sorry it has taken me so long to respond to this email, but I needed to ask my mom these questions. I seem to remember all my doctor names, but not anything...
Hey all, I have not heard from Lou lately. I have an idea since we have not heard from her but was wondering how everything is going. Lou if you get this feel...
Lou, I agree with Jennifer Barker's inquiry. Lou, how are you, your husband and Katie? You have really been missed from the Evans board. We all care so much...
Barbie Brygger
Creekside5@...
Sep 2, 2004 3:56 am
3239
Hi everyone, I'm sorry I have been out of touch recently. I've been reading the emails and keeping up but haven't responded. I totally agree with the...
Hi Does anyone know anything about gall stones or the gall bladder? My son Kyle who has Evans Syndrome started having intense shoulder pain(8 out of 10)and had...
Hi Cindy, I'm a 44 year old Evans patient. When I was in my mid 30's I had serious gallbladder pain and a scan revealed stones. I did have my gallbladder...
Dearest Lou, Good grief....you guys definitely need a break!! I was so worried about you through Charley and I just saw a news update on Frances and...
Lou, After all you and your family have been through, you surely do not need Francis do you. My family's prayers are with you and especially Katie. May God...
Jeff Ash
jeffery_1977@...
Sep 2, 2004 11:25 pm
3244
katie is so lucky to have you all. you know lou, i am not very religious and my faith is not that strong, but i even have to believe that there is a much...
laura, first of all, than you for your responce. your answers will help us with the needed inspriation and hope (thtat is al we have at times). you sound like...
Dear Lou, Everytime I read something from you I am once again reminded how strong some people are, and I wish I was closer to run over and give you all a big...
On the note of storm preparation, I and Charlie will probably both have to work. All of our children will be at his parents. I would much rather be there with...
Lou, I see Port Orange is being struck by Hurricane Frances now with winds at 85 miles per hour. I am very concerned about you and your family. It looks bad...
Barbie Brygger
Creekside5@...
Sep 5, 2004 4:23 pm
3250
Dear Kathy, I'm sorry to hear about your son Zach. Our son, who is 4 1/2 years old, and is also named Zack, was diagnosed with Evans Syndrome when he was a...
Hello everyone, I just wanted to let Lou, Barbie, Jennifer and anyone else in the Florida area that we are thinking about you and your families and praying...
Dear Ann Marie, You're so very right...we're all thinking of our friends in Florida and are hoping they are safe. I just wanted you to know the blood drive was...
Hi everyone, Just wanted to let you know we survived our second hurricane in 3 weeks. This one lasted forever! We lost a lot of shingles and got some water...
Hearing from you, many prayers were answered. We are all thinking of you and your family. Shelly (mother of Micah, 22)...
punstoys@...
Sep 8, 2004 4:00 pm
3255
Dear Lou, It's so good to hear you weathered the hurricane! We're continuing to pray for all of you! Marlene ...
Marlene M M Pritchard
opca@...
Sep 8, 2004 8:01 pm
3256
Hi Lou, Don't be so quick to toss aside the whole private island idea!! You know how much water front property is worth these days!! The values might be...
Lou I kept reading the posts, praying and wondering how you and your family were doing. The news on that area was terrible. I was concerned. 2-3 wks without...
Barbie Brygger
Creekside5@...
Sep 9, 2004 3:43 am
3258
My son's girlfriend was admitted to the hospital on Friday or Saturday and by Tuesday she passed away. It was discovered she had Evan's Syndrome too late. I...
I am so sorry to hear of this. Evan's is truly a mysterious syndrome. I am sure that you will learn a lot about Evan's if you read through the past posts. ...
I'm so sorry to hear about the tragic loss your family has suffered. We don't know why, but sometimes this illness seems to hit with such magnitude the ...
I'm very sorry to hear about your sons girlfriend. this is a strange disease that affects everyone differently. my daughter was diagnosed with Evans 3 years...
Thank you Ann Marie I appreciate you thinking about us through these rough times. We weathered pretty well for the most part. We lost power on Sunday night...
Lou, I am glad to hear from you and glad you all survived round to of the wrath of Florida. As much as I hate to say it are you ready for round three!!!?????...
In a message dated 9/7/04 2:01:44 AM Eastern Daylight Time, annmarieslp2001@... writes: Hello everyone, I just wanted to let Lou, Barbie, Jennifer and...
