Hi, My wife and I are new members to this group as we are seeking first hand information. My mother in law is 75 and has been diagnosed with EU. She lives in...
... i would definatly include these p ... diagnosed ... and ... translate. ... steroid ... long ... and ... unlike ... and ... lead, is ... quantites of ... ...
I am seeking any information that I can get to be of help to my brother in law. His mother became ill about one month ago. She became very weak and sluggish....
I'm very sorry to hear about your families struggles. Has she been diagnosed with Evans Syndrome? The usual first treatment for Evans is high doses of ...
Currently the doctor has made no diagnosis. They are not treating her with anything except transfusions. It seemed so similar to what my daughter had that I...
... More energy and constipation of long standing is much improved... 12 Spiritual healing, Reiki, find a good healer - but someone you feel an attunement...
Hi Debbie I was wondering how long you have had Evans. My son(our first child) Brendon got Evans at the age of 3 Months, he is now 6 Months but is doing...
Hi Shelley, I'm so sorry you had such a tragic and sudden loss with your daughter! As the mother of two, I can only imagine the pain you have endured. I'm not...
Hi Chris, Wow...your email really touched me! What an incredible challenge you have been dealt to deal with all this with a beautiful 3 month old child! My...
hello everyone, Since we share our good and bad times together I thought I would pass along that Paul turned 18 last week, and he is feeling better these...
I hope this reaches you. Have the doctor's check her kidney's. My daughter was also misdiagnosed with Evans. She has A-Typical HUS and is on dialysis. Jo...
RICHPHARM@...
Apr 22, 2005 3:23 pm
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Hi Betty, Just curious, how much cellcept is Paul taking? Ben started it 3 1/2 years ago with great success until we started playing around with the doses. he...
Betty, Thanks for sharing your good news with us! I have 7 teenage nieces and nephews as well as a 13 year old son, so I can definitely relate to the teenage ...
Dear Shari, Paul are now taking 500mg one day, 750 the next (it was 1250 then 1000, ) thanks for letting me now about it because I did notice two large brusies...
Hi Betty, actually, we live in new jersey but because we tried the rituxan and Dr. Neufeld had done a study with it, our drs and we felt it was time for a road...
Hello everyone, Soem of you may recognize Ben (and me, his mom) as long time users of this wonderful support group. Ben's 12 year old brother is doing a...
Hi everyone, I am currently reading an interesting book. Maybe some of you have read it? It is called Living Well With Autoimmune Disease, what your doctor...
Thanks Amy, We will have to check it out. If I may ask what are the four other autoimmune diseases that Aidan has? Erik has been doing really well. We have...
Heather, I am glad Erik is doing well! Aidan has had a stable CBC for about 7 months. He is really looking forward to summer and says he can't wait to go...
Hi everyone, Our Katie got her wings this morning at 9:23 am. After 11 1/2 months with hospice, she is now in the care of Jesus and all of the angels. While...
Lou and Bill, We cannot even begin to express our grief for you. Your strength and Katie's have given so many such hope for a very long time. Even though Katie...
Lou: Your family has been in my thoughts and prayers, I will continue to pray for you. I know the relief you must feel to have Katie's suffering finally end....
Dear Lou and Bill, Words truly cannot express our sorrow at your loss. We can only send our love and admiration in tribute to your family's strength. We hope...
Lou and Bill my prayers go out to you in this time of sorrow. I dont know what else to say but just know Katie and you have brought so much to us and thanks...
Lou, your family remains in our prayers. I know you've had a hard time of it for the past few years, and now Katie is with the angels, so you can relax, and...
Dearest Bill and Lou, May the Lord wrap his loving arms around you and give you comfort and strength. Blessed are the Lord's children! Katie will be his new...
Thank you for sharing everything you have shared about the disease and about Katie....After reading all the e-mails.....I felt like I too was touched by...
What an incredible journey you have all traveled. Katie is such an angel and she will be safe and experience perfect health now that she lives with Jesus....
