Hi my name is Frank and my mom (age 57) was recently diagnosed with Evans Syndrome. She had a bout of this about six months ago.. had transfusions and...
Dear Frank, Sorry to hear about your Mom's difficulties. While many of us are parents of children with Evan's, there are quite a few adult patients (and...
punstoys@...
Dec 2, 2003 11:24 am
2634
Dear Frank, My son, Nick, had a splenectomy almost three years ago. His platelet count has been really good since although he has developed other auto immune...
Marlene M M Pritchard
opca@...
Dec 2, 2003 11:36 am
2635
Hi Frank, I'm sorry your mom is having to deal with all this. Rituxan can be very successful for adults. Ron, from the ITP people website has an informal...
Dear Frank, Sorry to hear about your mom's struggles and recent diagnosis with Evans. Everyone seems to respond to different forms of treatment. If your mom ...
Dear Frank, Sorry...I forgot to mention another item. If they do proceed with a splenectomy, they will want to make certain your mother has had the pneumonia...
Hi Frank, Sorry tohear of the trouble you and your mother are going thru. my 15 yr old daughter had to have a spleenectomy, her story on platlets about the...
Thanks to everyone who responded in an amazingly supportive way... I spent all day at the hospital with my mom today and had some scary moments. Eventhough her...
Frank, there's no telling what triggers any auto immune disease. I was going along healthy and happy and at 50, it hit me, and hit me hard. But it will be ok....
Good Morning Frank: As you have already seen, this group is an incredible group of knowledge and support. I don't know how I would have gotten through the...
My husband, age 72 was diagnosed with ES in July 03. He had a spleenectomy 8-28-03. He had four treatments of Rituxan during the next four week - each one 2...
Barbie Brygger
Creekside5@...
Dec 3, 2003 7:25 pm
2643
Dear Frank: There is no cut and dry answer as to whether to remove the spleen or not. My husband's hematologist waited until the last possible day to remove...
Barbie Brygger
Creekside5@...
Dec 3, 2003 7:31 pm
2644
My husband was not given a choice but to remove his spleen. They said removal of the spleen was his last hope and they gave him 4 treatments of Rituxan the...
Barbie Brygger
Creekside5@...
Dec 3, 2003 7:35 pm
2645
Hello all. I just wanted to give a quick update on my father Lewis (age 82) who has evans. He had his spleen out and his counts are now very good. He is still...
Dear Group, A paper written by Dr. Kelton @ McMaster University Health Sciences in Hamilton, Ontario, Canada shows that, with ITP, spleen removal is not...
Alvis Zujevs
alviszujevs@...
Dec 4, 2003 1:51 am
2647
* The Heart ** "Tomorrow morning," the surgeon began, "I'll open up your heart.." "You'll find Jesus there," the boy interrupted. The surgeon looked up,...
hi everyone, its been a while since i posted, but you are all in my daily thoughts. our latest news!! our medical advisor - Dr Provan, has visited USA this...
In a message dated 12/2/03 10:20:38 PM Eastern Standard Time, admin@... writes: Thanks to everyone who responded in an amazingly supportive way... I...
Dear Group, My father was 72 years old when diagnosed with ITP. He had his spleen removed but then had to go on further prednisone therapy with numerous...
Alvis Zujevs
alviszujevs@...
Dec 9, 2003 9:09 pm
2652
Dear Michelle, Just let us know what, exactly, you want in the way of information...format, list of questions...whatever you want... Also, would you have any...
punstoys@...
Dec 10, 2003 5:20 am
2653
we've been asked to fund the ONLY international research into Evans, which will include clinical(how it presents, treatments, how common it is) & lab...
Hi Everyone, This is another great card by Jacquie Lawson. Hope your holidays are happy, healthy and filled with wonders... Click here: E-cards and Web Cards...
Hi GOD BLESS all involded in this .. if you need any help on trying to get funding or selling things My family will be glad to help.. I was thinking about...
Hello everyone! This is Mindy mom to Alex (3 yrs old with evans) Alex is having a new problem and i am really scared and im wondering if anyone has ever had...
Sorry to hear of this .. I know that when my daughter was in the hospital they watched her for passing blood while she urinated and or bms. I am not sure...
Well my friends, we're back. Ben, after about 18 good months (5 without meds), crashed. He platelets droped to 1000. Oh well, it was a good run. we put him...
Mark, I am so sorry to hear about Ben. We will be praying for a Christmas miracle! Marlene ________________________________________________________________ The...
Marlene M M Pritchard
opca@...
Dec 21, 2003 4:48 pm
2661
GOD BLESS you all in this fight.. HAPPY HOLIDAYS TO you GOD BLESS jean Mark Miller <markemiller@...> wrote:Well my friends, we're back. Ben, after...
