Hi everyone, I changed the settings and now there should be no further problems with these yucky emails we've been getting. Sorry for the delay - I had really...
Does any one else give ivig at home via sub cutainous infusion instead of iv just wondering cause terran has gotten it now twice via the sub cue route instead...
My 5 year old little girl receives IVIG every 2 weeks. She recently had a PICC line put in her arm. When they put it in, they put this circle thing over the...
In a message dated 5/6/2006 11:42:09 AM Eastern Standard Time, lmshoenfelt@... writes: Yesterday I noticed that there was dried blood arount the picc...
One more question: has anyone had any luck with taking asidopholis or cholostrum to improve platelet counts? We used to use cholostrum and other vitamin...
In a message dated 5/7/2006 4:42:19 PM Eastern Standard Time, Schave04@... writes: One more question: has anyone had any luck with taking asidopholis...
... in the middle of his chest and he cried every time we had to change the dressing it was terrible we used to give him a bath and let him get it really wet...
Dear Group, It's been a long time and I feel I haven't emailed the group for ages - sorry for that. I do keep in touch with the emails. After 3 excellent...
HI Paul, I'm so sorry to hear that Nathan has had a serious relapse. I remember a few years ago how scary it was when Katie was rushed to the hospital with a...
Paul, I wish Nathan speedy recovery and good health. Regards Ravi ... ages - ... He's 11 ... with it at 4.2 ... then 3 ... 7.9, but too ... blood ... fighter...
I noticed petekia today on my legs obviously my counts are low. I expect to go to the doctors tommorrow and its always a big arguement what we are going to do...
Paul, Sorry to hear that things are not going well, pleaes know that we are thinking of all of you and hoping for a turn around, we here know how these up ...
Thats too bad.... For me, Rituxan did not go well. While I was getting it, I had reactions and in between treatments, I had seyrum sickness. Are you at risk of...
Hello all, I am writing with an update on Alex. We went to the doctor yesterday for counts and all his counts are still in the normal range since the Riutuxon...
Hello - I just started treatments using Rituxon - I just wanted to get some feedback on how well it worked for others. My normal treatment is Prednisonse...
my 15 year old son went through rituxan treatment 14 months ago. although it took over 3 months to work, he has been fine ever since! good luck, shari (mom to...
Nicole, As you will find on this site what works for one doesn't for another, my son did not have success with the Rixtuin but others who had it at the same ...
Hello guys, just a quick note to let you know that Nathan has made big improvements with the prednisolone. He got out hospital on Wed and is visiting for an...
Greetings and Itroduction, Hi, My name is Thomas Aderholt, I am a 44 yr old white male, I've been officially dignosed with Evans Syndrome. I've been married...
Hello Thomas -- I was diagnosed on 1998 (I was 27) - pretty much the same way that it happened to you, happened to me. I had nver ever been sick in my life...
Rituxon has worked for me i have had it twice this past time it lasted 26 months and now i have relapsed. I will start next week i think rituxan again to...
Rituxan has worked for me for the past few years the best. I have stayed the longest in remission with RItuxan. The times that i was treated was when i was...
Mindy, I am glad to hear that Alex is still doing well. Aidan was in remission for about nine months after Rituxan. At one point he did test coombs negative...
I see that lots of you have used Rituxan and gone into temporary remission with it. My 5 year old little girl, Madison was diagnosed last July. She has been on...
Hello - I did my first treatment of Rituxan last week, my second is scheduled for Tuesday. I didn't have any side effects or bad reactions. My nurse gave me a...
Nichole- Thank you for responding to me. What were your counts before your first dose? Have you seen them go up at all after your first treatment? THanks so...
Lisa, My counts were actually in the normal range when I did my first treatment, but I was on prednisone and cytoxan. I have stopped the cystoxan and just got...
Yes, please e-mail me and let me know what your counts are. My daughter just has problems with her platelets also. I wont be back home until at least Wednesday...
