I haven't heard from anyone lately so I thought I would write to see how everyone is doing. Also I thought I would add some pics of Brittany and ask if others...
HI Jennifer, Thank you for putting those pictures up. I read along and wept with your family through all your battles and am happy to finally have a beautiful...
Thank you I am so thankful to have my internet friends that helped bring us through it all. We may not have had your shoulders physically but in heart you all...
Hi, my name is Terri and I am looking for information about Evans Syndrome. If anyone out their could give me a number to call or send an e-mail to someone I...
Hi Terri, What sort of information were you looking for? I am sorry I don't know of any pamphlets or phone numbers, unfortunately there is not a lot of...
Hello, I recently was diagonosed with Evans Syndrome and have been on prednisone for about almost a year to help. I am also looking for more info. and...
MEGAN.TUNE
megan.tune@...
Nov 6, 2004 3:33 am
3377
Hello Megan and Terri, I have watched the ups as well as the down of Evans and can give alot of info either way. As for homeopathic remedy, as much as I would...
Dear Jennifer, I am so very sorry for the loss of your daughter. Was she born with Evans? I am again so very sorry. Thank you for your encouragement and...
MEGAN.TUNE
megan.tune@...
Nov 7, 2004 6:56 am
3379
i've been havbing problems with my pc, having had many viruses that have attached themselves to my address book and sent randome emsils; thiese emails/messages...
I talked to Bill the other day and Katie is still holding on. She is doing about the same, still not holding down much food though. Jenn ... From: evanspisces ...
Megan Thank you for the condolences. We are learning how to live without her however we are also using our grief and sorrow to encourage us and strengthen us...
This is so true. I was wondering where all of the conversation went to! Have you seen Brittany's pics I posted? Jenn ... From: bettanmic@... Sent: Monday,...
Hello Jennifer, I am so sorry to hear about the devasating loss of your daughter. My thoughts and prayers will be with you and your family. I unfortunatly can...
Dear Shelley, As the mother of a teenager who has had Evans for the last five years and has had heart surgery too, I am deeply saddened by your lost and can ...
Shelly I am so sorry to hear your story. It all happened so quickly for you. As for ideas on someone who can look at her medical records. I can give you...
Shelly, I am so saddened to hear of your loss. As parents of a child with an Evans diagnosis this is frightful. As a parent who posts and reads posts here,...
Enter your vote today! A new poll has been created for the EvansSyndrome group: How old were you or your loves one when diagnosed with either ITP or Evans? o...
EvansSyndrome@yahoogr...
Nov 16, 2004 10:16 pm
3390
Hello everyone, I dont know if any of you would remember me. My name is Tina Hughes and my son almost 15 has Evans. He was diagnosed almost 6 years ago with...
Tina, Hi. My son was diagnosed with evans at age ten. He is now 14. He also has most trouble with platelets. We tried the steroid route as well as other things...
Hi Jennifer, I am sorry for your lost. I am the mother of 3 kids and I have never experience the death of a child. It break my heart to hear about young...
Hello Terri We all appreciate your interest in this disease as without the interest of others nothing will ever be done about it. As for how it came about and...
hello my daughter was diagnosised withevans when she was anly 15 also she is now 18 and doing o.k. she was also on high doses od prednizone iv solumedrol...
dawn, PLEASE ask your drs about cellcept and imuran - these drugs target the immune system and prevent destruction of otherwise healthy blood cells. shari (mom...
file attachment: true.bat This e-mail in its original form contained one or more attached files that were infected with the W32.Klez.H@mm virus or worm. They...
Many of you know my story, but there is a new added chapter and I could use some input from members of the group. My daughter Gabby (3 1/2)has had cronic ITP...
That can be very good news. I have heard of ITP clearing up on its own. As for Brittany her ITP cleared up for the most part after she had her splenectomy....
HI Mitch, My daughter Katie had a positive Coombs test when she had severe hemolytic anemia hence the diagnosis of Evan's Syndrome. After 6 mos on prednisone...
Hi there I am glad that you had a great time at the b-party. sorry to have not been able to send my wishes nikita has been in and out of the hospital, would...
