Dear Emily, I can't imagine how you must be feeling Emily. I will pray for you, so that you get the strength to deal with the every day things over the coming...
... Since this happened with my friends husband, i've tried to find cases where natural methods have been used successfully. unfortunately, i couldn't find ...
I am not really sure what kind of a formual Paul was on, it came through the hospital since he was a premie, I just remember it was high in calories since he...
Thanks, Paul...strength is exactly what I will need. ~Emily ... _________________________________________________________________ Persistent heartburn? Check...
Thanks Betty, and everyone...your support means so much. ~Emily ... _________________________________________________________________ Tax headache? MSN Money...
Lou, Thank you for responding. My main concern right now is "shingles". I have had it since Mon Mar 29th or Sun Mar 28th. The doctor PA through Dr....
Barbie Brygger
Creekside5@...
Apr 3, 2004 11:41 am
2862
In a message dated 4/2/04 8:19:11 PM Eastern Standard Time, redealjunkie@... writes: I realize that I am coming out of left field here, but whaat the...
... From: lnalou@... To: EvansSyndrome@yahoogroups.com Sent: Saturday, April 03, 2004 3:52 PM Subject: Re: [EvansSyndrome] osteopaths In a message dated...
Thanks Lou, I looked at the web site and just finished composing a letter that I sent to her and her group. She has a marketing staff and that tends to put me...
Hi Nicholas, We met with Dr Bussel on Friday and were impressed. He made the Hemotologist we have been deal with look like amatuers. When your load lightens...
Hi mitch, I think you should go to a homeopath and talk with him and discus the thinks you question. If you make good agreement about the methode of treatment....
Erik Hovingh
erikhovingh@...
Apr 4, 2004 7:17 pm
2867
Hi I was just woundering if anyone is haveing or their child is or has been complaining of this. Nikita has been for awhile many trips for pt but it seems to...
Hello all, My name is Jennifer. My step-daughter was diagnosed with Evans syndrome before me and her father met. He has been through alot with her from...
Brittany is 11 years old. She was diagnosed January of 2000 when she had a platelet count of 4100 at which time she was givin a blood transfusion which brought...
Hi Jennifer: Sounds like you and I have a lot in common; my daughter Danielle is 13 and was diagnosed with Evans in 1999. We too have spent our share of time...
Hi Jennifer: Danielle also experiences periods of yellowish skin and eyes, other times she is as white as a ghost. It depends on what is going on at the time....
Thank you ...we greatly appreciate it!! I am constantly searching for answers...As we speak Brittany is getting another blood transfusion as her blood count...
Jennifer, I too am in the very early stages of learning about Evans,, as my 3 year old was diagnosed with it about 1 months ago. that being said, I think I...
She is definately in front of professionals!! 7 to be exact...5 hemotologists and 2 immunologists!! She has currently under gone her 2nd plasma transfusion...
She has problems with both her hemoglobin and red and platelets. Thank you for replying...I have never been able to get a direct answer, instead they just keep...
Hi Jennifer: Danielle had her weekly appointment yesterday with her oncologist; and it looks like I will be in your neighborhood soon. Dani is going to see an...
I know that Dr. Grandpal is her hemotologists, I believe her immunologist is either Dr. Scota-smith or Dr. Izeilman She has so many I can't keep up with what...
Thank you for the information, it is really helpful. I will absolutely call you when we are there, I'd love to get together. I also have Nextel, so here's my...
I stored your number in my phone. Anytime you are up this way feel free to contact me or if you need a shoulder! I work for the Dept. of Corrections on the...
She has started Pt 2x's a week for 4 weeks, test show no bone loss PRAISE THE LORD.. Her muscels just seem to be getting weaker not sure why, the doctor thinks...
i had evans as a teenager, though i am definitely not a teenager anymore (i'm 34)....i've been in remission for about 16 years now, but i can try and answer...
My daughter Danielle will be 14 in June and was diagnosed with Evans in 1999. I'm sure we could compare notes.... Robin Mother to Danielle, 13/Evans...
