... Missy has just bought a new digital camera, so we can send y'all pics when we return from our trip! Have a wonderful weekend to all, and love each other! ...
good for all of you !! I am so happy to ber about the make-a-wish and how thrilled your daughter is. I am also so glad to hear from Emily and her new healthy...
Hi everyone! It's nice to know we are not alone with autoimmune diseases. My name is Sharon Britt and I am the mother of a 17 year old young man who's name is...
How wonderful to hear that your son is doing so well! I hope he stays well throughout his long and wonderful life!!! Laura ( mother of Missy,18, Evan's w/...
Hi Sharon, I'm sorry you have a need to join this group but welcome you and Bill. I'm glad to hear he's been in remission since December. Most of us have...
... Lou Addington, RN, CLNC Legal Nurse Associates, Inc PO Box 290203 Port Orange, FL 32129 386-322-2656 Fax: 386-760-5583 Specializing in vaccine litigation...
lnalou@...
Sep 10, 2002 3:46 pm
1776
Hello everyone, I have a couple of questions. My son Carlos (4yrs.) has Evans almost all his life, the question I have is he had severe Lymphoniods that just ...
rcavazos161251@...
Sep 11, 2002 5:24 pm
1777
Hi there, my daughter has Evans and has HUGE swollen lymph nodes in her neck, chest and under her arms. She has had them since about the 9th grade ( she is now...
Dear Listmates, I found this site tonight and found it had some interesting things...too bad it is so expensive! You can read the abstracts there though and...
lnalou@...
Sep 13, 2002 11:38 pm
1779
Hello. I need some information about Evan's Syndrome. My Aunt was recently diagnosed with Evan's. She has had 2 blood transfusions and goes back this...
On attachment you will find the info needed on Evans. I sent copies of this to my son's school nurse (even though he is in remission) so she can understand...
rcavazos161251@...
Sep 15, 2002 11:25 pm
1781
Hi Kristi, I'm sorry to hear about your aunt's recent diagnosis with Evans. It is difficult to find very much information about Evans Syndrome, because it ...
Although there are many suggestions regarding treatment of Evans, we have found the use of immunosuppressant drugs (imuran and cellcept) to be extremely...
I typed this up from Star Magazine. Is Julia Fighting Blood Disease? By Bob Smith and Randy Jernigan STAR Magazine September 24, 2002 Life was perfect for...
Wow. If this is true, we all know what can be down the road for her. As for the issue of getting pregnet, Emily can answer a lot of those questions. (Emily,...
Jeff Ash
jeffery_1977@...
Sep 19, 2002 11:53 am
1785
just to throw in a bit of trivia, julia had a younger brother that passed away as a result of luekemia (i think)...so now I wonder if these are in the same...
In a message dated 9/19/02 9:27:32 AM Eastern Daylight Time, ... To my knowledge there is no connection between the two diseases. Evans is auto immune and...
lnalou@...
Sep 19, 2002 2:08 pm
1787
This could be very interesting. Even if she does not have full blown
Evans she might bring some publicity to ITP. Never hurts!
I've wondered about the...
Marlene M Pritchard
opca@...
Sep 19, 2002 6:22 pm
1788
Jeff, When I read this, I was certainly hoping that she could be some sort of advocate or something. She is very active with Retts syndrome.. Hmm.. Missy -...
I can try to email anyone I can and send letters. You guys shouold do the same!:D I will look for some fan mail addresses and post them for everyone. Try to...
Hi everyone, Kathy my business partner found this site with some contact info in case anyone is interested. <A...
lnalou@...
Sep 19, 2002 11:44 pm
1791
Hello! My name is Linda Salley. I am a senior special education major at Mississippi State University. My professor has assigned the class a paper on rare...
I hope this will help. WHAT IS EVANS SYNDROME? Evans syndrome is a rare autoimmune disorder in which the body makes antibodies that destroy the red blood...
rcavazos161251@...
Sep 24, 2002 1:45 am
1793
Okay, at last...here are the pictures of baby Logan...what a miracle! ~Emily (25 with Evans) _________________________________________________________________ ...
AWWWWWWWW! What a cutie!?!? Missy - http://sirpsychosxy.diaryland.com ... From: "Emily Gruszka" <emilygruszka@...> To: <EvansSyndrome@yahoogroups.com> ...
Emily,
I agree - what a miracle! Lot's of prayers are behind those beautiful
pictures! Logan is adorable!
Marlene ...
Marlene Pritchard
opca@...
Oct 1, 2002 1:59 am
1797
Hi Emily, Wow...Logan is adorable!!! Thanks so much for sharing his pictures with us. You were the first miracle in your family and Logan is another! You...
