Hello. My name is Mykella. My son Gage was diagnosed with Hemolytic Anemia when he was 4 yrs old. They did the steroid treatment and gave him blood and it...
Hi there i would recommend Rituxin or Vincristine. I personally have had Rituxan twice and i had positive results Kath <kblake7@...> wrote: Hello, Just...
Good luck with Micah and it looks like at least is there every was a good time for something like this it is. Keep us posted and good luck. Betty Mom to Paul...
We are at the Children's Hospital in Oklahoma City. The staff and doctors in the Hem/Onc office are wonderful!! Mykella Clouse, mother of Gage, age 10...
In a message dated 2/3/05 7:38:54 AM Eastern Standard Time, essbeth3@... writes: Micah has been hospitalized since Monday. They have done an ultrasound...
Thanks for taking the time to respond. Here's the latest. After talking with his "adult" hematologist and consulting, by phone, with his hematologist from...
Shelly, You are great. Your plan sounds very reasonable. I'd hate to have him operated on somewhere where they really don't know and understand him and his...
Hi Shelly, I just read your post from the other day. Your current plan for Micah sounds excellent. Very few doctors understand Evans, so getting him to CHOP...
I too was skeptical about surgery and left South Bend Indiana and went to the Mayo Clinic for a second opinion. They too recommended the exploratory surgery...
question: anyone with rituxan experience - have you done anything about immune replacement while on rituxan such IVIG? My son Ben, had his first infusion...
my husband was on rituxin about 2 years ago and that is what FINALLY kicked him back into remission. we had tried everything else, prednizone, blood...
Dear Shelly, We are keeping Micah in our prayers and hoping they find the right answers for him and this can get resolved quickly. It sounds like the Drs have...
Aidan had four doses of Rituxan last year. At that time he was getting pentamidine monthly and was taking diflucan to help prevent bacterial and fungal...
I recall someone posting a while back about a trial conducted in Boston (I think) with rituxan and evans patients. Is this right and is there a doctor I can ...
Yes, my son was invovled in that study at Childrens Hospital in Boston, we did not have any good results, but one of the girls did. The study was funded by...
Shari, After Aidan's hemoglobin dropped again he actually responded well to high dose steroids. At the time of Rituxan all three of Aidan't counts were low...
Thank you Amy! Your info is so important to the rest of us. I am glad that you have found something that works (for now). Ben was on cellcept for almost 4 ...
Nick you have asked what so many of us transplant parents have asked can our transplant children have children due to the sterioids etc we are told that the ...
Hi I'm new to the group and trying everything we can to find out info for my sister n law, she is in the hospital and we were told she has Evans Syndrome, Can...
I am so sorry to hear of your sister-in-law's condition. Evan's can be very scary as there is not much information available about the condition. What have...
Evan's is very scary when it gets out of control. When my daughter was critically sick with very low hemoglobin, what worked for her was a 3 day IV pulse of...
Thank you and i called to check on my sister-n-law (Robin-44yrs old) and I was told that she has a form of Lupis,Evans Syndrome,Hemolytic Anemia, I know they...
In a message dated 2/8/05 12:15:24 PM Eastern Standard Time, truangel32@... writes: Hi I'm new to the group and trying everything we can to find out info...
Thank you for the information and yes my sister-n-law had a flu shot in September of 2004,Can that have something to do with her Illness? She has been in the...
In a message dated 2/8/05 3:58:27 PM Eastern Standard Time, truangel32@... writes: Thank you for the information and yes my sister-n-law had a flu shot ...
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