Hello Everyone, Conor has had platelets of 1-5,000 for three weeks now. Because he "looks" fine for the most part the doctor was hoping that his platelets...
In a message dated 3/3/04 7:17:18 PM Eastern Standard Time, pgawoodstock@... writes: Hello Everyone, Conor has had platelets of 1-5,000 for three weeks...
Dear Mike, Sorry but I cannot be of mush help in your decision but I know your feelings. Our daughter Rebecka is now 1,5 years old and she has been in ...
In a message dated 3/5/2004 8:51:02 PM Central Standard Time, GAMILLER66 writes: and ... From: Mary Jackson To: Linda Rehm ; L Parker ; Suzanne Milner ; Janis...
RICHPHARM@...
Mar 6, 2004 3:28 pm
2775
Hello Everyone, My son Connor has Evans Syndrome (thrombocytopenia, hemolytic anemia), hypergammaglobulinemia, Ehlers-Danlos (connective tissue disorder) and ...
Dear Rob, My 11 year old son has autoimmune neutropenia and ITP. He is also Coombs positive. When he was first diagnosed (6 years ago) I did tons of research....
Hi Rob, Our daughter Rachel had a liver transplant at 9 moths old, she is now 14 years old. About a year and a half ago she had low hemoglobin, low platelets...
Hi Rob, Our daughter Rachel had a liver transplant at 9 moths old, she is now 14 years old. About a year and a half ago she had low hemoglobin, low platelets...
I would like to inform everyone that the last Rituxan treatment helped me. It was my fourth dose that made the miracle happen. My counts as of yesterday were...
In a message dated 3/11/04 12:57:47 PM Eastern Standard Time, nikoth7@... writes: I would like to inform everyone that the last Rituxan treatment helped...
Hi Everyone: I need your input. Danielle finished up her 3 round of vincristine 3 weeks ago. It was a tough road this time around, her hemaglobin hit an all...
Robin, My daughter Annie, 18 w/evans (currently in remission) has had two rounds of Rituxan infusions in the past two years. On her very first day of the...
Jeff Ash
jeffery_1977@...
Mar 12, 2004 10:47 am
2784
Great news Nicholas, have a great weekend. God Bless All. Jeff (daughter Annie, 18, w/evans) ... Find things fast with the new MSN Toolbar – includes FREE...
Jeff Ash
jeffery_1977@...
Mar 12, 2004 11:07 am
2785
Nicholas, Thank you for the good news, we are having a bad week and it is encouraging to see that thre is hope. To all keep writing good or bad . Betty Mom to...
Hi All, We are having a bad week, Paul has been having some sort of reactions this week, we are going today to the hemo clinic and for his IVIG treatment and...
Betty, So sorry to hear that Paul is having all that trouble. My prayers go out to Paul and you and your family in this time of sickness. God Bless you all. ...
Jeff Ash
jeffery_1977@...
Mar 12, 2004 5:21 pm
2788
I know how you are feeling I have been through the same thing before about three weeks ago. Doing much better because of Rituxan. I do not feel the IVIG helped...
Dear Jeff, We are moving to the Ann Arbor area in June and are beginning the search to set up Dr.'s in the area. I saw you mention Dr. Boxer and was wondering...
i'm new to this list and my friends husband was just diagnosed with evans syndrome. most posts i have read seem to involve children and i'm interested to both...
Dear Heather, I would be more than happy to recommend Dr. Boxer at U of M. He has been such a wonderful doctor to Annie, and also a good friend. He is always...
Jeff Ash
jeffery_1977@...
Mar 15, 2004 11:31 pm
2792
My husband, age 73 has had Evans Syndrome since at least July 03 to Oct 03. He is now in remission, although I hope he is healed permanently. He most likely...
Barbie Brygger
Creekside5@...
Mar 20, 2004 1:49 am
2793
Jeff, Thanks so much for the info. I will give them a call this week, just to get ourselves introduced and see what information they want from the doctors...
My daughter, 3 years old, was recently diagnosed with Evans. She had a couple of incidence of ITP over the past two years, but the docters felt she would grow...
Mitch, I am sorry to hear about Gabby's diagnosis of Evans. My 3 year old son, Aidan was diagnosed when he was about 15 months old. He had a bone marrow...
Amy, Thanx for your message. What have you been doing with the doctors. Has Aidan had any Rtuxan etc. I'm assuming that your second child is in good health....
I am a patient of Dr. James Bussel. I think he is your best bet for now. I have been with him since I was eight years old. I am currently 24 years old and...
Dear Mitch, I'm very sorry to hear about Gabby. Our son, Zack, was diagnosed when he was two, and he is almost four now. There are definitely alot of ups and...
Mitch, Over the last three years Aidan has tried prednisone, IVIG, Vincristine, Cyclosporine, and most currently Rituxan. The Cyclosporine worked the longest...
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