Lou, When I "reply" to an e-mail to you or the group, I don't think it gets through. I have done it three times to reply to people I think I can share with...
Barbie Brygger
Creekside5@...
Jun 1, 2004 12:08 pm
3014
Lou, I don't think my messages are going through. Do I press "reply" or "forward" to answer a message someone has sent to the group?? Love, Barbie ... From:...
Barbie Brygger
Creekside5@...
Jun 1, 2004 12:12 pm
3015
Lou, I am trying to send this again. We'll see if it goes through. Thanks. Sorry if it did go through and I didn't realize it. Love, Barbie ... From: Barbie...
Barbie Brygger
Creekside5@...
Jun 1, 2004 12:12 pm
3016
Mtusim: My husband, age 73 has had Evans through all or most of 2003. He was diagnosed in July03 but we think he probably had it as early as Mar03. His...
Barbie Brygger
Creekside5@...
Jun 1, 2004 12:22 pm
3017
Barbie, Your messages have been getting through. You need to hit reply when responding to someone's messages here or forward to send a message to a different...
In a message dated 6/1/04 8:34:52 AM Eastern Daylight Time, Creekside5@... writes: Lou, I don't think my messages are going through. Do I press "reply"...
Hi Jean, You are so sweet. I'm happy to hear that Nikita is doing such positive things with her time. You must be so proud of her. Thank you for sending an...
Thank you everyone for all the information and prayers. My brother's spleen was successfully removed last Fri and his platelet count went up right away and is...
The dr in NJ is Dr. Abassi. He's in a group practice of oncology and hematology specialists. (He's not an evan's specialists but consults with Bussell on...
Jo Ann, I think you'll like this. God Bless. Gary Message ... From: Brandee Mata To: Gale McRorie 2 ; John Hicks ; Yvette Montejano ; Brenda Cardenas Sent:...
RICHPHARM@...
Jun 2, 2004 4:58 am
3023
Hello All, Paul had a IVIG treatment on May 12th, and it appeared to have no results, he is going back today for another plus i belive we are going to try him...
Dear Betty, I am so sorry Paul is having such difficulty. I haven't posted much in the last few weeks but am very burdened for those of you who have loved ones...
Marlene M Pritchard
opca@...
Jun 2, 2004 1:57 pm
3025
Betty, Ben has been on cellcept for almost 3 years. It works great for him. He starts on 1 gram twice daily (2 pills) and we were able to wean him off...
Hy daughter has taken cellcept for over a year now (250 mg/day)and it has definately helped keep her red count in the 130 range. Unfortunately her platelets...
Dearest Lou, We've communicated for years now, and I want you to know its so very evident that you are truly a beautiful, loving mother to Katie. It might not...
hey hey, just thought id tell you guys about this free debt consolidation site that reduced my monthly payments by damn near half, no more worries about bills!...
Hi everyone~ I am here because my son may have Evans. We are still in the testing stages. Here is his history. He is 14 yrs. old. Five years ago he was...
Hi there well welcome this this room, sorry to meet you under this condition, but you have come to the right sight, let me tell you about my daughter she has...
Hi Tina, None of us like to have new members because it usually means there's been another person diagnosed with this illness, however, we do welcome you and...
Wow, Thank you so much!! I am so sorry about your daughter. I have so many questions that I just dont know where to begin. I think I will just take some time...
Thank you so much Debbie, I am taking it all in. I have instructed him to wash his hands and to stay away from sick people.. we have been blessed so far with...
Tina, Again, we are never happy to have a new member but you are in the right place. My son, Ben is 13 and was diagnosed 3 years ago. He has problems with his...
Dear Tina, Your son sounds a lot like my 11 year old son. My son was diagnosed with autoimmune neutropenia at 4 1/2 and developed ITP a year later. His red...
Dear Lucy, I am single parent too, my son has been dealing with Evans about five years , his father is local but not too active in the medical or school ...
Thank you all so much for the kind welcome. I have been up for many hours reading through all the messages on the list...I started from #1. I am convinced...
Hello Group: First, welcome Tina. You will find that this group will become your strength. These people are fantastic. The love and support, not to mention...
Hi everyone, I'm sorry to report that Katie is not doing well. Her blood work continues to drop and it now seems that her bone marrow is failing and she is...
Dear Lou, I just read your note regarding Katie, and Ray and I both were in tears by the end. You have meant so much to us as we first learned of Nick's ...
Marlene M M Pritchard
opca@...
Jun 5, 2004 1:31 am
3041
Good Evening: I am with Emergency Medical Locators for Adoptees (EMLA), We seek out and find biomedical histories and Biofamily members for Adoptees or anyone...
Lou I am so sorry to hear all of this. You have been very helpful with giving us information and personal emails. I have been very thankful for your research...
