Hi there, When Katie was a baby through probably 4 or 5 she had a lot of problems with diarrhea and bowel irratability. That seems to have calmed down in...
lnalou@...
Jul 9, 2002 1:58 pm
1709
Hi My son Andrew always has trouble with his bowels, his stool is practically always loose and has been over the years. Now that he has undergone the bone...
I agree about the meds, I am ok except when I am on meds. Speaking of which, one of my other side effects is weight. I have been attempting "Body for Life". It...
i am wondering does anyone with Evans have irregular bowels or diarrhea who are not on any meds? ... __________________________________________________ Do You...
In a message dated 07/10/2002 12:52:38 PM Eastern Daylight Time, ... Very interesting...what kind of products were you looking at? What "dietary aids"? If...
lnalou@...
Jul 10, 2002 6:29 pm
1714
Without a doubt it is an immune system deregulation that starts the problems with the blood. The end result is a blood disorder and that probably is why they...
Roger Dietrich
roger.dietrich@...
Jul 11, 2002 5:37 pm
1715
My daughter has had trouble with diahrea for many years (on or off medications) She has had several colonoscopies; one diagnosing collagenous colitis another...
I just had a friend that passed away and she was sick for almost a year they said she had Evans Syndrome, I had never heard of it, I dont know maybe if they...
I didn't know that the diarrhea had anything to do with Evans. I always wondered why he would get diarrhea on and off. Also he is always thirsty. he hasn't had...
rcavazos161251@...
Jul 12, 2002 10:15 pm
1718
I found out when my son was 6 to 8 months old. It started with ITP. I was afraid to take him to the doctor because of his bruising. I was afraid they were...
rcavazos161251@...
Jul 12, 2002 10:31 pm
1720
symptoms my friend had were diarreah, nausea, she was very anemic, she had some blood transfusions, about the bruising I dont think she ever had a problem with...
Please remove my name from your e mail list as soon as possible. shellybiele@......
shellybiele@...
Jul 13, 2002 3:04 am
1722
I'm sorry about your friend. When people don't know the symptoms it's hard to detect this. Know you can be a help to other people. Good Luck And God Bless you....
rcavazos161251@...
Jul 13, 2002 5:07 am
1723
Hello all, I have a question for anyone who has experience with neutropenia. Adian's platelets are currently at 582,000 and his hemoglobin is 11.6 (his coombs...
My son tested positive in his combs, and has been sick on and off for the past year with colds fever and even stomach virus and his platelets never dropped nor...
rcavazos161251@...
Jul 13, 2002 6:19 pm
1725
Hi Amy... I had some brief problems with neutropenia, but the difficulty was usually with platelets and hemoglobin as well. 2.3 seems low to me, but the...
Hi there, Neutropenia is something that some people with Evans are affected by. My daughter Katie has always had neutropenia. Her white blood count is hardly...
lnalou@...
Jul 15, 2002 12:31 am
1727
In a message dated 7/14/2002 7:33:01 PM Central Daylight Time, lnalou@......
rcavazos161251@...
Jul 15, 2002 2:12 am
1728
We have been dealing with neutropenia for a couple for years now. We had been giving neupogen shots every other day for about a year to bring up the counts to...
Roger Dietrich
roger.dietrich@...
Jul 15, 2002 12:59 pm
1729
Amy - My son has had intermittent problems with neutropenia also. For him, it is part of the Evans and doesn't always correspond to dips in platelet or...
Thank you everyone for your responses. Aidan will see the doctor again this Friday, and until then I am keeping a close watch of him. I have not noticed any...
My daughter Katie is now 10. Two years ago she developed ITP and a few weeks later Evan's Syndrome. This was 2 1/2 weeks after she had stainless steel...
In a message dated 7/30/02 9:46:38 AM Eastern Daylight Time, rghill1@... ... Hi there, This is an interesting case and one that deserves more...
lnalou@...
Jul 30, 2002 2:38 pm
1734
As a child, I had severe nosebleeds, I could even depend on them as a signal my menstrual cycle was beginning in puberty. Even though I have read Evans is not...
In a message dated 7/31/02 9:59:45 AM Eastern Daylight Time, ... Hi Brenda, I would say that on her next appointment, I would ask for a CBC to be done. You can...
lnalou@...
Jul 31, 2002 2:23 pm
1736
Hi. :) I'm not for certain that it is hereditery, but I do believe that some was messed up with my fathers genes. My dad had Bi Polar Disorder, I have Evans...
Hi all, my 18 year old daughter has evans and is moving to Rapid City South Dakota to be with her boyfriend ( who is in the Air Force ), I am looking for any...
