can be pretty tough on his stomach. Have the doctors ever given him...
Debbie: Patrick takes Xantac to help stomach. At one point gastroenterologist said he might give him Prevacid depending on what endoscopy and colonoscopy...
Has anyone's doctor mentioned Promacta to them? It is a new oral drug out for chronic ITP. It was approved by the FDA last week and should be available this...
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