Amy, Home is where the heart is. Sometimes being sick yet being home is the best medicine. I will continue also to pray for Aidan and a quick recovery. God...
Jeff Ash
jeffery_1977@...
Sep 2, 2003 11:40 am
2449
In a message dated 8/27/03 11:21:14 PM Eastern Daylight Time, mvaa1@... writes: Alex just passed his 2 year anniversary of his diagnoisis. Alex red counts...
... mvaa1@m... ... not at this time they want to keep him on the small dose and try to get him off again soon. It very hard and worrysome, I would think he ...
Has anyone ever had an experience with a severe case of thrush? Aidan has had it for about five days and the medicine (nystatin) does not seem to be helping....
Dear Amy, No words of wisdom...don't know anything about thrush...just words of support. You and Aidan have really been under siege. I hope things turn...
punstoys@...
Sep 7, 2003 4:14 pm
2453
In a message dated 9/7/03 11:55:05 AM Eastern Daylight Time, smlybly@... writes: Has anyone ever had an experience with a severe case of thrush? Aidan...
Amy, I am so sorry to hear of one more thing for little Aidan. We have been praying for him and will continue. I read Lou's post. Seems pretty thorough. I can...
Marlene M M Pritchard
opca@...
Sep 7, 2003 7:10 pm
2455
Shelly, I'm Nathan's dad and we live in Scotland. I read about Micah's haemoglobin count and noticed it was the same as Nathan's last count in August. Nathan...
Paul, Micah almost always says he's feeling okay (like you, I think our children sometimes don't let on how they are really feeling...to protect us!). He does...
punstoys@...
Sep 7, 2003 10:05 pm
2457
Paul, I don't know how you got my e mail address, but I am very happy that Nathan is doing well. Enjoy every moment you have with him..I have found that it is...
shellybiele@...
Sep 7, 2003 10:22 pm
2458
Has anyone had an expirience with low blood pressure related to Evans? My daughter Danielle, 13 w/Evans, was not feeling well last week and became very weak...
hi all well jusst a note on nikita she has been ill since wed of this past week she went out to eat with her grandma and greatgrandma and got food poison, she...
Sorry to hear about Nikita's food poisoning. Let us know how she does. Lou Addington, RN, CLNC Legal Nurse Associates, Inc PO Box 290203 Port Orange, FL 32129...
In a message dated 9/7/03 7:52:12 PM Eastern Daylight Time, r_l_brown@... writes: Has anyone had an expirience with low blood pressure related to Evans?...
Thanks for the response Lou. Right now Dani's counts are typical for her (8.2 hem, platelets are high). What concerns me is that the BP was taken at the dr's ...
Dear All, I've been saddened by all the bad news on the board lately. Makes me very aware to pray for you and also very thankful for what is happening with ...
Marlene M Pritchard
opca@...
Sep 9, 2003 5:59 pm
2467
i have done LOTS of research on stem cells and we have decided to bank our daughters stem cells at birth when she comes. i received some information from the...
Hi Kim, This sounds very encouraging and I would like to discuss this with my son Connor's Immunologist. Would it be possible for you to share more of your ...
Dear Marlene, Whew! Thank goodness for some good news! It is wonderful when our children can look beyond the medical and focus on living the fullest life...
punstoys@...
Sep 9, 2003 8:48 pm
2470
In a message dated 9/9/03 3:20:48 PM Eastern Daylight Time, kcpatrick26@... writes: i have done LOTS of research on stem cells and we have decided to...
Did I mention Aidan became a big brother this June? Nolan Patrick just turned three months old September 7th. We banked Nolan's cord blood with Cord...
hi! try going under viacord.com and see if they have a website. we got our kit in the mail day before yesterday and the doctors at the hospitl will actually...
Hi everyone, I saw this article on the platelet enews letter and thought you may be interested... Click here: Pediatrics -- Abstracts: Holt et al. 111 (1): 87 ...
Lou, Very interesting article, but have you seen anything that is reverse of that - splenectomy predicting successful IVIG?? Because that is what the order...
Dear Lou, Thanks for the article. I emailed it to Micah and suggested that he print it for future reference. He has had IVIG twice and did not respond to it...
punstoys@...
Sep 17, 2003 11:52 am
2476
Shelly, Good news about Micah! What a relief it must be that he is improving. Grace (Katie -11) punstoys@... wrote: Dear Lou, Thanks for the article. I...
