Laura, My 6 year old daughter was put on Rituxan when her platelets were under 10,000 and her reds and whites were fine. Some people do see it work, but we did...
Just wanted to post an update of my problems, since I have been worried about trying Rituxan. Here are my platelet counts over the past month: June 11 - 11,...
Laura, I am just curious as why they started you on Rituxan with such high platelet counts. Lisa "Laura (Crosby) Phillips" <usmlaura@...> wrote: Just...
Laura, I am just curious as why they started you on Rituxan with such high platelet counts. Lisa "Laura (Crosby) Phillips" <usmlaura@...> wrote: Just...
Hi all, I haven't emailed in a while. Nathan (12 year old now) has been through a lengthy remission and is still keeping well. He's been off all medication...
... through a ... medication since ... holiday. ... flying from ... terrorist ... stay in a ... Have a great time all of you in the US and >Florida. ... ...
The only reason my doctor has given is to get/keep me off steriods. Like I mentioned in an earlier post, my platelets have ranged from 4 to 807 over the past...
hey group i am 30 years old and had evans for 7 years in and out of hospitals treatments now i am on ivig i used to feel tired all the time until i started...
HI Paul, It's good to hear from you. It is wonderful news about Nathan. Katie has been in remission too for almost a year. I'm so glad you can make the trip...
Hi Paul, Thats wonderful news!! I hope you and your family enjoy your Florida vacation! Have a safe journey and a wonderful time with your family. God Bless,...
My grandson had a round of Rituxan last March after a year of IVIG and high doses of steriods which did not stablize his platelets. He has ITP which involves...
judydre2@...
Jul 4, 2007 3:33 pm
4840
The cold processing gives more of the benefits of the aloe plant, you are able to get a better boost. If you have ever tasted the difference you would be able...
My son has had Evans for 10 years- diagnosed at age 6. He had severe ups and downs until he had Rituxan at age 13. He has done remarkable since then .He has...
To whom it may concern: I would like to unsubscribe to this group. My husband at age of 42 died over a year ago and he had this disease. Keep receiving this...
Hi, My teen-age son has been experiencing low fevers (around 99.8-100.4) as often as twice a week for the last few weeks (and had the same experience last...
Hi there, I just joined this group to learn more about Evans as my son's doctor told us it is a possibility. I read your post and my son having fevers was the...
My son was turned down for the NIH study, his platelets were not low enough. (Actually I am glad they were high)... but does anyone know of an Evans Study we...
What is an NIH study?? Erin stillermom <andicipa@...> wrote: My son was turned down for the NIH study, his platelets were not low enough. (Actually I am...
..the US Government will study rare diseases....when there isn't enough profit for drug companies to find a cure or treatment for a disease...cause the amount...
Thank you for the information. Erin stillermom <andicipa@...> wrote: ..the US Government will study rare diseases....when there isn't enough profit for...
DW Does your son have a low white count? Is he nuetropenic or lymphopenic? Does he have low IgG levels? Sometimes low white blood counts can spark a...
HELLO ALL, I HAVEN'T POSTED IN AWHILE BUT I AM STILL READING. MY SON, PAUL, OFTEN GOT LOW FEVERS AND ACHES AND PAINS WHEN HIS COUNTS WERE LOW. CURRRENTLY HE...
Hi to everyone, I am new to this group and am looking for other people to talk to. I have done a little bit of looking through the questions which have been...
Hi Rachel! Welcome to this group...I am a fairly new member and check in once in awhile... My son who is 14 1/2, became ill in August 2006. He has hemolytic...
Erin - Thank you for responding, it is much appreciated. I am very sorry to hear about your son. The doctors had my daughter on folic acid shortly after she...
Hi Rachel! Glad to hear back from you... Patrick is on 25 mg of prednisone right now...He is taking 15 mg in the morning and 10 mg late in the afternoon......
Dear group, I joined this group when last winter it was thought our Jonathan (now age 22 mos) was Evans. He presented first with ITP, then all his blood lines...
Hi Julee, I will keep Jonathan in my prayers for successful treatment that may include a transplant. Thank you for keeping us updated with the latest news....
PLEASE! Find out about and Let your kids use EMLA before they have to have IV's or blood taken! A lot of doctors won't suggest it, may not even know about...
