Hi Tiffany. My name is Lisa. I live in Pensacola(about an hour from you). Here is the best advice I can give you: ask your doctor to refer you to Shand's...
Does anyone, when dealing with the ITP, get tiny bruises in weird places? By tiny I mean the size of a finger nail. I have a couple on my fore arm and it seems...
My son gets tiny little bruises everywhere, including the forarm. You could be getting them from something as simple as carrying your purse, or wearing bangle...
Hi Lisa, Thanks for the advice. We are now checked back in at Womens and Childrens for now. His platelets were down to 2k this time. Depending on how long we...
Im sorry but I do not know anything about Birmingham. I just know that Shand's is great, even if you just go there for a second opinion. Im sorry to hear that...
When my daughter Madison went very low on her platelets, she got the exact bruises that you are talking about. She had them on her face and the rest of her...
Hi, just to even up the odds a bit, I don't think that swimming pools had anything to do with my son's getting Evans or any of the bad times he has had with...
Tiffany, I wanted to tell you that you may want to ask your doctor to confir with our doctor since he has seen my daughter through her course of Evan's...
Hi Tiffany, Have you taken Zachary to a pediatric immunologist? I do not have any information regarding hematologists in your area, but I have spoken with a...
Hi Tiffany. I'm in Jacksonville AL. I have not been treated in Birmingham, but have investigated their hematology doctors because of the problems had over...
The link to UAB is great! I really have heard great things about them. Someone recomended I have my doctor confer with theirs, and to be honest, I get the...
On the posting about chlorine, my son in the past was ill in March and Feb, so no swimming, but this time, yes, he swam most of the day Saturday in the pool....
I hope your son feels better soon.... My son, almost 15, is having a rough time with counts dropping right now... It happened at the end od August, oddly...
Tiffany, I fully understand you not wanting to insult your doctor but most doctors do not mind discussing cases with other doctors. Evan's Syndrome is not an...
Well after the day we had, I finally have them listening to me. He bacially laughed at me yesterday when i told him i wanted to check for ALPS, but with his...
Tiffany, I am keeping your entire family in my prayers. Most of us have been in the terrible place you are now. It is up to us to fight for our children so...
I got my platelets checked and they are 250, so no problems there. My doctor said the symptoms might be from stress and dehydration. I have no idea how that...
Jessica, Very glad to hear that your platelets are doing good. THat just happens sometimes. My daughter had patechei and bruises about 2 weeks ago and I took...
Hello everyone, I just read the entries for the past week, my heart goes out to everyone. Just wanted to give an update on my daughter Rhea. She is doing...
Rachel, So glad to hear the good news on Rhea. Im sure you guys will have so much fun on her wish trip. We went in March to Disney in Florida and Madison had a...
great news about Rhea... I am still praying for her and everyone in this group -- ... goes out to everyone. Just wanted to give an update on my daughter ...
I just had my gallbladder out this week, and I was surprised how emotional I got, being back for the first tine, at the same hospital that my son was in during...
hELLO EVERYONE, JUST UPDATING ON ALEX. WELL WE HAVE BEEN OUT OF THE HOSPITAL FOR A WEEK NOW BUT HE IS STILL DROPPING ON HIS HEMOGLOBIN. THEY STOPPED THE...
Prayers are with Alex, you, and your family... In my experience, my son's went to 4.5 and his doctor said the has had them as low at 3.5. He told me since my...
Hello, Just wanted to share Huntsville, AL has a new Cancer Center. My father was referred to a hematologist, Dr John M Waples, phone 256- 713-1200. Just...
http://www.nterminus.com/nterminus/html/osteoRep.html Hello Group, http://www.nterminus.com/nterminus/html/osteoRep.html I would like to share the above link...
HELLO ALL, JUST AN UDATE WE JUST GOT BACK FROM THE HEMOTOLIGIST OFFICE FOR COUNTS AND ALEX HEMOGLOBIN IS AT 9.5 MUCH BETTER! I KNOW HE RECIEVED ONE UNIT OF...
