Hi, I am sorry your grandaughter is dealing with the effects of low platelets and steroids. There are a few members of this group who's children have been...
The Dr. has told us about most of those otions. She is just so allergic and has such bad reactions to so many drugs etc. She had a terrible experience with...
Deb, i admit i have missed most of the recent postings and that is because we are in a good place with our son and his evans. winro was a drug that was...
The Winro was given here in Pensacola....at a Children's hospital. We found out they are incompetent here and now drive 700 miles roundtrip about every 2...
Deb, My son is treated in Chicago. When you say your granddaughter has more immune system probs and sees an immunologist and rhuematologist...what other...
Hey Deb I just was reading your posts and noticed you are going to the best group of doctors I have ever had to deal with. Next time you are in there tell Dr....
Hello We are new to chat and new to computers but we have had to learn new things to keep up with our daughters newly diagnosed illness of Evans syndrome. She...
Hi Jan, I was diagnosed in 2003 with ITP Thrombocypinia, Hemolytic Anemia, Coombs positive, and SLE. I'm also currently trying to get a dx of MS, as all of my...
Well just an update on alex we went in for counts yesterday they are still all great! His retic wat 3.2 that was a little up from last time but i think it is...
Mindy does he get ivig our immunolgist put terran on ivig and said he would need it for a year after his last ritoxen infusion just a thougt cause he said it...
Hi to all, I just recently was in the hospital with severe dehydration and while there my numbers dropped.... 41,000 for plateletes and red count also low......
hi! my husband has ITP again. he has been in remission for a little over 3 yrs since his last episode. he had his spleen removed 3 yrs ago--which failed to...
Hi Vikki, When i was joung my platelets went up and down al the time and mostly we didn't do anything other than take care for bruises. I hope this is...
Erik Hovingh
erikhovingh@...
Apr 10, 2006 4:24 pm
4164
HI Kim, I'm so sorry that the disease is back again. What are his counts like? I don't know about the stem cells, but know that once Rituxan has worked (three...
Hi Vicki, I'm sorry to hear you had the need to be hospitalized again recently. It's tough to answer your questions, but I'll give it a try. Evans Syndrome...
My 5 year old has Evan's and her counts also go down when she is sick. She had a virus about 3 weeks ago and her counts dropped. They were at 4,000 last...
Hi Kim, I'm not aware of any research that's been done with stem cells on Evans patients, but it certaintly could be a possibility in the future. If your...
when you are anemic do you get very tired. I have been so tired since I got out of the hospital.. I could easily take a three hour nap when I was home.. I...
Hi Vikki YES!!! The red blood cells carry your oxygen! Fatigue is the greatest issue I deal with!! Make sure your doctor knows your occupation. It's...
my husband has gone out of remission with his ITP after 3 years of being in remission. his last treatment that put him back into remission was rituxin....
Hi Vikki, I have had AIHA for couple of years. Last month, my platelets dropped first time from 240 range to 146 (3/15/06) to 64 (3/24/06) and then went back...
Dear Kim, Keep us posted on how the Rituxan is working. 2,000 is a pretty scary number, but my daughter was at 1,000 two years ago with no bleeding, just a...
my husband came down with the flu and i truly believe this is what flared up his ITP. he is still in the hospital and received one round of platelets and one...
when I got my first rutaxin treatment it was for one day for four weeks in a row. Maybe it is because his plateletes are so low. I too get low blood numbers...
That is fast! Did he have any reactions last time? If I were you, I would be concerned about serum sickness, which is a reaction comparable to rhumatoid...
