Hey there Yes I am learning very quickly about the numbers game...lol....Brittany just had a multi port put in yesterday. They are also considering going with...
In a message dated 4/30/04 8:52:58 PM Eastern Daylight Time, redealjunkie@... writes: Dear Lou, Could someone explain to me the different components...
Subject: Social Security I received this in my e-mail, and do not pretend to know for sure if all of this is true. I believe that I heard somewhere a while...
Mitch, I'm sorry it's taken me so long to reply...I've been through alot lately. I don't mind the questions, the more information circulating out there, the...
Everytime I read this it makes me want to go into politics...it seems to be the only way my husband and I could get out of debt from all of these medical ...
FOR ALL MOMS If you send this to just one person, it should make it all the way around the world by Mother's Day. This is for the mothers who have sat up all...
I just wanted to share a bit of GOOD NEWS Niki is comming up on her year of no treatmen, no bleeding I THANK GOD for this. We know that she may turn and then...
In a message dated 5/5/04 5:32:14 PM Eastern Daylight Time, jworrell98@... writes: I just wanted to share a bit of GOOD NEWS Niki is comming up on her ...
to all of my friends here, Happy Mother's Day to all of you, I know that you all work hard at making your kids as happy and healthy as possible ( I know you...
This is for the mothers who have sat up all night with sick toddlers in their arms, wiping up barf laced with Oscar Mayer wieners and cherry Kool-Aid saying,...
Hi there, I got this tonight and thought some of you may be interested... ITP Conference Video Tapes - Now on Sale 2003 Video Tapes, were $60.00, now $45.00 ...
Hello all Brittany is still in the hospital. We have started week three this time. The doctors have mentioned the possibility of a bone marrow transplant as...
Hey Jenn: How ironic is this; Danielle is going to see Dr. Skoda-Smith and Dr. Hungry at Shands the first of June to explore stem cell transplant. Therefore I...
Yanno, my son was diagnosed Feburary 2004 and I am now just getting around to join this wonderful support group. I called Lou at her house to let her know I...
Hi jen have you tred cyclosporine and predison , I know that vinacrystine and that did well for her also some have tryed rutuxin (srry fro the miss spelled...
Hi, I'm from San Antonio, Texas. If this e-mail gets through I will e-mail more. I do know good things and doctors about BMT ith Evans. Jo Ann Lewis...
RICHPHARM@...
May 14, 2004 2:46 am
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you may also want to discuss immune-suppressants such as cellcept and imuran - works miracles for Ben... Shari (mom to Ben 13 w/ evans) ... ...
Dear Jennifer, No great words os wisdom here, just thinking how difficult this has been for all of you and somethings is just plain stinks!! Giving you extra ...
In a message dated 5/13/04 2:45:59 PM Eastern Daylight Time, crazyone32091@... writes: Brittany is still in the hospital. We have started week three this...
I just wanted to let Jennifer know that we are thinking of her and her family. My son hasn't been in the hospital with too many complications with Evans but...
Amanda, when my daughter's platelete's dropped last year (she was 2 years old), they used winrho, and from then, they continued to rise. I hope that Conner...
In a message dated 5/15/04 12:02:34 AM Eastern Daylight Time, alloyd5@... writes: HIs doctors warned me of this and said that they will intruduce IVIG...
Thanks to the responses I have gotten in regards to the IVIG. Conner has recieved this treatment in the past when his platlet count was 18,000 back in...
In a message dated 5/15/04 12:49:01 PM Eastern Daylight Time, alloyd5@... writes: Thanks to the responses I have gotten in regards to the IVIG. Conner ...
Amanda, My son Ben gets the IVIG/solumedrol treatment when he is in crisis and it works very quickly to get his counts up. Sometimes its lasts and other times...
hi everyone i'm so sorry to read about everyone's current ups & downs, life has a funny way of teaching us things! on another note, i've just made a journal,...
Hey Robin, Charlie said that you tried to reach me the other day. I have been a bit busy but will be off all day tomorrow. Brittany was being released from the...
Hi Everyone, I ran across this article today and thought some of you might be interested. You have to sign onto Medscape to be able to read it, but it is free...