Hi Shelly, The Doctor which they want Rachel to see is Dr. Busell. I tried to look up info on him on the Cornell web site but there wasn't too much. We live...
Dear Nancy and Randy, It was my son, Micah, who was seen by Dr. Gill (now retired, much to my dismay) and Dr. Busell. When his platelets crashed (below...
punstoys@...
Mar 1, 2003 4:28 pm
2091
We notice in the e-mails that Evans people should avoid tomatoes and onions. What is the significance? Our grand-daughter has Evans....
In a message dated 3/11/03 8:43:17 PM Eastern Standard Time, ... Hi there, Some people have found in their research, that tomatoes and onions can exacerbate...
lnalou@...
Mar 12, 2003 2:00 am
2093
yeah I noticed that too. I would love to be eating the right foods to keep me healthy. Does anyone know of other foods people who have compromised immune...
I just want to share my story and I hope this may help although may be a little bit. I got Evans on 1998 after took rheumatic pills. HB going down to 6,...
Hello there, Can you explain what Tahitian noni is, and why you think it helps. Greetings Erik ... ...
Erik Hovingh
erikhovingh@...
Mar 14, 2003 5:35 pm
2096
Greetings Erik, Tahitian Noni is come from a fruit call as Noni (morinda citrifolia) in our country (Indonesia) we call it mengkudu. It's very stink, but after...
Hi everyone, We have used NONI juice in our home for the past 5 years at least. It has helped Katie along the way. She has not had any major miracles from...
lnalou@...
Mar 17, 2003 4:50 pm
2098
Dear listmates, If you are not subscribed to this e-news, you should be as they always have interesting information. Attached is the latest edition for your...
lnalou@...
Mar 17, 2003 5:52 pm
2099
This is beautiful... <A HREF="http://www.llangley.com/yoga/wisdom/rightnow[2].htm">Click here: rightnow</A> http://www.llangley.com/yoga/wisdom/rightnow[2].htm...
Hi. My name is jean and I have a child that has been in the hospital since dec 02. she is at this time having in/out treatment, Kemo is the latest treatment ,...
... steroids ... wbc ... considering ... steriods but that helps with the WBC. my child whom has ITP (low blood platlets)is taking steriods her WBC at this...
Jean, Thank you for your return letter on nuetropenia. I am sorry to hear your daughter has been diagnosed with Evans Syndrome. If you have any questions or...
jean i am sad to hear about your child with ITP/Evan's. just to let you know what worked for my husband, but of course he is 27 years old so the type of...
Hello everyone, I just wanted to inform everyone that this month, April,Carlos my 4 yr.old will be in remission from Evans for 3 yrs.He has not been on...
rcavazos161251@...
Apr 7, 2003 3:13 am
2107
Hello Group, This weekend my son Paul turned 16 !!! He felt good this week and we had a wonderful party with friends and family. As an added plus he felt good...
Congratulations and thank you for sharing! Lou Addington, RN, CLNC Legal Nurse Associates, Inc PO Box 290203 Port Orange, FL 32129 386-322-2656 Fax:...
Hi Lou, I'm a follower of this web site because of our first childs diagnosis of Evans Syndrome. I also have a son with JRA and now am starting with a new...
MNDIANE61@...
Apr 11, 2003 3:56 pm
2110
I was just needing info on Evan's Syndrome, can anyone tell me about this, and what they went thru and what I nee to look out for. ythanks for your time GOD...
Hi Jean, Go to my website (see the link below) and click on Research Evans syndrome up at the top. There are a number of articles and information. Please...
My mother-in-law has Evans, and the doctors say that a splenectomy is needed. How is the surgery performed? Her platelets are at 7000. Isn't blood loss...
Dear Veronica, My son had a splenectomy after trying several other treatments. That was 2 years ago and his counts are still excellent. Not everyone is helped...
Marlene M Pritchard
opca@...
Apr 17, 2003 12:37 pm
2116
Veronica, I'm sorry - I just re read your email and see it is your mother in law not your husband. Marlene ...
Marlene M Pritchard
opca@...
Apr 17, 2003 12:44 pm
2117
sorry- accidentally hit snet button too early! anyways, the surgery scared me but we thought it would be the best decision since the doctors said they would...
