Dear Lou, You are always giving up information, thank you, Paul has problesm with nosebleeds to mostly now slight but ongoing let me know if the product works ...
Hello Everyone, Our beutiful son, Conor was diagnosed with Evans this week. He is 18 months old. It started with what they thought was ITP. He then tested...
My blood work is fine and my coombs test is negative.....has anyone ever had a negative coombs and then become symptomatic and positive again??...Just want to...
Hi Karla, Hopefully you will be in remission forever. My daughter Katie who is 11 has had Evan's for 3 years. After becoming negative for 1 1/2 years, her...
Hi Mike, Evan's is so scary because it is very unpredictable. Conor may stay just fine with no dangerous drops in any of his cells. My daughter Katie who is...
Hi Evans does start with ITP. my child got ITP then a few days latter she had evans.. in order to have evans you must have 2 of the 3 in low platletes, white...
Hi Mike: My daughter Danielle began the journey towards Evans with ITP in 1999. At one point her platelets were as low as 1,000. That struggle lasted 6...
Thanks for the info. Keep it coming. You are in our prayers as well Mike ... From: Robin L. Brown To: EvansSyndrome@yahoogroups.com Sent: Tuesday, October 07,...
Conor is at home and has been fine. We are getting ready for the numbers to change although they have been in a safe range for 6 months or so. We are praying...
Thanks for the info. We need to hear from as many of you as possible right now. Keep it coming. We'll keep you in our prayers as well. Mike ... From: Grace...
my daughter was diagnoised with evans at age 15 she is now 17 and doing well after a few terrifing years in and out of the hospital. im interested in the...
HI, WE HAVE A CLOSE FRIEND OF THE FAMILY DIAGNOSED WITH EVAN DESIESE. HE REALLY HAS HAD A HARD TIME. FOR A MINUTE I THOUGHT WE WERE GONNA LOOSE HIM. HES 23 YRS...
DINKYCORNY@...
Oct 8, 2003 1:39 am
2517
My prayers and love are going you way. just let GOD do his work.. keep us informed please... GOD BLESS jean DINKYCORNY@... wrote:HI, WE HAVE A CLOSE...
Hi, My daughter was also 15 when she got ITP/Evans she is now 16 and the year mark is comming, her platelets are now too high. i am not sure if anyone else has...
Hi Dawn: My daughter Danielle has been battling Evans since 1999; it has certainly been a roller coaster ride. This support group has been wonderful, there is...
Dear Group, Knowing what a tough journey we are all on I thought that I would share with you my experience giving Paul a driving lesson this weekend, after all...
All, I recently joined your group to guide my brother-in-law, Mark (age 62), who was diagnosed with Evans 2 months ago. I have been reading your posts and am...
In a message dated 10/8/03 11:31:09 AM Eastern Daylight Time, bettanmic@... writes: Dear Group, Knowing what a tough journey we are all on I thought that I...
Karla, Aidan's coombs was negative for about 6 months (October 2002-March 2003). In March his platelets dropped again so they re-tested his coombs and found...
What a Blessing to have.. Fun good old time family fun.. GOD BLESS, oh my 16 year old has been talking bout driving and we are getting the books and all...
Hi there I want to say my prayers are going your way AND my praises to you what a great brother you are I never use the inlaw I believe that GOD has gave us...
Hi everyone - this article was written by a doctor that I know and respect. Please read it before you consider getting the vaccine -- and please note the ...
Mike, I'm sorry to hear about Conor. We hope and pray you hit the right combination and Conor has a full, fun and productive life. Every Evans expirience is...
Mark, Just read your post. Your last paragraph could be echoed by most of us! I am so thankful for the support of this group and the information passed back...
Marlene M Pritchard
opca@...
Oct 10, 2003 2:49 pm
2531
Thanks for the kind and comforting words. We are still in a state of shock I guess. However, we are comforted by stories like yours. Please keep them coming....
Hello, Just wanted to update the group on my son Dan.He is not responding to the Rixtuxin.He now is having a treatment called plasma pheresis.Has anyone ever...
Good luck and GOD BLESS , my daughter had vincristine and cyclo, it worked for her the other you stated I am not sure on it, maybe lou can answer that.. I...
Dear DINKY, I am sorry to hear about your friend in the Detroit Hospital. My daughter Annie, 18 w/Evans, is being treated for her Evans at The University of...
