Hi all, Sorry it has been so long since I have given you an update. (I was afraid to talk to her mom in fear of what the news would be.) I just spoke with...
lnalou@...
Nov 5, 2002 7:31 pm
1879
Lou, Hope you get this before you leave....we are in Washington, D.C. Actually in Northern Virginia, Herndon, just outside of D.C. If you get a break during...
Hang in there Kelli, JoAnn, and family. I can imagine that the road ahead looks almost impassable but just take it day by day. When we were waiting for a...
Roger Dietrich
roger.dietrich@...
Nov 5, 2002 8:17 pm
1881
Dear Lou & Gang, Lou, thank you for all of your continued work and support and I hope that all goes well for you in Washington and that you have a little fun...
I started my first round of Chemo on the 23rd of October. My Platelet count instantly went up to 157k, directly after the Chemo. The next week my platelet...
Dear Marcus, I hope they will come up with a more permanently effective treatment for you. We will keep you in our thoughts and prayers. Shelly (mother of...
punstoys@...
Nov 9, 2002 1:25 pm
1884
was in Win Rho or Vincristine? STOP MORE SPAM with the new MSN 8 and get 2 months FREE*...
I haven't updated you all on Nathan for ages. He is still on prednisolone, but now a very small dose. 1.5 mg every second day and it appears to have worked...
In a message dated 11/8/02 10:13:10 PM Eastern Standard Time, ... Hi Marcus, I am sorry to hear about your troubles. You did not mention which chemo drug that...
lnalou@...
Nov 12, 2002 7:29 pm
1887
In a message dated 11/9/02 4:51:20 PM Eastern Standard Time, PaulCrr@... ... Dear Paul, Thank you for the update. It is wonderful to hear some good news...
lnalou@...
Nov 12, 2002 7:50 pm
1888
I am on 2mg. of Vincristine ... chemo drug ... ideas. ... Nurse Associates - Need more time to work on the legal...
we were contacted a couple of weeks ago, by a family who just lost their 54yr old mum to evans; they only live about 10miles from us; they had no idea that...
It's so sad to hear of another loss to this horrible illness. I hope the children and loved ones are able to find peace through God's comfort at this ...
Hi My name is Sharon and I'm the mom of an 18 year old son, Matthew with Evan's. He was diagnosed in Febuary of this year. In addition he has hemolitic anemia...
I realize this orginal post was a month ago but I wanted to put my two cents in. My son Matt got the flu shot at the same time he had his vincristine. It was...
Hello, I'm sorry I have not been in contact. Kelli has HUS or TTP and possible evans. I'm so confused. I'm trying to find a good doctor. Today she stopped...
RICHPHARM@...
Nov 19, 2002 5:50 pm
1894
Joann, We continue to pray for all of you. I am so sorry things have been so rough for your family. Keep us posted as you can and be assured we will pray! ...
Marlene M Pritchard
opca@...
Nov 19, 2002 6:49 pm
1895
Hi Everyone, As usual I haven't much time but wanted to tell everyone, we just got back from Houston, Texas at The Texas Children's Hospital. We saw a Dr....
RICHPHARM@...
Nov 23, 2002 4:19 am
1896
I'm sorry to hear it came back. My son is 4yrs. He also has Evans and Anemia, he has been in remission for 2 yrs. During his last episode he had to have 2...
rcavazos161251@...
Nov 23, 2002 10:59 pm
1897
i will reply to the remission....i've been in remission for right at 16 years....i'm 33 now, and have had no serious problems of any sort since the evans...
All, I am a new member from Australia. One of our close family friend's daughter, Rachel, 2 years is diagnosed with EVANS syndrome. She is suffering too much....
lauara, it is good to hear that you have been in remission for so long, it is hard when we are struggling with current health issues to think that things will...
Just a note to touch base. Today Ben turns 12! He's on Celcept twice a day and his counts are holding steady. We wish everyone peace in the holiday season and...
In a message dated 12/2/02 9:31:00 AM Eastern Standard Time, ... Hemolytic uremic syndrome <A HREF="http://www.niddk.nih.gov/health/kidney/summary/hus/">Click...
lnalou@...
Dec 3, 2002 4:32 am
1905
Thought this might be of some interest. Best wishes to all during the holidays...here's to remissions all around! Shelly (mother of Micah, 20) Cloned cells...
punstoys@...
Dec 7, 2002 5:41 pm
1906
Happy holidays to all!! We are thrilled to be able to share our one year anniversary of stable (more or less) blood counts for our son, Ben (who celebrated his...
HUS stands for Hemolytic Uremic Syndrome. Kelli's doctor's (some) seem to think that she started out and stills has Evans, but it progressed into HUS ...
