I do agree that spring and fall activate autoimmune diseases, this does not mean you are safe in the other seasons. Change of seasons usually bring on a ...
hi my son kyle has evans since he was 13 months old. he is 14 now. he has swollen lymph nodes in his neck and lymph nodes through out his body. he is going for...
Cindy, My son, Tim (also 14), also has very large lymph nodes in his neck. (And actually throughout his body, although the ones in his neck are most...
Cindy, I have always been told that my lymph nodes/spleen are enlarged...been through CT and PT scans even a biopsy, they havent changed in size in 10 years,...
Have any of you had experience with Neupogen (gcsf)? Thinking of trying it for my son because of very low ABCd, nasty mouth sores, and a week in the hospital...
Our daughter has been on Neupogen for about two years now, she has been doing fine with it. She too has low neutrifil levels and these shots have helped a...
My son has been on GCSF since he was diagnosed in July. The only side effect is bone pain and he hasn't experienced that. He complains about my shot giving...
Hi Angie, Yes our daughter goes to school and we do worry about infections but we try to let her be as normal as possible. She also had a liver transplant ...
I am new to this group. My three year old son, Teddy, is having his first episode in two years. They have tried two different steroids and IVIG. The prednisone...
My 6 year old daughter was diagnosed 16 months ago. We used Prednisone and had success with that, but only for a few months. Then, her body stopped responding...
Wishing all a happy healthy New Year, I continue to read the posts all the time. We are having a good run of good health, Paul continues to be feeling much...
I was a memeber about 3 years ago but with all the demands that Evans Syndrome has I haven't beable to keep in touch. Just a quick refresher about my 7 year...
Hi All, I know this may sound crazy, but I believe that dental work might have something to do with the flare-ups of Evans Syndrome. I was wondering if anyone...
Hey I have seen some correspondance with dental visits and my Evans Syndrome being triggered. I was wondering as well if anyone else had any kind of ...
Hi all, I have not been very good lately in corresponding, but still read all the posts. It seems group has quieted down some. This group was a blessing to...
Amy, I, like you read all the posts. I wish you all the luck and my prayers will be for Aidan to have a speedy recovery and for it to work for him. ... From:...
Dear Mike, My son's hematologist and I have long suspected that dental issues are a trigger for my son's drops in platelet count. He is 14 and his platelets...
Hi Susan, I have no doubt that my daughter's Evan's was triggered by her braces. We tried twice, 2 years apart and 2 1/2 weeks after the braces went in, the...
Hello, Our son will be 18 soon he was diagnosed with ITP then Evans when he was 8.We have had our share of prenisone,IVIG,transfusion,rituxin. you know the...
Hello Julie, Our daughter Rachel who is 17 has had a problem with low white blood cells for going on two years. She has been giving herself shots four times...
Hi Amy, This must be a very scary time for you. We will keep Aidan in our prayers for a successful transplant. We will pray that God keeps Aidan safe during...
