Just wanted to share the info on this call with you, and give you a chance to lisiten live or a recording later. Nancy (father, Lewis 84 has Evans) ...
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belle-gobble968@...
Feb 5, 2006 12:45 pm
4058
Hi Everyone, I'm a 20-year-old male with Evans Syndrome. I was diagnosed with ITP @ age 8, then later diagnosed with Evans once my platelets stabilized and my...
Hey, where are you from? I haven't really had a chance to talk to very many people in my age range that have the disease, I'm 21/f/Spokane,WA. I know there is...
Mike, Since I am the mother of an 18 year old boy I was wondering if you don't mind, are you able to work or go to school, how is your energy level overall ....
Thanks for responding, I think it would be nice to have someone my age to talk to about this syndrome as well. Unfortunately, I do not believe I'm the one that...
Hi Betty, I would be happy to answer any questions you may have. As for school and work, I do both. I go to college full-time (I'm a junior)and work part-time...
just curious - do you see dr bussell? or, who? shari (mom to ben 15 w/ evans) ... __________________________________________________ Do You Yahoo!? Tired of...
Shari, No, I have never seen this doctor before. Is he from Cornell/NY Presbyterian? It actually turned out that my pediatrician was also a hemotologist, so I...
Hi Mike, Yes, he is from Cornell/NY Presbyterian. We have seen him as a consult as he actually has several patients with evans. Ben is treated at Tomorrows...
Hello My name is Sue, my father-in-law has just been diagnosed with Evans disease and I have been trying to find out what it is and how it can be treated. He...
Dear All As I have had no reply from any of the members of this group regarding "what EVANS SYNDROME" is I have been looking at other sites to try and find out...
the attached article might help ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
This might help... WHAT IS EVANS SYNDROME? Evans syndrome is a rare autoimmune disorder in which the body makes antibodies that destroy the red blood cells,...
Thank you very much for your full explanation of the situation. To a layman (such as me) it would not appear that alkalising would prove beneficial in the case...
i would not think so. but, you should always address your questions to your drs. good luck! ... __________________________________________________ Do You...
Hi Shari Thank you so much for that extremly comprehensive description of Evans - it is much appreciated. If I find anything new out I will certainly pass on...
Susan, That is good question about raising the Ph or alkaline levels. I have read that disease doesn't grow in an akaline environment. I haven't been able to...
Hi Nancy Excellent news about the Ph levels. Incidently where did you read that - I am really struggling finding alternative and complimentary information...
This is the 'newbie Sue No 2' rsponsing. It is 'newbie Sue No 1' that posed the question. Personally, I have been touched by cancer and am actively alkalising....
For any of you who use IVIG. There is a new magazine published called "I.G. Living." It's purpose is to provide articles offering insight and support to...
... thank for thinking of Alex!! he is still doing good on his counts we go back in two weeks for counts we are going to two doctors now, miller childrens...
Hi Nancy Do you live in the UK? What stage is your dad (Lewis) at - I mean has he gone into remission or is he still having regular transfusions of both blood...
I am currently 26 years old. I have taken Rituxan twice the first treatment had put me in remmission for 18 months and then I had a relapse. Now at the end...
I am sorry I do not live in the UK. I am sure you would be able to find someone in the UK. I will have to say that I have been through all the medications...
In a message dated 2/19/2006 3:51:09 AM Eastern Standard Time, sponting16@... writes: Do you live in the UK, if so where abouts. I only ask because my ...
Thanks for your reply Lou. I will check those web sites out. Sue Ponting lnalou@... wrote: In a message dated 2/19/2006 3:51:09 AM Eastern Standard Time,...
Hi Nick Thank you for taking the time to reply, I am pleased that you have found something that works for you. I have heard from Lou and he has said that this...
