My eyes are now blurry due to, what the doctor says, is my Platelets were too low and a vessel (?) bruised my eye. He said it would take about three weeks...
My eyes always get very blurry when my blood level gets too low. When it was very very low hem. at 4.0, I was going cross-eyed and blurry, and couldn't...
... it was very very low hem. at 4.0, I was going cross-eyed and blurry, and couldn't function very well. You might want to check your blood level, as the red...
Does eneyone else have a feeling that chlorine may have played a factor in their Evan's Syndrome? I have read some things that maybe it has been the cause for...
Hi Lisa, You know my daughter was diagnosed last May 2006,after swimming lessons at the local YMCA.I have often wondered about this and have not taken her back...
Hi all, Thank you for all your thoughts and prayers, it has been a very hectic two weeks, the latest on Paul, which came after our appointment with Dana ...
Lisa, I don't have any information about chlorine, BUT I am always sure to listen when my gut tells me something, maybe it isn't the chlorine but bacteria in...
Wow Betty, Thank you Lord!!! That is awesome news! I can only imagine the relief you and Paul must be feeling! With Mother's Day quickly approaching, I...
It was on one of those herbal pages that tell you things to avoid for platelet problems and one was chlorine. It was a long time ago that I read it and I have...
It was on one of those herbal pages that tell you things to avoid for platelet problems and one was chlorine. It was a long time ago that I read it and I have...
Okay,thank you!You just never know.........I always had a feeling that the two were related.I did not know if it was the chlorine or something in the water...
Betty, I am so happy to hear your news!! I truly believe in the power of prayer. We have seen so many miracles and God does things but in his time. This is one...
Jennifer, My daughter also breaks out in hives with some detergents. She has always had very sensitive skin and lots of allergies. My daughter is allergic to...
Dear Betty, Thanks for the update. Thanks to God for the good news. We will keep Paul in our prayers. Grace (Katie 14 with Evan's) bettanmic@... wrote: ...
Our son, Mark, had several relapses during the spring each year --right after we came back from vacation in Myrtle Beach--complete with swimming pool. We kept...
Amazing that this is the issue with others, we built a swimming pool with an ionizer and salt system to avoid the problems, not realizing how bad the chlorine...
Hello I have to say we agree our son now 19 diagnosed 8 one of our famiy outings was to stay at a nearby resort with several indoor pools . we also noticed a...
http://www.itppeople.com/warnings.htm This is the page where I originally read about the chlorine. I know that some people do not agree with this kind of...
Dear Betty, Paul and Family, I am so relieved to hear your good news about Paul. Micah, too, has had large reactive lymph nodes causing great alarm on several...
My son Kyle has had Evans since a baby. He is 15 now. Just recently he diagonised with lupus. Does anyone know if there is a link between evans and lupus? It...
Cindy, My daughters hem/onc's have checked her ANA for Lupus twice(she was diagnosed w/ Evans last May).They said they would continue to do so every 6...
Cindy, we were warned that once a person has an auto-immune disorder, they are more likely to get others...our son has evans and a thyroid disorder. we were...
There are 2 new drugs that are still in clinical trials - I've been researching them for my own use. The first Amgen 31 is a once-weekly shot that is thought...
laura, thank you so much for the info! i'll look into these. shari "Laura (Crosby) Phillips" <usmlaura@...> wrote: There are 2 new drugs that are still...
Lisa - I don't think chlorine is a factor. My son, Tim, has had Evans since he was 4 and is now 15. He has been a competitive swimmer (swimming probably 45...
Hello Betty, I'm so pleased for you all. This is best news I've heard for a long time. We've been thinking about you a lot from Scotland. You've all been...
My son, Nick, was diagnosed with Evans and antiphospholipid syndrome in 2000. The summer of 2003 we were told because of other markers he falls under the lupus...
