Hi all, Those of you in the Orlando area may be interested in this... Save the Date - December 7, 2006 PDSA will be hosting a Regional Meeting in Orlando on...
Hi, I had splenectomy in Apr, 2006 and then Rituxan in Jun/Jul 2006. As a precaution I got Flu shot last month at my PCP's office. I had Pneumococcal 2 years...
Ravi, if the vaccine you are referring to is wht i think it is, it is recommended (or maybe required) for college students (dorm life) and even for high school...
Hello, Does anyone know anything about a Special Needs Trust Fund. Has anyone set one up for their child with Evans? We were told about this Trust as a way...
In a message dated 10/17/2006 5:07:28 PM Eastern Standard Time, rnm171@... writes: Does anyone know anything about a Special Needs Trust Fund. Has anyone...
Does anyone have any thoughts on the climate playing a role in evans? my husband and myself both wonder if our michigan location should be changed to somewhere...
I was wondering the same thing, although we live in CA and still live with the disease. I found an article about lack of certain vitamins (D) from living in...
We live in Florida and my daughter has Evan's. It started last summer when it was very hot. She was bad all winter also. She is finally doing better now tht...
Hi. My son has Evans. We have found that repeated or frequent swimming in a pool with high chlorine dose brought on symptoms and/or complicated existing ones....
Thats a fascinating trigger. I never would have thought about it. My Evans seems to be triggered by Fall. All of my episodes have occured at the start of Fall....
I live in New York, and my episodes have always began in the fall. I've never been sick in the summer, so I believe that the Summer-Fall transition has a lot...
... changed to somewhere warmer such as florida we also wonder if there are more cases of evans in one area or another. ... My mom has Evans Syndrome and her...
Hi everyone, I think this is a very good question. We lived in FL for all of Katie's life. Fall and spring were always her worst times - especially fall -...
I see everyone saying Spring and Fall are the worst, but we live in Florida and my daughter has had it the worst in the summer. She was diagnosed in July of...
We live just south of Boston and Paul seems worse in the spring and fall, changing seasons, allergies to things growing and blooming, who knows, he is feeling...
I do agree that spring and fall activate autoimmune diseases, this does not mean you are safe in the other seasons. Change of seasons usually bring on a ...
hi my son kyle has evans since he was 13 months old. he is 14 now. he has swollen lymph nodes in his neck and lymph nodes through out his body. he is going for...
Cindy, My son, Tim (also 14), also has very large lymph nodes in his neck. (And actually throughout his body, although the ones in his neck are most...
Cindy, I have always been told that my lymph nodes/spleen are enlarged...been through CT and PT scans even a biopsy, they havent changed in size in 10 years,...
Have any of you had experience with Neupogen (gcsf)? Thinking of trying it for my son because of very low ABCd, nasty mouth sores, and a week in the hospital...
Our daughter has been on Neupogen for about two years now, she has been doing fine with it. She too has low neutrifil levels and these shots have helped a...
My son has been on GCSF since he was diagnosed in July. The only side effect is bone pain and he hasn't experienced that. He complains about my shot giving...
Hi Angie, Yes our daughter goes to school and we do worry about infections but we try to let her be as normal as possible. She also had a liver transplant ...
I am new to this group. My three year old son, Teddy, is having his first episode in two years. They have tried two different steroids and IVIG. The prednisone...
My 6 year old daughter was diagnosed 16 months ago. We used Prednisone and had success with that, but only for a few months. Then, her body stopped responding...
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