Just an update: We finished Abby's rituxmab 2 weeks ago, and her count is steady at 28,000, and has been holding, we are hoping that this Monday will show an...
Will I hope I am not the only one to respond to this. There are some really good websites that explain evans/ITP in terms that are very easy to understand....
hi everyone well alex had his first riutuxon treatment on thursday and well the next day his nose bleeds stopped his mouth soars all disappeared and now four...
Hi Mindy, Thanks for sharing the good news with us. I'm glad to hear everything went well for Alex with his first Rituxan treatment. We'll pray for great...
well we went for counts today and his platlets went up to 57! they were 6 the day we started the first treatment of rituxon. he will have his second treatment...
this is such wonderful news!! praise the lord!! keeping you all and alex in thought and prayer!! Diana mom to julius age 5 diagnosed with evans syndrome on...
well alex had his 2nd treatment of riutuxon they did counts before the treatment again and i knew they had to be down because he had nose bleeds again, they...
Dear Mindy, I think we all know to well the roller coaster that you are on, good luck with the rest of your treatments, Paul did not have good luck with...
Hello all. I am a graduate student who has to write a paper about Evans Syndrome and its effects on families. I am looking for info about the syndrome,...
HI Bret, I would be happy to help you out. My daughter has had Evan's Syndrome for over 5 years now. What school are you going to? Grace (Katie age 13) ...
Hi Bret: This is great! Maybe you can raise some awareness about this condition. Please feel free to use any of my posts as well as information about my...
Hi Bret, I'd be happy to help. Attached is a good article to start. My son Ben was diagnosed in June, 2001. He is now a high school freshman. As you will...
You can use my messages to and I have a website up for my son if it will help any http://www.caringbridge.org/visit/julius plus Lou will have a wealth of...
Bret, You certainly have my permission to use any of my posts. Marlene...
Marlene M Pritchard
opca@...
Oct 12, 2005 11:27 am
3938
Hello, Bret! My name is Jessica, I am 16,I have had Evans Syndrome for 15 years. Right now I am dealing with ITP. Feel free to ask me anything. Help us raise...
Thanks. I really appreciate it. Can you tell me a little bit what it is like to live with Evans syndrome? I am looking for general type stuff, such as:...
I am a graduate student at Northwest Missouri State University in Maryville, Missouri. I am looking for general information. Basically I need to know how the...
Bret, your question, although a good one, is bit broad. Evans affects everyone differently and it varies so much by age. My 15 year old with primarily platelet...
My daughter is 15 and she is a competitive cheerleader for a National Championship team in Orlando, FL. There are times when platelet issues do interfere, but...
my husband has evans/ITP and is now almost 30 yrs old. he just had his spleen removed almost 3 yrs ago when he was out of remission but that didn't help. the...
I also do not have a spleen - it was removed almost 20 years ago because of Evan's. I cannot get a flu shot, because I almost always get a mild case of flu...
First of all, thanks to all who are helping me. I really appreciate you letting me intrude into your lives like this. I know that it differs greatly from...
As I learned it after being diagnosed, it is also self-destroying blood cells, in which new cells are not being produced fast enough to keep up with...
Hi Bret, You have part of it. Evan's syndrome can deal with all or just one of the blood cells. If the platelets are affected then you are correct that the...
You have some of it correct, but it is not all about platelets. There is also the hemolytic anemia part of the condition where the hemoglobin is affected. My...
Well, for the last 5 years I have been in remission. About two weeks ago, my counts went to 42, then 47, then 33. We started Monday with the lovely (not) count...
... condition has always flared up in the fall also the doctors have to explination for it and are very confused by it. mindy (mom to alex) by the way he is...
Oddly enough; Danielle also seems to begin the downward spiral every November and it continues through February or so. Robin Mother to Danielle, 15/Evans ... ...
mindy, it took ben a full 3 months for rituxan to kick in so be patient! he was sub 10k for 5 months. now he is 120k. keep praying! shari (mom to ben 15 w/...
Hi Mindy and Jessica, Fall relapses are really interesting. Katie just relapsed 4 weeks ago. The Fall seems to be a difficult time for her too. I wonder...
