Lou, I sure am thinking about you and Katie, and hoping with all my heart that some easier times are coming your way... No child should ever go through what...
In a message dated 2/1/04 8:20:46 PM Eastern Standard Time, cinbud@... writes: Lou, I sure am thinking about you and Katie, and hoping with all my heart...
In a message dated 2/2/04 11:12:30 AM Eastern Standard Time, r_l_brown@... writes: Check out this article about Danielle's special hospital visitor... ...
In a message dated 1/30/04 10:16:37 AM Eastern Standard Time, bettanmic@... writes: Dear Lou, I will be praying for you and Katie, sometimes when we feel...
Hi everyone. Since I first joined the group a few weeks ago, I have been trying to read all the old messages posted since the beginning of the group(I'm on...
Hi, How are you and Katie doing? Things were pretty bad I know. I really hope something better has happened for you both. Charlie went for a CT scan of the...
Barbie Brygger
Creekside5@...
Feb 9, 2004 11:33 pm
2742
Well here I am...writing in about my son (22 mos. old) Conor again. This time with bad news. Conor caught a bug from his older brother last week. High fever...
Unfortunately I think that we can all relate to your current situation and when you are in the middle of these awful times it feels like forever until things...
I currently got my Evans Syndrome back again after being in remission for two years. I have just ITP right now. I just took two doses of IVIG and Solumedryl....
Yes, I feel it is worth a try because it has been the one thing that has helped my daughter, Annie, 18 w/Evans, twice. She hasn't had to have it in almost a...
Jeff Ash
jeffery_1977@...
Feb 13, 2004 10:53 am
2746
Hello, My doctor told me that since the Rituxin worked for me in the past. It would be the first choice in the future for me if I had a relapse of my ITP or...
Dear All, We have no experience with rituxin (Nick - 19) but many on the discussion board have been helped by using it. Jeff, I'm so sorry about Annie....
Marlene M Pritchard
opca@...
Feb 13, 2004 1:07 pm
2748
In a message dated 2/13/04 12:37:19 AM Eastern Standard Time, Theopoppa@... writes: I currently got my Evans Syndrome back again after being in remission ...
Dear Lou, There is really nothing I can say except that you and Katie will be in my prayers. Sometimes, we have to bear the unbearable. I wish you strength. ...
punstoys@...
Feb 14, 2004 2:47 pm
2750
Lou, I truly can't imagine what you and Katie are going through, but I do want you to know that my heart is with you, for the little that's worth. Any decision...
Lou, Please try a bone marrow transplant. If you have to come to San Antonio, Texas we have the best. I have heard GREAt reports. Jo Ann Lewis...
RICHPHARM@...
Feb 15, 2004 4:14 pm
2752
Lou, You can stay with us. Jo Ann Lewis...
RICHPHARM@...
Feb 15, 2004 4:15 pm
2753
Yes, I can say that it has worked for me the first time, not the second. But it worked the third time for me, give it a try it's better then having Chemo. ...
Lou, What is going on with you and Katie now? I pray and think about you all the time. charlie is in the hospital since Mon Feb 16. Surgery performed on the...
Barbie Brygger
Creekside5@...
Feb 20, 2004 12:21 am
2755
Hi, From personal experience try a life with out COLD exposure. No ice cream, cold drinks. My Evan;s seems to be triggered by COLD and artificial mint...
Hi, From personal experience try a life with out COLD exposure. No ice cream, cold drinks. My Evan;s seems to be triggered by COLD and artificial mint...
Bob, If I may ask.how old are you and how long have you had Evans? Mike (Conor's Dad) ... From: bobslink1 [mailto:bobslink@...] Sent: Friday, February...
These are my symptoms I have low platelets. My platelets have been currently below 10K. Anyone out there who knows how to deal with this? I do not want to...
These are my symptoms I have low platelets. My platelets have been currently below 10K. Anyone out there who knows how to deal with this? I do not want to take...
In a message dated 2/24/04 2:17:58 PM Eastern Standard Time, nikoth7@... writes: These are my symptoms I have low platelets. My platelets have been ...
Lou, I probably speak for others when I say I've been thinking a lot about you and Katie. Sending you all good wishes and healing vibes... Cindy ... your...
In a message dated 2/24/04 2:17:58 PM Eastern Standard Time, nikoth7@... writes: These are my symptoms I have low platelets. My platelets have been ...
In a message dated 2/24/04 2:17:58 PM Eastern Standard Time, nikoth7@... writes: These are my symptoms I have low platelets. My platelets have been ...
In a message dated 2/24/04 2:17:58 PM Eastern Standard Time, nikoth7@... writes: These are my symptoms I have low platelets. My platelets have been ...
