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Messages 4246 - 4275 of 5099   Oldest  |  < Older  |  Newer >  |  Newest
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4246
she goes back next Tuesday. Nichole Tardy <sabre485@...> wrote: Lisa - Sorry to hear that Madison's didn't go so well - When is her next treatment? ...
lisa shoenfelt
lmshoenfelt
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Jun 1, 2006
11:55 am
4247
Hi all, Just returned from a doctor's visit and my doctor mentioned that she had attended a lecture and a disease that reminded her of me was mentioned. She...
moman136320
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Jun 2, 2006
8:46 pm
4248
... discouraged if her counts are still about the same next week or even lower riutuxon takes eight weeks to work after the last treatment so usually about...
aamom4ever
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Jun 3, 2006
6:53 am
4249
Hi All, My name is Tom and I my first experience with Evans Syndrome was 36 years ago. Back then, the treatment was simply a transfusion (and a prayer). I ...
Tom Goodman
tlg6805
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Jun 3, 2006
7:18 pm
4250
Hi, I had autoimmune hemolytic anemia from 2003 and was on prednisone (30 mg). I had splenectomy done on 4/28/06 and now my doctor is tapering off the...
rkdhamija
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Jun 5, 2006
5:17 pm
4251
hi Ravi I hope this helps, my daughter had the same thing happen to her they had to do chemo they tryed 3 kinds b4 they got the one that worked 4 her. then...
j worrell
jworrell98
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Jun 5, 2006
6:48 pm
4252
Hi, With a 14-year-old w. Evans, I don't like to hear about a child who can't hold a job because of disability from the condition. My child is doing well in...
Wechsler/Brooks
jmdjbw
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Jun 7, 2006
1:31 pm
4253
I understand your concern except I am the fiance of a man with Evan's syndrome. He as well has not been able to hold a job because of his condition. With...
gimpy04@...
krngi
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Jun 7, 2006
2:10 pm
4254
Just taken short class loads and get plenty of rest. and let the teachers now of her illness that way they will know what can help her do a good job, i AM...
j worrell
jworrell98
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Jun 7, 2006
10:10 pm
4255
anyone heard or tried of prosorba column treatments? my hubby went out of remission with ITP the first of april. he had a spleen to either grow back or an...
Kimberly Patrick
kcpatrick26
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Jun 8, 2006
11:39 am
4256
Were Alex's counts really low while he was going through the Rituxan. Madison's counts are 5,000 and Im guessing that they will not come up for a few months....
lisa shoenfelt
lmshoenfelt
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Jun 8, 2006
5:50 pm
4257
... concerned because we were getting the riutuxon treatments already his counts did not jump up during the treatments in fact they went down he also didnt...
aamom4ever
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Jun 8, 2006
11:02 pm
4258
We will see! As a senior in HS, I will be leaving hospital schooling and going back to public. I will also start a job after I return from vacation. The main...
Jessica Diggs-Growden
indigoleo27
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Jun 9, 2006
1:57 am
4259
I understand your concern except I am the fiance of a man with Evan's syndrome. He as well has not been able to hold a job because of his condition. With...
gimpy04@...
krngi
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Jun 9, 2006
12:44 pm
4260
Hello, Here is some info I found on Castleman's disease...doesn't sound much like Evans to me... _Click here: Castleman's Disease Homepage_...
lnalou@...
lnalou
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Jun 10, 2006
2:03 pm
4261
My 5 year old little girl has ITP and I have applied for SSI for her. I have an appointment in a couple of weeks. Does anyone know if there is an income limit...
lisa shoenfelt
lmshoenfelt
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Jun 11, 2006
1:01 pm
4262
If you fiance is planning on claiming her on his taxes, you must add his income to yours. lisa shoenfelt <lmshoenfelt@...> wrote: My 5 year old little...
Jessica Diggs-Growden
indigoleo27
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Jun 12, 2006
12:26 am
4263
thanks for the info. Do you know if there is a certain amount that you can make to still qualify or is it only for families with zero income? Jessica...
lisa shoenfelt
lmshoenfelt
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Jun 12, 2006
12:37 am
4264
Hi lisa in Texas a family of 4 could make no more than 3 thousand dollars a month and now that has went up I dont know the amount do to my child being almost...
j worrell
jworrell98
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Jun 12, 2006
1:56 am
4265
just wanted to ask the group to please pray for my husband--mike. he had his spleen removed for the second time on may 8th. (he had the first one removed 3...
Kimberly Patrick
kcpatrick26
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Jun 12, 2006
2:04 am
4266
yes, any advice you can give me would be greatly appreciated. i am not able to work at all because i drive my daughter 700 miles round trip once a week to...
lisa shoenfelt
lmshoenfelt
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Jun 12, 2006
2:16 am
4267
-Kimberely..my heart aches for you. My granddaughter, Madison, has Evans and has been battling the ITP part of it for almost a year....her platelets are at...
shoenfelts
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Jun 12, 2006
2:34 am
4268
Lisa, my 9 year old daughter has ITP/evans. We applied for SSI a year ago and was denied. They did not consider this a lifethreating disease, nor did they...
cary tibbetts
tibbygirl67
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Jun 12, 2006
3:07 am
4269
kim, you and mike and the girls are in our prayers, I hope that they find something else to help get him out of this, good luck and god speed Betty...
bettanmic@...
bettanmic
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Jun 12, 2006
2:52 pm
4270
when I looked into a few years ago, paul who was 16 then, was not eligible, I made over 16,200 a year and my income was what was used, i will be trying again...
bettanmic@...
bettanmic
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Jun 12, 2006
7:17 pm
4271
Dear Kim, Our prayers go out to you, Mike and your precious daughters. I have a very special angel up there and I'm asking her to pull all of the strings she...
lnalou@...
lnalou
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Jun 13, 2006
1:36 am
4272
Hi Lisa, In Florida, I tried many times over the years to get SSI for my Katie but was never successful until she went into hospice. Once with hospice, with ...
lnalou@...
lnalou
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Jun 13, 2006
1:42 am
4273
Lisa, You can request a phone interview, you need to get all your medical records and you will have Doctors forms that you get from SSI. they must be field out...
j worrell
jworrell98
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Jun 13, 2006
7:03 am
4274
I am sorry to hear of this you are going thru, but rejoyce cause GOD is with you and just remember He walks for you in this time. I will be glad to pray for...
j worrell
jworrell98
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Jun 13, 2006
11:48 am
4275
@ 19 they file for there self and they go by that income. I am not sure where you live at but in Texas The Doctors and Hospital helped us get it. Thank GOD.....
j worrell
jworrell98
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Jun 13, 2006
12:03 pm
Messages 4246 - 4275 of 5099   Oldest  |  < Older  |  Newer >  |  Newest
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