Hi, Yes. I was told by a hematologist at USC that I have "systemic autoimmue illnesses". He stated Evans was one of several disorders I will probably be...
our son was diagnosed with evans at 10 years old (he is now 16). it was getting run over by a truck as he was completely healthy prior. 6 months later he was...
When my daughter was diagnosed with Evan's almst 2 years ago I was told that there was an underlying problem but they did all kinds of tests and could not find...
we live in florida and my daughter first showed signs of evan's in the summer of 2005. so, i do not think heat is a factor. it was about 90-100 degrees and she...
Hi, all, My 15-year-old son with Evans has been having on-again, off-again illness for the last 3 weeks or so, and has missed a lot of school, and I'm...
Hi shari, My daughter is nine.We were told by our hem/onc's that,because Bekah has this,she is prone to other immune issues.Not because of the disease...
I was diagnosed with Evans at the age of 43. When I was yonger, I was anemic and sick quite often. At age 24 I was diagnosed with Hypothyroidism and have...
Jennifer, yes, it does help to know that other patient families are getting the same information about this frustrating disorder. "all quiet" means ben is...
Thanks Shari----It also helps to know that other children are doing well,as this has only been happening to Bekah for the last 13mths.Hearing that Ben and...
we live in nj but took ben to dr neufeld at bostons childrens hospital as a consult 2 years ago. he was the one who recommended rituxan and convinced us to try...
we live in nj but took ben to dr neufeld at bostons childrens hospital as a consult 2 years ago. he was the one who recommended rituxan and convinced us to try...
Hi, I have no personal experience with Neupogen, but I was closely involved with a boy who was 15 at the time and taking Neupogen for his cancer. He had...
My 4 yr old son has has evans since he was 2 yrs old. We live in Newton, Ma about 10 miles from Boston. We also had a consult with Dr. Neufeld when he was...
My grandaughter has Evans...almost 2 years now. She just was turning 5 when it started. She has been on many rounds of IVIG, steroids, Riituxan with little...
Thought you might like to know that my son Paul, has seen Dr. Neufeld many times and you would enoy meeting him he is very well respected in the medical field...
DW When my son was in school he had a lot of that up and down slight fevers , with so many virus around he also seemed to have something. Now that he is out...
We live just a few miles south of Boston Betty Mom to Paul /20 Evans + ************************************** See what's free at http://www.aol.com....
I have a question for you guys. I don't post often, and have only dealt with this whole Evans issue with my son since August 06. I guess maybe I'm over...
Angie: I read your note and understand the concerns you have regarding your son's health and exposure to illnesses.... My son recently turned 14 and was...
Angie, I understand your concern and fear. My 8 year old daughter was severely neutropenic(100-200ANC),for most of the winter.We stayed away from malls and...
Hi Erin, I just wanted to comment regarding Fifth Disease, which is also known as "slapped cheek" disease because the cheeks normally turn red. This is...
Hi Angie, My son Nathan has had Evans since 2001. He is 12 years old now and about to start the bigger school here in Scotland this coming August. He's had low...
As someone else mentioned, my son's hematologists told us way back that neutropenic people are most at risk from the bacteria living in their own bodies. It's...
Debbie: I enjoyed your note....you have had your hands full also I see... You are the same age as me... Patrick's school nurse advised me she didn't understand...
It all depends on the situation. I was homeschooled in 1st grade because of dangerously low counts, plus the whole playground thing frightened my mom. Horsing...
Thanks for all the advice. Hunter is only on an IEP due to his Evans. He normally goes for counts or doctor's visits weekly, or when his platelets are low he...
Hi Angie--- I am a 43 yr old just diagnosed with evans last September. I have noticed and so have other people that when my red blood cell count is up---that...
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