Hi. My name is jean and I have a child that has been in the hospital since dec 02. she is at this time having in/out treatment, Kemo is the latest treatment ,...
... steroids ... wbc ... considering ... steriods but that helps with the WBC. my child whom has ITP (low blood platlets)is taking steriods her WBC at this...
Jean, Thank you for your return letter on nuetropenia. I am sorry to hear your daughter has been diagnosed with Evans Syndrome. If you have any questions or...
jean i am sad to hear about your child with ITP/Evan's. just to let you know what worked for my husband, but of course he is 27 years old so the type of...
Hello everyone, I just wanted to inform everyone that this month, April,Carlos my 4 yr.old will be in remission from Evans for 3 yrs.He has not been on...
rcavazos161251@...
Apr 7, 2003 3:13 am
2107
Hello Group, This weekend my son Paul turned 16 !!! He felt good this week and we had a wonderful party with friends and family. As an added plus he felt good...
Congratulations and thank you for sharing! Lou Addington, RN, CLNC Legal Nurse Associates, Inc PO Box 290203 Port Orange, FL 32129 386-322-2656 Fax:...
Hi Lou, I'm a follower of this web site because of our first childs diagnosis of Evans Syndrome. I also have a son with JRA and now am starting with a new...
MNDIANE61@...
Apr 11, 2003 3:56 pm
2110
I was just needing info on Evan's Syndrome, can anyone tell me about this, and what they went thru and what I nee to look out for. ythanks for your time GOD...
Hi Jean, Go to my website (see the link below) and click on Research Evans syndrome up at the top. There are a number of articles and information. Please...
My mother-in-law has Evans, and the doctors say that a splenectomy is needed. How is the surgery performed? Her platelets are at 7000. Isn't blood loss...
Dear Veronica, My son had a splenectomy after trying several other treatments. That was 2 years ago and his counts are still excellent. Not everyone is helped...
Marlene M Pritchard
opca@...
Apr 17, 2003 12:37 pm
2116
Veronica, I'm sorry - I just re read your email and see it is your mother in law not your husband. Marlene ...
Marlene M Pritchard
opca@...
Apr 17, 2003 12:44 pm
2117
sorry- accidentally hit snet button too early! anyways, the surgery scared me but we thought it would be the best decision since the doctors said they would...
hi! my husband mike did not respond at all to the spleenectomy and almost died from the surgery from internal bleeding. they had to rush him back into...
HI! I have Evan's with an autoimmune disorder. I've been in remission for 9 years. I also had a splenectomy, gall bladder removed and my Appends. I never had...
hi! mike and i are moving to pittsburgh may 24th which is about 7 and a half hours away from chicago so i signed us up for this conference. is anyone else...
i would be thrilled to share the information i get. i will even get extra handouts and be willing to mail them to anyone who would like. mike is doing great....
Hello, My son had his spleen removed in 1994.Before the surgery,he had to receive both the flu shot and pneumo vax.The doctor has said that everyone in the...
Hi everyone, Thought some of you may be interested in this. Sure wish I could go!... Lou Addington, RN, CLNC Legal Nurse Associates, Inc PO Box 290203 Port...
Dear Friends, After much delay the trial for the rituximab is starting here at Childrens Hospital in Boston and we are meeting on May 7th for a final screening...
Betty, We have no experience with Rituximab but we will be praying for you, the doctors and Paul. Keep us posted. Marlene ...
Marlene M Pritchard
opca@...
Apr 30, 2003 4:34 pm
2127
Hi.nice to receive your email,, My 15 year old has evans and she has done chemo that has brought her levels up but has droped her white count and her red...
Dear Jean, This is our fourth year with evans, we have tried steriods, winrow, IVIG amd MP26, with not much luck, although in the beginning we had much longer...
Dear Betty, My Annie, 171/2 w/evans, has had two Rituxum treatments in the past year at the Unniversity of Michigan Cancer Center and it has been a wonderful...
Jeff Ash
jeffery_1977@...
May 1, 2003 11:52 am
2130
Ya. i know , I will pray for you all and iam here if you need someone.. GOD BLESS jean bettanmic@... wrote:Dear Jean, This is our fourth year with...
Dear Jeff, Thank you for your e-mail, I was wondering how often Annie has to have her blood levels check now ? since this is part of a trial I am meeting next ...
