I am new to this group. My three year old son, Teddy, is having his first episode in two years. They have tried two different steroids and IVIG. The prednisone...
My 6 year old daughter was diagnosed 16 months ago. We used Prednisone and had success with that, but only for a few months. Then, her body stopped responding...
Wishing all a happy healthy New Year, I continue to read the posts all the time. We are having a good run of good health, Paul continues to be feeling much...
I was a memeber about 3 years ago but with all the demands that Evans Syndrome has I haven't beable to keep in touch. Just a quick refresher about my 7 year...
Hi All, I know this may sound crazy, but I believe that dental work might have something to do with the flare-ups of Evans Syndrome. I was wondering if anyone...
Hey I have seen some correspondance with dental visits and my Evans Syndrome being triggered. I was wondering as well if anyone else had any kind of ...
Hi all, I have not been very good lately in corresponding, but still read all the posts. It seems group has quieted down some. This group was a blessing to...
Amy, I, like you read all the posts. I wish you all the luck and my prayers will be for Aidan to have a speedy recovery and for it to work for him. ... From:...
Dear Mike, My son's hematologist and I have long suspected that dental issues are a trigger for my son's drops in platelet count. He is 14 and his platelets...
Hi Susan, I have no doubt that my daughter's Evan's was triggered by her braces. We tried twice, 2 years apart and 2 1/2 weeks after the braces went in, the...
Hello, Our son will be 18 soon he was diagnosed with ITP then Evans when he was 8.We have had our share of prenisone,IVIG,transfusion,rituxin. you know the...
Hello Julie, Our daughter Rachel who is 17 has had a problem with low white blood cells for going on two years. She has been giving herself shots four times...
Hi Amy, This must be a very scary time for you. We will keep Aidan in our prayers for a successful transplant. We will pray that God keeps Aidan safe during...
HI Lisa, A virus triggered it once, but other than that it usually shows up out of the blue. I wish we knew the other triggers. Grace lisa heisterman...
Julie, I understand your pain. Son diagnosed at roughly same age, and has had same treatment options. IVIG, Prednisone, Rituxin. The Rituxin seemed to work on...
Amy, I am keeping all of you in our prayers, I have been here for the last seven years, ( amazing how quickly times goes, whether it is a good or bad times),...
Hi, My 15-year-old son has had a lot of trouble with low white counts, which put him in the hospital twice this fall for about a week each time, with small...
My three year old son was hospitalized in November with low hemoglobin. He is still on steroids as every time we try to wean him off his counts drop. Today his...
Hi Rachel, I'm so sorry you are having to go through this. My daughter's counts can drop that fast in just a couple of days!! Maybe he will stabilize after...
Rachel, We also have struggled with my daughter's platelet counts. She is not on 6mp which is a chemo drug and her counts are in a normal range. Her platelet...
My son seems to function okay at very low platelet counts, I think you have to look case on its and own and see how each person does at what levels, just like...
Hello, we would like to know if anyone has any thoughts on traveling by plane. Our son has low white count Hematologist says platelet has to be at least...
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