In a message dated 7/28/05 8:20:11 PM Eastern Daylight Time, sharim61@... writes: just curious, what does WAC stand for? i used to work for a WAC here...
Hi Lou, I hope that things are beginning to settle down for you. Hopefully you have gotten to your new place and are beginning to settle in. I am following up...
well we just went back to the doctor after one month and alex's hemoglobin has went up to 12.2 he was 10.8 last month and his platlets are still normal. his...
retic, ideally, should be 1 or less. 2 or 3 isn't bad but worth watching. it just means he is cranking out more "baby" hemoglobin to keep up with destruction...
Hi Lou, Once again it is impossible for me to express the extend of my appreciation. I sympathize with your sense of loss. It seemed like I was doing better...
well julius got his 4th retuximab treatment last week and his white counts are still low at 1.3 he has to stay home from school now until they go up and he...
Dear Shelley, In the messge you wrote to express your thanks to Lou, ( who has been so strong for all of us ) I justed wanted to say that it has been still a...
Sharing a tidbit of information: Yahoo is now using something called "Web Beacons" to track Yahoo Group users around the net and see what you're doing and...
Hi everyone, I just ran across this article and thought some of you may be interested... _Click here: Preventing severe infection after splenectomy --...
Dear Lou, As always, you are here, sharing important information. I have already emailed the post-splenectomy article to Micah for future reference and will...
My 8 year old daughter was diagonised with Evans syndrome/ITP at age 2 we have had 4 outbreaks and this last one she is not responding to the IVIG or steriods....
Lou As always, I am eternally grateful for you keeping me up to date. Heaven knows this ol' puter is slow enough, and I do not need any more junk mail. Thank ...
Please is there different treatment options for evans, other than steroids and removing the spleen??? I'm suffering for a year,,, They say that my baby passed...
IF it helps any terran's spleen was removed during his transplant due to his hirschsprungs this was before he develped evans as a consequence of his ebv but...
I'm just so scared about having my spleen removed, because the doctor only gave it a 50\50. Thank-you so much for your time. Jeannine kimrobinstein1@......
I was diagonised a year ago when I was pregnant with my son. They actually told me that my son passed an antibody to me, and that's how I got it. I'm currently...
Julius skin started turning yellow over the weekend and he went back to the hemotologist today and his hemogloban counts were 7 they said the retuximab...
Diana: I know how scary this is and how helpless you feel, just hold and and have faith. My daughter did not respond at all to rituxan, quite the contrary...
Can someone please tell me what Vincristine is? I've tried everything else, and nothing. I have an appt. Thursday with a surgeon to talk about having my spleen...
Robin thank you so much!! I say God answers us through others and he has with your words of faith and encouragement. Blessings to you and your daughter and...
Jeannie, My son went through a round of vincristine and then had a splenectomy 4 years ago. His blood counts have been fine since although he has developed...
Marlene M M Pritchard
opca@...
Aug 23, 2005 12:49 am
3832
Dear Jeannine and Diana, Vincristine is a chemotherapy agent. When my son's platelets were consistently below 10K (sometimes less than 1K), he was given an...
Jeannine, What other forms of treatment have you undergone?? Is your major issue with Evans the hemolytic anemia or platelets?? I had a splenectomy 2 1/2...
Debbie, Thank-you, for your quick response. How long have you had it. I have hemolytic and low platlets. I am currently on 60mg of prednisone a day, IVIG,...
Hi Jeannine, I know this can be very tough to handle. I'm especially sorry to hear you can't care for your baby! I had my first crisis 5 weeks after my 2nd...
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