Hi Everyone, I haven't posted about Katie in a really long while. She has had ITP and Evan's Syndrome for 5 years. She is currently in remission- From Evan's...
well my rollercoster was going up and now its going down again alex started brusing and i took him in early for counts yesterday and his platlets were at 7!!...
HI Mindy, I will pray that Alex has a great response to the IVIG this time. I know how disappointing it is for your child to do well for a while and then drop...
In a message dated 9/3/05 9:59:00 AM Eastern Daylight Time, aamom4ever@... writes: we are going in today for ivigg hopefully that will work we tried it...
Mindy, I will keep Alex in my prayers. If I remember correctly, Alex was taking steroids and cyclosporine? Did he ever try Rituxan? I wish you luck in...
Dear Lou, Thank you so much for your input on this. It didn't even occur to me to check on the perservatives that are used for the TB test. I will make sure...
Hi, I don't think this has been posted, yet. A friend just sent me this interesting article. It discusses a variety of autoimmune diseases. Check it out if...
Thanks to everyone for there wishes and comments for alex, he did very well with the ivigg treatments the first day though he had a bad reaction the to...
Hi Lou, I did some research this morning and found that the most common perservative used in the TB tine test is Phenol (28%). Do you know of any possible...
well we went to the hymotoligist today for counts and alex's platlets went from 7,000 to to 90,000 they said they may go up even more in the following days so...
In a message dated 9/7/05 5:06:43 PM Eastern Daylight Time, aamom4ever@... writes: well we went to the hymotoligist today for counts and alex's platlets...
Hi everyone, Just wanted to let you know that now that we are all settled in our NH home, our family is sending us on a cruise to Alaska! We are very...
Lou, Have a wonderful time!! Grace lnalou@... wrote: Hi everyone, Just wanted to let you know that now that we are all settled in our NH home, our family...
The sin bin -Vested interest Apathy and other unworthy systems As you can see I am not the only one saying this is happening hi my background is research...
Lou, I am So excited for you I hope you and your husband have a wonderful time you deserve it and you have a wonderful family for sending you. Betty...
Hi Everyone, I posted a few weeks ago and indicated that Katie had been in remission for over a year. Well that was over late last week when her platelets...
As an adult who had Evan's as a teenager (I've been in remission for 19 years), I have found that when I ovulate, I am actually a walking bruise - just running...
Laura, Thanks for the response. Katie's flow is quite heavy even with normal platelets. The positive thing about Katie is that she has never had an episode...
Hi all. I am new to this but could do with some advice. My wife has been diagnosed with Evans. What are the chances of a full recovery? Last December she felt...
Hi Ian, I am so sorry your wife has had to deal with this. It is so scary when Evan's is out of control. My daughter was very ill 5 years ago with a very low...
This is Denie's latest blood results UK style They have today increased her cellcept to 500mg a day from 250mg. Haemoglobin * 113.00 g/l (115-165) Red...
In a message dated 9/22/05 6:02:08 AM Eastern Daylight Time, britanicmanic@... writes: I have had Rituxan 3 years ago and it has kept my platelets high...
Hi Lou, How was your trip? You have been in my thoughts since we spoke. I hope that you had a wonderful, relaxing, healing experience on your cruise. Please...
well we just got released from the hospital after 5 days. alex has the ivigg three weeks ago and his platlets went up from 7 to 99 then quickly went down and...
