Hi all, my 18 year old daughter has evans and is moving to Rapid City South Dakota to be with her boyfriend ( who is in the Air Force ), I am looking for any...
Hi Laura. I can't help you with any doctors in the Rapid City area, but I can comment on Rituxin treatments. My daughter Andrea, 17, underwent Rituxin...
Jeff Ash
jeffery_1977@...
Aug 8, 2002 12:32 pm
1739
... Hi Jeff, thank you so much for your note! It was the most encouraging thing I have heard in months!!! I hope and pray all goes well with your girl, as...
Helllo, I am interested to know how your daughter doing is doing with the rixtium they are hoping to try it on my 15 year son in the fall, it was suppose to ...
... Missy tried it last tuesday and she had a bad reaction to it. they stopped it after 40 min. and treated her with benadryl..she is going to try again...
... Hi all, we are now at the hospital ( using the computer in the teen room while waiting for her rituxan )...missy has to stay the night in the ICU because...
Dear Laura and Missy, Thinking of you both. I hope it goes well this time. All the best, Shelly (Micah's mom)...
punstoys@...
Aug 13, 2002 9:06 pm
1744
Hi Laura: You and Missy have more friends and loved ones than you're even aware of, nor will ever know, but they are praying for you both at this very moment....
Gary Pollard
gpmz@...
Aug 13, 2002 11:40 pm
1745
Hi Laura & Missy, I pray that all is going well. I will pray for both of you'll. I believe in prayer, because it worked for my son who will be 4 on Saturday...
rcavazos161251@...
Aug 14, 2002 1:20 am
1746
... Thanks Dad, I am so thankfull for everyones prayers and thoughts, and i am giving them back as well. Missy took the Rituxan very very well last night!!!...
--Hi Marie, thank you so much for the inspiring letter! I also, will pray for your Carlos, that he never has to feel the pain of Evans again. We are all in the...
Dear Laura, Thanks for the feedback, my son, has the IVIG gamma treatments , now every thee weeks and my feeling is at lest this last one didn't really help ...
Dear Laura, Glad to hear the good news for you and Missy, I will continue to send positive thoughts your way, you are SO right about not being able to sleep in...
I was diagnosed with I.T.P., Coombs and Neutropenia in 1999. I had dangerously low platelets and white blood cell counts. So much so, that I was put in reverse...
Welcome to the list, prophetrosette! Love your ename! I was very shocked to find out that I had 3 spleens! The surgeon acted like he expected it. I didn't want...
Hi there, I'm sorry you have a need to join our group, but welcome you to the group. Your story sounds similiar to many, especially the part about the...
I have a friend that has been diagnosed with this syndrome, I would like to know any information about any treatment in United Kingdom (UK). Regards...
Hey everybody... I know mouth sores are common with Evans, and I used to get them all the time. But I have one now, that isn't like any other one I've had...
My son has gotten sores similar to this. You may have already heard of Miles Magic,this seems to help the sores out quite a lot. These sores seem to appear...
Roger Dietrich
roger.dietrich@...
Aug 26, 2002 2:00 pm
1756
As I have been reading everyone's symptoms I notice that my son has a lot of them too, But what I don't understand (if someone can help me understand) is my...
rcavazos161251@...
Aug 26, 2002 9:29 pm
1757
Melissa, Sorry about the mouth sores, Ben has not experienced them. How's the Rituxin going? Our Doc has suggested that as an alternanitive. What's your...
My daughter developed severe Evan's two years ago. After treatment with prednisone for about 6 months she went into remission and had a negative Coombs test....
Hello, I want to comment on the Rituxan treatments that some of you and/or your loved ones are going through. My Annie, 17 w/Evans, underwent Rituxan...
Jeff Ash
jeffery_1977@...
Aug 27, 2002 2:30 pm
1760
Jeff,
It's great to hear how well Annie is doing! I am thanking God every day
for Nick's good health to this point. It has been almost two years since
his...
Marlene M Pritchard
opca@...
Aug 27, 2002 4:30 pm
1761
It has been quite a long time since I've been in touch...thanks for asking after me, Jeff! I just want to let everyone know that I'm doing amazingly well. My...
Dear Emily! Hooray! Way to go, congratulations. I'm a big man who fears not much, but this news of your baby just brought a flood of joy filled tears out of...
Jeff Ash
jeffery_1977@...
Aug 29, 2002 9:54 am
1763
Emily,
What fantastic news! Marlene ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or...
Marlene Pritchard
opca@...
Aug 29, 2002 11:44 am
1764
Emily, I am thrilled for you and your new baby. My daughter turned 18 today and I hope to be a grandmother one day. Your message gives me hope! be good to each...
Just an update on missy's mouth sores... they went completely away with one treatment of acilcyclovor ( i know it is spelled wrong but i dont have the...
Dear Laura, Great news about your daughter. I hope the Rituxan is as successful for her as was for my Annie, 17, w/Evans. As for the make-a-wish topic, how...
