You have said it all Marlene! I don't want to hold him back, but at the same time I want to protect him from the world. He's a soccer player and was going to...
angie, my son ben (15) has an iep in place (individual education plan). he used to have a 504 but the iep gives him more. a social worker from tomorrows...
I have issues with teachers all the time. I will go out to see a movie when I am homeschooled and they will find out. Then a friend will say mr.-------- said...
I know that some of you have gone into remission from Rituxan or other methods. My questions is, when you are in "remission", do you still test Coombs+? ...
I know that we have discussed this before in this group and many of you have said that you applied for disability for your child and you were denied. Well, in...
Hi Lisa, When Katie (age 14) is in remission, her coombs test is negative. She has been in and out of remission several times the since she was diagnosed six...
I have had Evans (supposedly) since I was 8 years old, and the antibody seems to come and go. My pediatrician told me that it seems to disappear after high...
a combs positive test is used in diagnosing evans but it does "come and go". just because it goes, does not mean you don't have the disorder, it likely will be...
I wondered about that. I was advised to apply but was hesitant. I know it'll help, I guess I just wasn't sure how or where or what to do. I was just told I...
I feel like I've made Hunter a target by exposing the disease. He is a 12 year old boy, and still has all the same tendencies a 12 year old boy has. He wants...
I have a friend who works in the school who has been advising me behind the lines. I don't want her to get into trouble, or the other teachers to shut her out...
I ran into this at my daughters school, she was going into the 11th grade, I took the info pamplet our doctor had and some internet collect information, That...
My daughter Isabella (14) has Evans syndrome and Vasculitis. School is tough for her when everyone is sick. She used to get what ever ws going around. Now we...
We were denied when Paul was 16, and we have just reapplied as he is now 19 and no longer covered under me for many items, it has been three months and we ...
Did you start the 504 right away? I mean as soon as you got the initial diagnosis of Evans? I'm trying not to be too over bearing. I think the teachers...
No, we did not start right away, and wish we would have. Our child did not want to be singled out as different in any way, she has been a victim of bullying in...
Hi, I am the grandma of a soon to be 5 year old boy who has Evans. I have been monitering this website and pray for all of you daily. Trevor was 2 when...
when ben's counts are good, he gets a flu shot. he has never had a bad reaction and i do believe it protects him shari (mom to ben 15 w/ evans) dudesnanny...
... declare him diabled but said sorry your husband's income is too high so he cant get anything i couldnt believe that they said when he is 18 he can get it...
That is not right that they do that. They have to understand that some mothers can not work because their child's Evans is so complicated that they must be...
During our twenty years experience with Evans' we were always told that "live" vaccines must be avoided and that "killed" vaccines were OK. It seems to go...
Alvis Zujevs
alviszujevs@...
Sep 14, 2006 2:54 pm
4508
In a message dated 9/12/2006 11:41:48 A.M. Eastern Standard Time, Dortmeyer1@... writes: Hi, I am the grandma of a soon to be 5 year old boy who has...
Please forgive my ignorance on the terminology, I am new to this condition. My mother-in-law has been living with ITP for quite some time now. The only thing...
Hi Terry, You say your mother in law did not respond to the Rituxan the first time = was she given more than one dose at that time and how long ago has that...
When I first got affected by Evans, my blood RBC was at 4. It took the doctors about 2 or 3 weeks to decide just what my problem was, but in the meantime, I...
Hello everyone, We would like to know if anyone has information or had any experience with TB shot and Evans. Our daughter Rachel who is 16 is taking a class...
Dear Terry, I have taken rituxan 3 times. When Rituxan is given it is given once a week for 4 weeks. I have had good luck with Rituxan but it has taken time...
Nancy, My son is almost 14. He has ITP, autoimmune neutropenia and is Coombs positive. He has been on a very low dose of neupogen twice a week for over 7...
The only reason I may act on it is my son is in middle school and the teachers seem to think it's an inconvenience. He is missing one afternoon a week right...
