In a message dated 12/2/02 9:31:00 AM Eastern Standard Time, ... Hemolytic uremic syndrome <A HREF="http://www.niddk.nih.gov/health/kidney/summary/hus/">Click...
lnalou@...
Dec 3, 2002 4:32 am
1905
Thought this might be of some interest. Best wishes to all during the holidays...here's to remissions all around! Shelly (mother of Micah, 20) Cloned cells...
punstoys@...
Dec 7, 2002 5:41 pm
1906
Happy holidays to all!! We are thrilled to be able to share our one year anniversary of stable (more or less) blood counts for our son, Ben (who celebrated his...
HUS stands for Hemolytic Uremic Syndrome. Kelli's doctor's (some) seem to think that she started out and stills has Evans, but it progressed into HUS ...
RICHPHARM@...
Dec 8, 2002 4:31 am
1908
Praise God for Ben's recovery. Jo Ann (Kelli's mom 4 yrs)...
RICHPHARM@...
Dec 8, 2002 4:45 am
1909
Hi Guys I'm wondering if you can help me. My Uncle Don was diagnosed with Evans Syndrome in February this year. He is 71 years old and the Dr's don't seem to ...
Mention immuno-suppressants (cellcept/imuran - typically organ transplant drugs) to Uncle Don's drs. These drugs have worked for my son and for other evans ...
Dear Donna, I am so sorry to hear about your Uncle Don. Evans syndrome really can be a horrible disease. As far as the anaphylactic shock from the platelet ...
lnalou@...
Dec 9, 2002 3:29 pm
1912
In a message dated 12/7/02 8:04:07 PM Eastern Standard Time, ... I totally agree! I count on all of you out there like I do my family, and you never let me...
lnalou@...
Dec 9, 2002 3:37 pm
1913
Hi, I just read Lou's response to you. Hers is certainly the most thorough you will get. My son, Nick, was treated with high doses of steroids. As soon as they...
Marlene Pritchard
opca@...
Dec 9, 2002 6:02 pm
1914
Hello Donna, I can't really add any more information regarding Evans treatment than that already covered. Lou has explained all the treatments and more! I stay...
In a message dated 12/9/02 1:02:50 PM Eastern Standard Time, opca@... ... Congratulations! That is just wonderful news. God does work in mysterious ...
lnalou@...
Dec 10, 2002 3:54 am
1916
hello Donna and Evans support people, Soory for my bad english but it's not my own langauge. I totaly agree with Lou Addington. I have Evans since mine 8 year...
Erik Hovingh
erikhovingh@...
Dec 11, 2002 9:14 pm
1917
Hi Erik Thank you so much for taking the time to reply to my post. It's lovely to feel we are not on our own with this problem. I think your English is good...
In a message dated 12/11/02 4:16:46 PM Eastern Standard Time, ... Hi Erik, I think you did a wonderful job with your email. Far better than I would do if I...
lnalou@...
Dec 12, 2002 1:25 am
1919
Erik, your message was definitely from the heart and we all understand and appreciate everything you have said. I am so glad that you are doing well and we...
I have a question. My son 4yrs. old has had Evans since 6 months. Is there anyone out there with Evans that receives Social Security? I know you can get Social...
rcavazos161251@...
Dec 12, 2002 9:39 pm
1921
Marie, I inquired about this earlier this year, and was told the guide lines which I don't remember exactly, but something like this you can't earn more than (...
Thanks Betty responding, I did the paper work over the phone and have an appointment on the 30th of this month. There are 7 of us with an income of about...
rcavazos161251@...
Dec 13, 2002 3:09 pm
1923
Hi Everyone, I don't know if any of you are familiar with the American Autoimmune Related Diseases Association, but they are a wealth of information. Below is...
lnalou@...
Dec 13, 2002 9:19 pm
1924
Lou, I would love to have the article on Antiphospholipid syndrome. I went on their website and subscribed to the magazine...........Could you send the ...
Marlene Pritchard
opca@...
Dec 14, 2002 12:36 pm
1925
Happy Holidays Lou: I'm the Grandfather of an Evens Syndrome victim, so naturally I'm interested in all the information I can get. My e-mail address is:...
Gary Pollard
gpmz@...
Dec 15, 2002 6:47 am
1926
I am in desparate need of some information.Please help. My son has been on 120mg of Prednisone for the past 3 weeks due to his white blood count, red blood...
Dear Ron, I can feel the desperation in your note. Most of us have been there. Evans is diagnosed by one or more blood components being effected by antibodies...
Marlene Pritchard
opca@...
Dec 18, 2002 12:28 pm
1928
Dear Ron,, I think that Marlene did a good job answering your note, I am the mother of a 15 year old son, who has been dealing with the ups and downs ( and as...
Ron, I agree that Marlene did a great job answering your plea. Our son, Ben (12) did not respond at all to IVIG, steroids or chemotherapy (welcome to ...
Hi everyone. I have two questions today. First of all, has anyone know of any link between Evans and lymphoma? I've heard that there may be a higher...
Kate, I can only answer one question - medic alert. Ben (12) wears one and has for almost 2 years. His says "evans syndrome, autoimmune hemolytic anemia, ...
I'm not sure why they say the incidence of lymphoma and leukemias are higher for Evans patients. I do know Nick's doctor was cautious about treatments - chemos...
