Hi, my daughter, Tiffany, is almost 3 and she has been diagnosed with Evans since she was 10 months old. Our doctor has tried steroids, Rituximab, IVIG, and...
DANNY, I THINK EVERYONE WILL RESPOND WITH A DIFFFERENT ANSWER TO THIS ONE, SOME HAVE HAD LUCK WITH THE SPLEENCTOMY , OTHERS HAVE SHORT TIME, SOMETIMES PEOPLE...
Hi Danny, two of my brothers had a spleenectomy, the first one when he was 20 years old, and gave excellent results, he had no more problems after that...
Hi Danny, I'm sorry to hear about Tiffany's stuggles with this darn illness! Especially since she is so young! Like everything else with this illness, what...
Hi All My wife went in for a spleenectomy yesterday morning, we saw our consultants on 28/4/08 they wanted her to go in on friday 2nd of May but as we had...
Hi, I pray everyone is healthy and in remission.... and I pray everyone's treatment works for them. My son (Nick-26) had the spleen removed last year. As...
Hi, I have a son with Evans Syndrome. He is 26 now, the drs that i took him too advised me against that surgery. But what do you do , its all such a guessing...
Yes I do agree these children are so special but alas I must also state that when they go home to heaven it's a special grief one that so hard to fathom so...
Hi All, I watch this group and pray for all of the members as we deal with the problems of Evans Syndrome on a daily basis. I have lived with Evans Syndrome my...
Interesting response. Did you mention stem cells in your original message? Did he respond to your specific concerns as it relates to Evan's Syndrome?...
hi i have evans now for 8 years and i am wondering has anyone lost their eye sight from syndrome how may people live or close to boston i am now seeing a...
Hi, I am also from the Boston area and my eyesight has gotten worse since I developed this disease. I attributed this to age. I am interested to know what...
Hi, I didn't have vision issues due to Evans, but 2 years ago I was also diagnosed with Graves Disease (hyperthyroid) which is another autoimmune illness. My...
eileen i see to doctor one in stoneham name dr.pisc she is a go getter then when it becomes hard i get sent in boston to tufts and see dr ken miller he is like...
Autoimmune diseases are not inherited, but the tendency to have one is greater if you parents also have autoimmune diseases. My son has Evans, his father, my...
i go see dr.miller in tuft he had a huge roll in rear blood disorders i call him dr. house --- On Wed, 5/14/08, bettanmic@... <bettanmic@...> wrote: ...
Hello all~ I wanted to let you all know that I am still around :) I haven't had much access to the internet in quite a while, but when I'm able I read all of...
Dear everyone in this group, My name is Maxine. I am Nigel's sister. He was the one who started this thread. I was following your group for quite some time...
DEAR MAXINE, I AM SORRY TO HEAR OF YOUR BROTHERS PASSING AND HOPE THAT YOU CAN FIND PEACE IN THE DAYS AHEAD. BETTY **************Vote for your city's best...
 Hi All. I was wondering if any of you have problems with pneumonia. My 16 yr. old son Nik has had pneumonia almost non-stop since February. His blood counts...
Hi Laurie, My son, Aidan, was diagnosed with evans syndrome when he was 10 months old. He also battled many other problems including chronic repiratory...
... months old. He also battled many other problems including chronic repiratory infections (often pnuemonia) for years. He was diagnosed with a primary...
Hi, My daughter Madison also has allergy issues. She was in a short term remission(8 months)Â but got Pneumonia the begining of January and relapsed. SHe takes...
When my son was 9 months old, we had to get tubes put in his ears as he had so many ear and sinus infections, and also croup. He coughed and sneezed so much...
Hi. I will be taking my son to an immunologist on Tuesday. This part of my sons illness is new to me. What are some questions I should be asking? I have been...
Hi all, The group has been quiet lately. I hope everyone is doing well. Aidan is doing really well. His bone marrow transplant was over one year ago, it...
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