Hi Everyone, I came across this article on Rituxin and monoclonal antibodies. The article is really talking about cancer treatment, but it was interesting and...
As a lifelong insomniac I know that it can make any problem a thousand times worse. Is there any chance she could take Ambien or something for a while till it...
Hey everybody, could someone please please please help me out with this? Usually when I post, I don't get replies, but this is really important. A quick recap...
In a message dated 8/2/03 11:37:30 PM Eastern Daylight Time, ... Hi Missy, Glad to hear that your counts are doing well, sorry to hear that your back is not....
Hi Missy, My daughter, Danielle, is 13 and has been dealing with Evan's since 1999. Dani went through ITP, Neutropenia, Hemolytic Anemia, Lymphoid and she is ...
Micah says, "...could be a delayed side effect of the drugs or could be withrawal. My joints didn't crack until after I had solumedrol." Hope you can get some...
punstoys@...
Aug 4, 2003 3:16 am
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Dear Missy, My son Paul, 16, had the Rixabaum in May and we are still hoping it works, although in somes ways it must be since he hasn't had an IVIG in 2 ...
Hi everyone, This is Jo Ann Lewis, I have been out for a while. Well, my daughter Kelli (4yrs.) doe's not have Evans, but atypical HUS. She is now in Kidney...
RICHPHARM@...
Aug 9, 2003 2:13 pm
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I am so sorry to hear this, but I will pray for you and your family, please keep us updated here on her and you.. GOD BLESS jean RICHPHARM@... wrote:Hi...
Hi Brian My daughter has this too, it is where the red blood cells are low, I am not sure what info you are looking for on this please reply and let me know...
Hi Brian, My 13 year-old daughter has been dealing with autoimmune Hemolytic Anemia for the past year. For Danielle this is part of Evans that she is going ...
www.TexasTransplant.org Hello you may want to look into this: God Bless you and your family.. Brian ... Do you Yahoo!? Yahoo! SiteBuilder - Free, easy-to-use...
I wanted to ask if everyone could please keep my Aidan in their prayers. We were vacationing in Northern Wisconsin this week when Aidan suddenly lost his...
Amy, Our thoughts and prayers are with you and Aidan. Hang in there and keep us posted. Sincerely, Heather and family(Erik 8 with Evans) ... From: Amy Walsh...
Amy, I am so very sorry to hear about Aidan. I will definitely be sending extra prayers your way. Please keep us posted on how he is. Wish I could sit there...
Dear Amy, If it is Guillain Barre Syndrome, most people have a complete recovery...We will certainly be praying for Aidan and for you. When you have a moment,...
punstoys@...
Aug 14, 2003 2:25 am
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Hello, Aidan was moved from ICU today to a normal room. His condition has not worsened although they still believe he has Guillain Barre syndrome. His...
So glad to hear that your mom is able to give you some support. We will keep looking and hoping for good news. Shelly...
punstoys@...
Aug 15, 2003 11:21 am
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Dear Amy, We are praying for Aidan. I cannot imagine how scary this must be for you. Thank you for keeping us posted! Marlene ...
Marlene M M Pritchard
opca@...
Aug 15, 2003 11:38 am
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Dear Amy, I and my family will pray for Aidan and for you too, and I hope you can fly home soon, Prayers and love going your way Betty Mom to Paul 16/evans...
We are finally home. Well, not home but back at our hospital here in Illinois. Aidan had his first airplane ride when we flew into Chicago. I was a little...
Hi Amy, Thank you for the update. I am so glad that you made it closer to home. Having a sick child is bad enough when you are in your own environment. Are...
Thank you for a "good news" update. I am pleased to hear that there has been so much progress in so short (although I'm sure it doesn't seem short to you) a...
punstoys@...
Aug 22, 2003 12:20 am
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Dear Group, I am sorry to report that it doesn't look like the rituxmaub worked for Paul, we are going next Wednesday for a complete follow-up but last week he...
Dear Betty, So sorry to hear about the disappointing numbers. We will be thinking of you and Paul. Shelly...
punstoys@...
Aug 22, 2003 2:14 pm
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Hi Everyone, Katie is 11 and has had Evan's for three years now with long periods of remission. Three years ago she was very sick, hemoglobin below 6, and was...
Our 12 year old son was successfully treated with imuran and cellcept which are immuno-suppressant drugs. The idea was that his immune system would be unable...
Thank you Shari! I will certainly bring this up with the doctor. What were the side effects of immuran and cellcept? Did Ben take these at the same time?...
Hi Grace, No side effects. The drs said there was a chance that he would pick up more viruses but he never did (he had one cold over the 18 months). He...
