Hello, My daughter Hope was diagnosed with Evan's syndrome this past May. She is 5 years old. She had ITP in April 2002 and then had AHA in May. She is still...
Hi has any one had headache's with I.T.P and Evans?? Nikita has been having them alot and we can't find out why.. she had them before she was told that she...
Yuh, I have Evan's I'm 19 and I've had migraines all my life. But after getting the treatments I've had real bad ones. They Kept me in the hospital and give me...
Hi all, Well Aidan is joining the bandwagon of Rituxan patients. His counts have been unsteady for a few weeks and unresponsive to the usual dose of...
In a message dated 1/7/04 4:32:21 PM Eastern Standard Time, smlybly@... writes: Hi all, Well Aidan is joining the bandwagon of Rituxan patients. His...
In a message dated 1/6/04 9:15:51 AM Eastern Standard Time, charlottejfrock@... writes: Hello, My daughter Hope was diagnosed with Evan's syndrome this...
Hi everyone, A while back I told you that I had found a product that was supposed to stop nosebleeds quickly and painlessly. I ordered it and we tried it on...
Hi Group!! What a treat it is to have found this. My daughter had been a 'medical mystery' for 5 years and I have always been told she is one of a very very...
Hi Lucy! Thank you for your story. I think I can image what you have felt at least to some extent. I also have a sick daughter. My daughter got ill in...
Hi group I am happy that i have found some friends to share about EVANS syndrome.My friend was admitted at hospital last month and she was reported to be ...
Hi group I am happy that i have found some friends to share about EVANS syndrome.My friend was admitted at hospital last month and she was reported to be ...
Hi John, MMF is mycophenolate which is an immuno supressant like cyclosporin, used mainly for children with kidney transplants. It seems to be supressing her...
Dear Jenett, My son, Nick, had a splenectomy almost three years ago. His blood counts have been good since although he now also has lupus. The absence of the ...
Marlene M M Pritchard
opca@...
Jan 18, 2004 10:40 pm
2704
My Doctor told me that a splenectomy is one of the last resorts. I've made it all the way to lupus also, but am doing better with the prednisone and cellcept....
Hi All, Marissa had a spleenectomy in the spring of 2001 and had a 10 day repreive from her illness. As far as we can tell, she tests positive for the Lupus...
Dear Lou, We are so lucky to have you with us, I went to CVS yesterday to get a script filled for Emila and asked about the nosebleed QR which you mentioned it...
Betty, Our son, Ben, has been on cellcept since sept. 2001. It was originally paired with imuran but we took him off imuran with no problems. It worked...
Dear Friend, President Bush is about to finalize changes in the laws governing overtime pay that could take away overtime protections from at least 8 million...
hi everyone i hope everyone is well & not too cold?! i hate the winter, much more of a summer person myself!! i was wondering if anyone can help me? we're...
hi everyone hope you are well; can anyone help please? we're just about to embark on a new advertising campaign, using photos of people with Evans, of all...
In a message dated 1/28/04 5:56:57 PM Eastern Standard Time, michelle_aspinall@... writes: hi everyone i hope everyone is well & not too cold?! i hate...
And what kind of info do you want with them? just curious. Jim jcctkl Hi Michelle, I'd be happy to send you pictures of Katie. It's a wonderful idea to put...
Here's a great picture of Danielle (13) during her most recent hospital stay here in Orlando two weeks ago. The guy on the left is Dan Miller from the group ...
Hi everyone. My name is Ann Marie Kargol, and my husband's name is Jeff. Our son Zack, who just turned 4, was diagnosed with Evan's Syndrome in May 2002,...
Dear Ann Marie, We are also in the Chicago area - Oak Park. Nick's big crisis was when he was 16, three years ago. He had a splenectomy in March, 2001 and his ...
Marlene M M Pritchard
opca@...
Jan 29, 2004 12:03 pm
2717
Just wanted to share the latest info on Conor(21 mos. w/Evans) We are fresh of of our visit to Dr. Bussel at Cornell Med. I have mixed feelings about the...
In a message dated 1/29/04 9:06:59 AM Eastern Standard Time, pgawoodstock@... writes: Just wanted to share the latest info on Conor(21 mos. w/Evans) We ...
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