Dear Jean, This is our fourth year with evans, we have tried steriods, winrow, IVIG amd MP26, with not much luck, although in the beginning we had much longer...
Dear Betty, My Annie, 171/2 w/evans, has had two Rituxum treatments in the past year at the Unniversity of Michigan Cancer Center and it has been a wonderful...
Jeff Ash
jeffery_1977@...
May 1, 2003 11:52 am
2130
Ya. i know , I will pray for you all and iam here if you need someone.. GOD BLESS jean bettanmic@... wrote:Dear Jean, This is our fourth year with...
Dear Jeff, Thank you for your e-mail, I was wondering how often Annie has to have her blood levels check now ? since this is part of a trial I am meeting next ...
Is this like Retuxan? My child had retuxan several times and that made her very ill they had to stop that treatment..... don't mean to scare you or make you...
Dear Betty, Annie had her levels checked the next week after her infusion treatment. The only thing they monitored was her main vitals; BP, Pulse, and...
Jeff Ash
jeffery_1977@...
May 2, 2003 5:30 pm
2134
Hi All! Full of questions and anxiety I try to figure out what has struck our sweet ten months daughter. She got sick early January with fatigue, pain and...
HiMy child has evans and there is not much out there on this. You never stated what type of doctor she is under the care of and what state you live in.. If...
Hello John, I have been diagnosed with Evans Syndrome when I was 19 years old. I battled with a disease called ITP which is just low platelets since I was...
Hi Jean! I don’t know what type of doctor we have. There are three doctors working in a team. I will check which types they are. We live in the city of...
Hi Kimberley! Thank you for your letter. Thank you for taking your time. I'm so glad you responded on Rituxin. What kind of medicine is that? Please tell me...
Hi john I hope my story can help. In my case, I had several blood dips after an infection. The infections were fluw, ear infections and long-infections...
Erik Hovingh
erikhovingh@...
May 3, 2003 12:40 pm
2140
Hi Erik! Thank you for your story! My daughter got her first dose of immunoglobulin yesterday. I figure we would have to wait longer to se the result? The...
hi john-my husband mike was actually the one who responded to your email. he has ITP and just recently went back into remission. he has had a battle with...
Hi John,Your story reminded me a great deal of my son. He also had his first problems at 10 months old (He is now almost 2 1/2). The lowest his Hemoglobin...
Hi John, Last May our daughter Rachel became very tired, she is 13 years old now, we didn't think too much of it because our daughter get blood work about ...
In a message dated 5/2/03 7:06:19 PM Eastern Daylight Time, john@... ... I'm catching up on email today and had to comment on your note above. When ...
Hi John, Of course i don't mind asking. That's why we are on this site. ... My platelets went up and down from my 10 year untill my ±15 They were between 25...
Erik Hovingh
erikhovingh@...
May 4, 2003 5:32 pm
2147
Lou, I read your post and feel so badly for Katie and for you! This has been a long battle and during the whole time you have been such a support to all of us....
Marlene M M Pritchard
opca@...
May 4, 2003 10:36 pm
2148
dEAR jEFF, tHANK YOU FOR YOUR RESPONSE, WE ARE GOING IN ON WEDNESDAY TO GET THE DETAILS AND AS LONG AS WE GET THE FINAL APRROVAL WE ARE LOOKING TO START THE ...
Hi Kim and Mike! Thank you for your reply. The drug Rituxin puzzles me. I have found it on the net now and it is a monoclonal antibody that targets and...
Hi and thank you for your story. A new world is opening for us. I can’t imagine what you have had to go through. When we first were struck by Evans we knew...
Hi Lou! Thank you for your information about IVIG. Our doctors didn’t know. Sorry to hear about Katies problems. This decease doesn’t feel fun at all. ...
Lou! You are right. We didn’t give Rebecka ASA. I have checked the drug we gave Rebecka now and the active substance is paracetamol. But it was good to...
Hi Amy! Thank you for your mail. Good to hear that your sons levels are stable. I really agree on that there are similarities between your and our problems. ...
John, Don't worry about asking questions, I do not mind answering them. That is what this group is for. Aidan has remained stable with his hemoglobin since...
In a message dated 5/5/03 7:29:32 PM Eastern Daylight Time, john@... ... higher doses of steroids when she had a crisis, and we could never tell which ...
Has there been any studys why ITP turns to evans? What studies are going on with evans? I would like to see what maybe some of the causes of evans, My...
Hi, My son has Evans for 3 1/2 yrs. now. And my understanding is ITP does not turn into Evans it's the combination of ITP and Anemia that is called Evans. I...
