Hi everyone, Just wanted to let you know that Katie has now had fever in the 104-105+ range for almost 72 hours. She is still talking and lucid but is very...
Dear Lou, I woke up in the night several times last night and was praying for you, Bill and Katie. I cannot begin to know what you are going through - but ...
Marlene M M Pritchard
opca@...
Oct 1, 2004 3:35 pm
3300
Dear Lou, Bill and Katie, Thinking of you all with much love, I wish you peace in this difficult time. Shelly...
punstoys@...
Oct 1, 2004 4:42 pm
3301
Lou and Bill, God must be giving you great strength to endure this unimaginable pain. I will continue to lift Katie and both of you up in prayer. You are...
Dearest Lou, Thank you so much for keeping us up-to-date on Katie's condition. I think every member of this group thinks of you, Bill and Katie every waking...
Dear Lou, Like most of the others in this group you three are in my thoughts and prayers often and I wish you all strength in this time , please know we all...
Lou, Yes, Yes! We will continue to pray for Katie. That God will take her maybe even this day. Please God, no more suffering for this poor, sweet child....
Barbie Brygger
Creekside5@...
Oct 1, 2004 10:02 pm
3305
Lou I don't know what to say other then we will be keeping you, Bill and Katie in our prayers. If you need someone to talk to tonight you can call me at work...
I wrote this for my daughter sometime last week when I was in one of my down moods and wanted to share it with all of you! Through your eyes, One could see...
Jennifer: Thank you so much for sharing this beautiful poem. Brittany was blessed to have you as you were blessed to have had her! With love, Robin Mom to...
Hello, I'm new to the group and actually never heard of Evans Syndrome until Thursday, when my rheumatologist told me I had it. I was diagnosed with Lupus in...
Lou, Myself and my family are praying for you all, here in Scotland. I don't know what else to say Lou. God bless all your family. You guys are in our...
Dear Cindi, My son, Nick (age 20), has lupus, evans and antiphospholipid syndrome. I'm not sure there is anyone else on the board with the same package ...
Marlene M M Pritchard
opca@...
Oct 2, 2004 8:03 pm
3311
Hi Cindi, I was first diagnosed with Evans Syndrome in October 2003, then in November 2003, they changed it to Lupus, with antiphospholipid syndrome. Now...
Thanks, Jim. I was just thinking this is the first year I didn't have to change my medic alert bracelet when I renewed, guess I was wrong LOL Cindi ... Do...
hi Lou, Bil & Katie just to let you knowthat our thoughts are with you all at this difficult time, but Katie will soon be an angel & will always be with you......
Pfizer is now offering free or discounted drugs to those without health insurance and considered low income. There is no enrollment fee. Those with higher...
Hello Ive had 5 episodes of either hemolytic anemia or itp. It seems like before each episode I had really bad heartburn for a few weeks. Once I got on pred...
Thanks everyone. I was having one of my down and out moments and was listening to the radio at work when I started thinking about how much I missed Brittany....
I'm fairly new. . . posted only once before. I read through alot of postings and there is great information passed around. My daughter (Asheley, 13 yrs old)...
Dear Diana, Welcome to our sight (although we wish no one had to visit)! If you have read the posts you will see some have been helped by chemos and ...
Marlene M M Pritchard
opca@...
Oct 5, 2004 1:10 am
3321
Hello ! Yes! Mu husband has Evan's Syndrome and due to the prednisone he was experiencing some heartburn. Unfurtonalley Zantac didn't help much so he has to...
Hi everyone, Just wanted to let you know that Katie is still fighting her battle. She continues with fever and has had no food intake for 8 days. She takes...
Lou: Please know that your family has been in my prayers since we first met. You will continue to be in my prayers forever. I pray for peace and comfort for...
Hello Everyone: I wanted to share a positive story and picture with all of you. My daughter Danielle is 14 and was diagnosed in 1999 with Evans. She has...
Thanks you for sharing. Your daughter's story has lifted my spirits today! ~~Mónica~~ Check out our family web page! www.familiamelendez.com Thanks you for...
Lou I am glad to hear from you. We have been praying for you all everyday, for you and Bills sanity and strength and for Katie to have peace. We have been...
Robin It is helpful to hear of those who are doing well, especially when everyone one is on pins and needles waiting to hear about Katie as I am sure many of...
