Hi Mindy: Danielle was on vincristine for about 10 months until it just stopped working for her. At that point we went to see an immunologist and she put Dani...
Hello, I have always had problems using search engines to find what I wanted, as it always poped up results that I was in no way looking for. I just happen to...
I have a question for the group regarding Mono. Danielle's spleen became enourmously enlarged over the past 3 days, essentially consuming her entire lower...
Hi Robin, My name is jean my daughter nikita has had evans and ITP for almost 3 years now, During the past Holiday she had a bout and it was stated that it was...
Now that things have settled down, I just wanted to let you all know what ... Brendon who is now only 4 ½ Months old, started getting these little reddish...
Jean, My son, Paul who will be 18 next month has had Evans for five years now, and we have had, as many of you have, many ups and downs, being a teenager is...
Iam so glad to hear that you all are doing fine, yes this illness is hard on everyone and the children , Like I have told others GOD works is so GRAND. maybe...
Robin, My father 83 has Evans, I have Rheumatoid Arthritis(In remission with medicines). In the spring of 2002 at age 55, I had mono. I was feeling really...
hello, i lost my mom 5 yrs ago to hemolytic anemia, the disease came and took her within 10 days, i have been searching for answers since. i am still very...
Hi Sandy, I'm very sorry to hear about the sudden loss of your mom. I'm sure the doctors did everything they could for your mom. Hemolytic anemia is an...
I had never heard of Evan's syndrome before this week. My nephew's six year old son died on March first. We had lost contact since my sister (his mother)...
I posted a message this am about 4:30 am.. and have now read dozens of messages. I am so sad that Danny didn't know sbout this group...maybe his son would...
Hi Dori: I am so sorry to hear of your loss. Evan's is such a mysterious condition. You and your family are in my thoughts and prayers. Robin Mother to...
Hello Danny, Words can not begin to express my deep sympathy for you and your family. I lost my beautiful, creative, loving sixteen year old daughter on...
Dearest Dori, I'm so sorry to hear of your families tragic loss. This illness can come on with such a vengenance. I'm sure the doctors did everything they...
Robin and momslearning...Thank you so much for your replies..I think I have been "stuck" on this website for hours and hours...reading the messages and replies...
Dori, Thank you for your comforting words. I can not begin to express how difficult it has been. Nothing in life is quite as sweet anymore.The void in my life...
It was so kind of you to share your memories with me of your daughter. I laughed too at the "clutch" :). I do hope you will still go to the beach..inhale...
It was so kind of you to share your memories with me of your daughter. I laughed too at the "clutch" :). I do hope you will still go to the beach..inhale...
Spiritual Healing /Reiki healing Spiritual healing/ reiki to many people conjures up so many images and meanings, for those who do not know what it is all...
Free Groceries & Eat Out Free Too! I have to recommend this site most highly. I too recently saw a couple of television shows for the company listed at: ...
Hi, My wife and I are new members to this group as we are seeking first hand information. My mother in law is 75 and has been diagnosed with EU. She lives in...
... i would definatly include these p ... diagnosed ... and ... translate. ... steroid ... long ... and ... unlike ... and ... lead, is ... quantites of ... ...
I am seeking any information that I can get to be of help to my brother in law. His mother became ill about one month ago. She became very weak and sluggish....
I'm very sorry to hear about your families struggles. Has she been diagnosed with Evans Syndrome? The usual first treatment for Evans is high doses of ...
Currently the doctor has made no diagnosis. They are not treating her with anything except transfusions. It seemed so similar to what my daughter had that I...
... More energy and constipation of long standing is much improved... 12 Spiritual healing, Reiki, find a good healer - but someone you feel an attunement...
