Dear Danielle, Please know that you and your family are in my thoughts and prayers. I know how frightening that situation can be. If you need anything, someone...
Robin, We just got over a bad time with ben (14) and his platelet count. In january, his counts fell to sub 10 (often 1 or 2) and this lasted until about 6...
Robin, My son Dan had a problem that was similar about two years ago and nothing seemed to help.The doctors gave him vincristine and rituxin.They also tried...
Thanks for the encouragment Shari, I am trying to keep my chin up as is Dani. One more thing popped up this morning; Dani has blood in her urine (she does not...
In a message dated 7/2/05 8:41:30 AM Eastern Daylight Time, r_l_brown@... writes: Thanks for the encouragment Shari, I am trying to keep my chin up as is...
Hi Lou, I know that you have just been through a horrific time and I am glad to see that you are back on line again. I have a question for you. Do you have any...
ITP is one of the symptoms of Evans' Syndrome. Alvis Zujevs...
Alvis Zujevs
alviszujevs@...
Jul 3, 2005 4:41 am
3773
evans is usually defined by more than one blood line abnormally low (red, white and platelets) and a positive coombs test. ITP is a disorder that affects the...
Robin, So hard not to worry but if your drs are not concerned, try not to be. Bleeding with extremely low platelet counts is to be expected. Only if bleeding ...
In a message dated 7/2/05 10:02:42 PM Eastern Daylight Time, bandit07@... writes: Hi Lou, I know that you have just been through a horrific time and...
Hi all, Just wanted to send you all a note to let you know Bill and I will be moving to NH next week! My email address will remain the same. I won't be...
Lou, In more ways than you can imagine you have been an answer to a prayer. It is wonderful to hear your plans for the future. I truly respect you for being...
sherri you should be able to obtain her records just by going to the hosptial and requesting them as a parent you have a right and to avoid costing you can ...
I just refinanced my home loan at better interest rate; this saved me thousands of dollars and will repair my horrible credit. You can check it out here....
Hi Brenda, Sorry for not reading this email in what seems like forever!!! I don't know about your eye infection - luckily one problem we never had - what is ...
I have chronic sinusitis and rosacea, which also makes my eyes red most of the time. I have gone through rebound a couple of times from overusing drops. It is...
hi, my daughter has had problems with her eyes too. She now has a scar on her cornea, due her body being so immunosupressed, she is also a transplant, now her ...
Hi The doctors believe it was vincristine which Kyle was getting at the time when the pain started. They believe it was the vinc because the pain wandered....
Please excuse my misspellings, my 5 year old special needs son was diagnosed with evans 04/14/2004 and was holding good until february 2005 and then his counts...
our understanding of rituxan is that, yes, about 30% of evans patients respond to the therapy. Of that, it usually helps either the platelets or the hemoglobin...
Thanks Shari for your reply..I do hope Julius reponds well.Is Ben able to go to school and all? they told us depending on how Julius responds and what his...
Diana, we are hoping ben will start in september in school. he has been home since the middle of january. he managed to graduate 8th grade (with honors!) and...
Hi Diana. My son Nik had the treatments in Jan '04, to treat for plateletts below 10,000, and for hemoglobin counts below 8. Nik had been on steroids 80mg. per...
Hi Laurie, Thanks so much for your email..what a blessing you are ..it has given me hope and I know God above is good and no matter what happens will see us...
well we went back to the doctor yesterday after a month for counts and alex hemogloben was at 10.8 and platlets at 165,000 his red last month was 11.8 we...
My older sister was diagnosed with Evans Syndrome the year that I was born. She was 3. After years of practically living at the Childrens Hospital, she passed...
