I have a family member with Evans Syndrome and has not responded to the immune suppressors very well. She has done all the procedures and medicines discussed...
The name of the other drug in testing is AMG 531. Here's AMGEN's link: http://www.amgen.com/science/pipe_amg531.html Sorry, but I've never had to use either of...
Mike, Thank you for your response. ... link: http://www.amgen.com/science/pipe_amg531.html ... help with finding out if the company will offer the drug in some...
Hi, My teenage son is being encouraged to do a round of Rituxan. We're curious to now how long the benefits tend to last for most folks (I know it doesn't work...
... My son had almost all those treatments...The most recent bout with Evans, Rituxan did stop the destruction of red blood cells. Last round with the...
hi, my son (16) did the rituxan treatment a couple of years ago. it too 3 months to have any effect and then his counts were stable, low but safe. that lasted...
Hi, I underwent Rituxan infusions 1 1/2 years ago and have maintained stable rbc counts since. However, I was also on Imuran and a low dose at prednisone at...
I have a quick question. For those of you who don't remember, I was in remission for almost 20 years, got pregnant (twice) and have had problems ever since...
yes, when ben received rituxan, it was primarily for platelets. rbc's and wbc's were ok - hope this helps. in general, ben did 4 infusions for the first...
My son was treated with Rituxan in August 2005. For him, it worked great. His counts started to rise after the first treatment, so that by the 3rd or 4th...
My father was diagnosed with Auto Immune Hemolytic Anemia in the early 70's before my parents married. He learned about aloe vera juice and started drinking...
dw, My daughter is 6 years old. Last summe, the doctors wanted her to try Rituxan. First, we had a PICC line put in for it. A PICC or port will make a big...
Thank you for your response. Aloe vera juice is an interesting suggestion. I am glad to hear that it has benefited you and your family. I did a little...
Laura, My 6 year old daughter was put on Rituxan when her platelets were under 10,000 and her reds and whites were fine. Some people do see it work, but we did...
Just wanted to post an update of my problems, since I have been worried about trying Rituxan. Here are my platelet counts over the past month: June 11 - 11,...
Laura, I am just curious as why they started you on Rituxan with such high platelet counts. Lisa "Laura (Crosby) Phillips" <usmlaura@...> wrote: Just...
Laura, I am just curious as why they started you on Rituxan with such high platelet counts. Lisa "Laura (Crosby) Phillips" <usmlaura@...> wrote: Just...
Hi all, I haven't emailed in a while. Nathan (12 year old now) has been through a lengthy remission and is still keeping well. He's been off all medication...
... through a ... medication since ... holiday. ... flying from ... terrorist ... stay in a ... Have a great time all of you in the US and >Florida. ... ...
The only reason my doctor has given is to get/keep me off steriods. Like I mentioned in an earlier post, my platelets have ranged from 4 to 807 over the past...
hey group i am 30 years old and had evans for 7 years in and out of hospitals treatments now i am on ivig i used to feel tired all the time until i started...
HI Paul, It's good to hear from you. It is wonderful news about Nathan. Katie has been in remission too for almost a year. I'm so glad you can make the trip...
Hi Paul, Thats wonderful news!! I hope you and your family enjoy your Florida vacation! Have a safe journey and a wonderful time with your family. God Bless,...
My grandson had a round of Rituxan last March after a year of IVIG and high doses of steriods which did not stablize his platelets. He has ITP which involves...
judydre2@...
Jul 4, 2007 3:33 pm
4840
The cold processing gives more of the benefits of the aloe plant, you are able to get a better boost. If you have ever tasted the difference you would be able...
My son has had Evans for 10 years- diagnosed at age 6. He had severe ups and downs until he had Rituxan at age 13. He has done remarkable since then .He has...
To whom it may concern: I would like to unsubscribe to this group. My husband at age of 42 died over a year ago and he had this disease. Keep receiving this...
Hi, My teen-age son has been experiencing low fevers (around 99.8-100.4) as often as twice a week for the last few weeks (and had the same experience last...
Hi there, I just joined this group to learn more about Evans as my son's doctor told us it is a possibility. I read your post and my son having fevers was the...
