My Son Christopher has so far spent the last three weeks in hospital with an infection, the wife is getting fed up with having to stay with him I'm trying to...
bacchus@...
Jul 25, 1999 12:39 pm
2
Dear Dai, I'm so sorry to hear of Christopher's infection. Can you tell me, where is his infection, and how are they treating it? Is he still on the...
LNALOU@xxx.xxx
Jul 25, 1999 3:47 pm
3
Hi Lou, Christopher was first admitted with a high temperature about five/six weeks ago, they found an infection in his Hickman line, treated him with ...
David Pratt
bacchus@xxxxxxxxx.xx....
Jul 26, 1999 1:12 pm
4
Hi Lou, Chris' is still in hospital, week six, he's been home for three days in the last eight weeks according to his hospital records. He now requires a...
David Pratt
bacchus@xxxxxxxxx.xx....
Aug 10, 1999 9:39 pm
5
David, God bless you and your family. Like you, all of the information that I have read related to splenectomy with Evans Syndrome has shown a short remission...
LNALOU@xxx.xxx
Aug 11, 1999 6:09 am
6
Lou, Thanks for all of the info. It is great to receive email and hear about others' stories and their status. Attached is a recommended Adult Evan's Syndrome...
Stephen & Johanna Baird
sjbaird@xxxxxxx.xxxx
Aug 16, 1999 12:27 am
7
Dear Dai, How are you? How is the family, and namely, Christopher doing? My thoughts and prayers are with you. I check my mail throughout the day hoping...
LNALOU@xxx.xxx
Aug 16, 1999 7:11 pm
8
Hi Lou, Christopher finally got transferred to London's Great Ormond Street Hospital on Thursday 12th, they left him on Friday and over the weekend with a...
David Pratt
bacchus@xxxxxxxxx.xx....
Aug 16, 1999 8:55 pm
9
Dai, So, he is in a better hospital now? Happy that you have some help with the girls. I am still gathering the data, but so far being at the beach has not ...
LNALOU@xxx.xxx
Aug 16, 1999 9:31 pm
10
Hi There, I was just surfing for a few minutes and came to this site. It is linked from my website and I've been here before, but in reviewing it again, it...
LNALOU@xxx.xxx
Aug 17, 1999 11:51 pm
11
Hi Lou, Christopher got transferred back from Great Ormond St to Llandough Hospital yesterday afternoon, unfortunately there is still no improvement in his...
David Pratt
bacchus@xxxxxxxxx.xx....
Aug 26, 1999 9:51 am
12
Hi Lou, Christopher is to under go an emergency splenectomy today. The spleen is so large now that it is causing him sever pain and they are having to keep him...
David Pratt
bacchus@xxxxxxxxx.xx....
Sep 10, 1999 4:06 am
13
Dear Dai, I am so sorry to hear of Christopher's surgery and all that you are going through. I spoke with my friend Kathy today who had written to you when I...
LNALOU@xxx.xxx
Sep 11, 1999 11:00 pm
14
<<Hello! We are in Grade 5 at Bill Arp Elementary School in Douglasville, GA which is about 20 minutes west of Atlanta, GA, USA. We have decided to map an...
LNALOU@xxx.xxx
Oct 25, 1999 9:43 pm
15
Hello - I have a 7 year old son with both autoimmune neutropenia and ITP. Both disorders have been confirmed by the presence of antibodies. Although not a...
SAnder823@xxx.xxx
Nov 16, 1999 8:42 pm
16
Dear Susan, Thank you for joining our list. Do you know if your son is Coombs positive? That would be antibodies against his red cells. I assume because they...
LNALOU@xxx.xxx
Nov 17, 1999 2:02 am
17
My daughter is presently neutropenic and had ITP earlier this year. My youngest son had neuropenia, ITP and AIHA at the same time in 1994. Treatment has been...
Alvis Zujevs
alviszujevs@xxxxxxx.x...
Nov 17, 1999 6:05 pm
18
In a message dated 11/17/99 4:22:30 AM Eastern Standard Time, EvansSyndrome@onelist.com writes: << Thank you for joining our list. Do you know if your son is...
SAnder823@xxx.xxx
Nov 17, 1999 6:57 pm
19
Susan, <<Can you be coombs positive without a lowered RBC or HgB? Does the negative coombs mean he is not considered Evans?>> Yes, you can be coombs positive...
LNALOU@xxx.xxx
Nov 18, 1999 4:45 am
20
Thank you for the welcome. I was very enlightened to see this web site on Evans. My daughter has had this illness for over 10 years now. She was in 4th...
Pasmida5151@xxx.xxx
Nov 19, 1999 1:20 am
21
Peggy, Wow, I'm sorry to hear about your ordeal with Evan's. I send my best to you and your daughter. I was recently dx with Evan's this past fall; I'm 26....
Stephen & Johanna Baird
sjbaird@xxxxxxx.xxxx
Nov 19, 1999 7:59 pm
22
How much does prayer weigh? ... Lou Addington, RN, CLNC Legal Nurse Associates, Inc. 904-322-2656 / Fax 904-760-5583 <A...
LNALOU@xxx.xxx
Nov 30, 1999 4:22 pm
23
... hungry babies and ... ranged ... Dad had ... heard his ... hide under ... groceries. ... beatings, but ... southern ... until they ... them into ... of us ...
LNALOU@xxx.xxx
Dec 5, 1999 1:49 am
24
I found this today on PubMed - thought those on the list might find it interesting - ... Multiple autoimmune haemopoietic disorders and insidious clonal...
SAnder823@xxx.xxx
Dec 7, 1999 4:40 am
25
Hi Everyone, How is everyone doing? There has been no recent activity on this list, and I am sorry about that. I have gotten some private emails from some of...
LNALOU@...
Jan 18, 2000 2:50 am
26
In a message dated 1/17/00 9:58:27 PM Eastern Standard Time, LNALOU@... writes: << How is everyone doing? >> Dear Lou - My son is doing very well - our...
SAnder823@...
Jan 19, 2000 2:30 pm
27
Paul, 14, had the combination, in cojunction with AIHA, once in 1994. Victoria, 16, had the combination once this year. The ITP was handled with IGG but the...
Alvis Zujevs
alviszujevs@...
Jan 19, 2000 7:32 pm
28
Nice to see some activity. My daughter has been on prednisone a long time and they just started giving the IVIG once a month (4 months so far) Her counts...
Pasmida5151@...
Jan 22, 2000 4:40 am
29
Hello everyone, Even though I'm neither a child nor a parent of a child with Evan's, I have been dx with Evan's as a 26yr old. It appears I suffer from the...
Stephen & Johanna Baird
sjbaird@...
Jan 22, 2000 5:52 pm
30
We have found that the IVIGG has to be administered over 8-12 hours to reduce the chance of headaches. ______________________________________________________ ...
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